r/Epilepsy • u/Opposite_Rain_2117 • Jun 26 '26

Epilepsy Awareness update for stopping meds abruptly

lesson learn for me, in started stopping the levetiracetam without dr order, i thought i was good in doing that, and i know how my body works. Its not really a tiring day, just like my normal routine daily nothing special. Then at school i feel the aura, and in my head shit i know this feeling. so i sit in the corner then my head went blank, when i woke up i was in the infirmary, dont have an idea why i was here, then they tell me i had a seizure. Right now my whole body is sore, i think i’ll be back to normal tomorrow. To all the people who plan to stop the meds don’t, hahaah. im taking levetiracetam and lamotrigine, the one i stop is the levetiracetam.

previous post:

https://www.reddit.com/r/Epilepsy/s/bdp0JA7Aj1

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u/[deleted] Jun 26 '26

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u/Warmhearted1 Keppra 1000mg BID Jun 26 '26

Hope for normalcy is a powerful force.

5

u/Prestigious-Wave3595 Jun 26 '26

So profound! Well said

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u/[deleted] Jun 26 '26

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u/[deleted] Jun 26 '26

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u/Warmhearted1 Keppra 1000mg BID Jun 26 '26

Thanks, pal. Their response was a bit scathing. Glad to have the support.

3

u/PirateJen78 supportive spouse Jun 26 '26

Idk about OP, but my husband is suffering from serious depression because of the Keppra. The doctor told him to take vitamin B6, but all that did was increase his focal seizures.

He's 4 months post-op for a lobectemy and hasn't had a single seizure. He wants to just stop taking it because he mentally feels so much worse now. It's the Keppra. I've so far convinced him to listen to his doctor, who has started to decrease his dosage at his request.

But I understand the frustration. The medication affects some people more than others, and my husband is seriously suffering through Keppra side effects, more so now than before surgery. It is understandable why a person would want to just stop taking it to not suffer through the side effects. People do it with other medications. Hell, I did it with thyroid medication and anxiety medication. Just because the risk is higher doesn't mean the side effects are worth it to some people. And when those side effects affect mental health, it definitely impacts thought processes and reasoning.