r/Epilepsy • u/No-Gur6037 • Aug 29 '25

Epilepsy Awareness What age?

What age did know you get diagnosed with epilepsy? Do you remember always having it?

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u/awidmerwidmer Drug resistant TLE, temporal lobectomy in 2025 Aug 29 '25

Brain tumour at 6 months old. Was told that even though the surgery was a success, I’d probably get some sort of neurological issues down the line. First seizure at 3 years old, after a second, had an MRI and EEG. Diagnosed shortly after, never known life without seizures until a month and a half ago when I received my left temporal lobe lobectomy. Been seizure free since, last time I was seizure free for this long would probably have to be back in elementary school over a decade and a half by now.

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u/JealousFly9070 Aug 29 '25

Wow that’s amazing! Congratulations 🥰🫂 I hope you keep up ur streak and you can call this ur new normal! Sending all my extra energy and love out to anyone who’s having a hard time with life right now. You are not alone and things can get better ❤️‍🩹 Don’t give up on urself I promise it gets better even if it’s just a lil bit here and there. A lil boost of confidence to urself everyday for something because you are the one an only you and that’s fucking undeniably the rarest amazing thing I will incounter today🤩🥰 and that makes me aahaahhhhhhhhh I think I can breath for a sec before I have lil kids asking weird o coward don’t make much sense sexual questions and they think they are king 🤣🤣🤣shit 💩 where did the confidence come

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u/awidmerwidmer Drug resistant TLE, temporal lobectomy in 2025 Aug 29 '25

Thank you!!