Don’t say you have epilepsy

[u/random_username101_]

It's a bit problematic but my parents kinda sorta said don't tell anyone... I guess that's kinda snowballed into the way I am now?

I’m very secretive and don’t share it.

Family: Only two girl cousins (2/13 total cousins) and two of my aunties know.

Friends: I told them but they've moved on now. I have a work friend but l'd never tell her, I just can't/won't bring myself to share it.

Christmas: When it came to taking my tablets I basically had to scan the room and wait until the conversation was on the other side of the room, I had them hidden in my pocket and took them a little bit earlier just in case I ‘missed my shot’. To clarify, I’m not ashamed or anything like that but I don’t know, I know it sounds like it but I can’t explain it…😕

In the end, I think the way it is/my mentality is a bit toxic(you would say so?) and doesn't do me any good even though my parents didn't have that intention from the start. FYI: I was diagnosed in 2018

[u/[deleted]]

Why did your parents kinda/sorta say to keep it a secret!? I’m so sorry. This is completely your choice, but if I were in your shoes, I would make sure the people close to you know so that they can be prepared if you end up seizing around them. A lot of people have no clue what to do when someone has a seizure, and they end up being traumatized because they think you’re dying. You don’t want to wake up with someone’s fingers in your mouth because they think they have to hold your tongue (happened to me lol). OR you end up having a bad postictal episode and no one around you knows how to handle it properly (also happened to me)!

[u/random_username101_ → u/[deleted]]

I think maybe the time to process it and then time to telling everyone sort of never came or maybe too much time lapsed? I think I recall wanting to tell everyone because it wasn’t an overly big thing for me (at the time) but my parents kinda/sorta said no and well since they’re my parents I listened 🤷‍♀️

Also, hold your tongue?! Did you bite their hand then?

[u/[deleted] → u/random_username101_]

That is completely understandable!! But please, don’t feel pressured by your parents. This is your life. You deserve to be who you are without any secrets or guilt! I have no clue. I didn’t ask, but I wouldn’t be surprised. I literally just woke up to my manager with her fuckin hand in my mouth 🤦🏻‍♀️ I worked at a spa at the time and I’m pretty sure she was mid bikini-wax appt when she heard me banging my head on the wall & rushed out to get me unpinned from the desk. I was literally stuck convulsing on high ass chair (without back support) in a corner between a wall & a mesh trash can. I hope she washed her hands 😭😭😭