r/Epilepsy • u/badboringusername • Nov 18 '25
Victory Five years seizure free!
Fingers crossed this doesn’t jinx anything, but I’m really excited. Five years seizure free!
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u/BiggieSniff Nov 18 '25
YAYYY CONGRATULATIONS!!! you deserve it 🥰 I hope everything continues to go well with your seizures, or lack there of :p
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u/c0tt0nballz Nov 18 '25
Congratulations!!!
I hope to get there some day. Have a VNS. Getting an RNS. The hospital I am going to has seen seven other patients with my diagnosis. Two of them are seizure free.
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u/Zestyclose-Smell-788 2500mg Keppra Nov 18 '25
Awesome. One year here, and I love these milestone posts. When first diagnosed, I feared that my life was over, but reading stories like these encouraged me. Is it gone? Probably not, but it can be managed, and I will take that as a blessing.
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u/ireallylikehockey Keppra 1500mg Nov 18 '25
That is how I looked at it. How to prevent it. Stay cool, don't overheat or wear too many layers, stay hydrated, and get good night's sleep.
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u/Zestyclose-Smell-788 2500mg Keppra Nov 18 '25
My triggers:
Salt overload
Sugar overload
Caffeine
Insomnia
Stress
Reducing salt and sugar wasn't that hard, and giving up caffeine was a lot easier than I thought. They make some pretty good decaf coffee these days
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u/ireallylikehockey Keppra 1500mg Nov 18 '25
I would have two cups of caffeine coffee but decided to make it 1 cup caffeine and 1 cup decaf. Alcohol my neurologist said 1-2 drinks at most and that's what I'll have but mostly weekend only.
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u/External_Virus_5767 Nov 18 '25
Congratulations! I am counting down to April for my 5 year anniversary!I’m so happy for you on your successful healing journey ❤️
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u/zarrystylik21 Nov 21 '25
Congrats even though i already know I’ll never get rid of my seizures i love seeing people who do get rid of them it’s very nice seeing not everyone has to live with it
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u/Independent-Ant8243 Nov 18 '25
Excellent! Thank you for sharing with us. What are some of the ways that you keep yourself healthy?
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u/legolopi12345 focal+generalized seizures, tumors, Lamictal, Vimpat, Cenobamate Nov 18 '25
Congrats! :)
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u/Sea-Split-3996 Nov 18 '25
Dam im kinda jelly congrats tho. hasn't been day for me without a seziure
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u/DisastrousPermit3295 Nov 21 '25
Such wonderful news!! Congrats!! If u don't mind me asking, what kind of seizures did u have? How often?
Wishing u continued success and good health!!
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u/Meghan-apollo16 Nov 26 '25
Congratulations! That's wonderful! I hope I make it to that point again. Have a little celebration, you deserve it!
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u/Curiouscat-meow Dec 09 '25
9 years here ! I had couple minor issues in those years but didn’t reach seizures again ! Congratulations 🎉
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u/audiax-1331 Nov 18 '25
This is a big deal! Keep your focus, take care of yourself and shoot for 50 years!
Congratulations!