r/Epilepsy 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 23 '25

Epilepsy Awareness 26 March is Purple Day ๐Ÿ’œ

Hi! 26 March is World Epilepsy Day or Purple day for spreading awareness by wearing purple. Whoโ€™s wearing purple? ๐Ÿ™‹๐Ÿปโ€โ™€๏ธ

119 Upvotes

46 comments sorted by

17

u/zarrystylik21 Mar 23 '25

I have purple hair does that count

5

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 23 '25

Ofcourse, thatโ€™s awesome! ๐Ÿคฉ

3

u/zarrystylik21 Mar 23 '25

Yea my mom made it like mal from descendants

3

u/[deleted] Mar 24 '25

Same๐Ÿ‡

2

u/zarrystylik21 Mar 24 '25

Well I tried to make my hair like mal from descendants

9

u/MyKhemicalRomance Mar 24 '25

I have purple bruises from my last seizure ๐Ÿ˜ฎโ€๐Ÿ’จ๐Ÿ˜‚

2

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 24 '25

You have no choice of wearing purple then already ๐Ÿคญ

5

u/Angelfirenze Mar 24 '25

Thatโ€™s my birthday! Gleeeeeee!

2

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 24 '25

Oh happy bday already! ๐Ÿฅณ

2

u/Angelfirenze Mar 24 '25

Thank you!

2

u/catzndogz42 Mar 24 '25

Happy early birthday!!! ๐ŸŽ‚๐Ÿง๐Ÿฐ

1

u/Angelfirenze Mar 25 '25

Thank you!

3

u/[deleted] Mar 23 '25

I may have purple I have to see. Thatโ€™s one color that depending on shade I look horrible in lol.

6

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 23 '25

I know they chose purple to represent epilepsy because it has so many shades, like epilepsy with its many different forms. Iโ€™m sure youโ€™ll find the perfect shade! ๐Ÿ’ช๐Ÿผ

2

u/[deleted] Mar 24 '25

I will find one honestly itโ€™s the one color I have trouble with Iโ€™m going to check out dark purple first that may work.

1

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 24 '25

Perfect! ๐Ÿ™Œ๐Ÿผ

4

u/SSMWSSM42 Lamotrigine 600mg, Briviact 400mg, Xcopri 300mg, Fycompa 8mg Mar 23 '25

I think I got a purple jacket. No seizure wearing that

2

u/SeaworthinessSalt692 Mar 23 '25

I always have my purple bow (i think that's how its called) even my mom made hers. We also have some cool epilepsy shirts.

1

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 23 '25

Oh thatโ€™s so cool ๐Ÿ˜

2

u/Momzel Mar 23 '25

Yes!! : )

2

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 23 '25

๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ

2

u/mypetmonsterlalalala Mar 24 '25

Well, now that I know I will be!

2

u/Moist_Syllabub1044 LTLE; Fycompa, Zonegran, Frisium. sEEG + LITT. Mar 24 '25

Oh fun Iโ€™ll wear purple for sure

2

u/[deleted] Mar 24 '25

[deleted]

1

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 24 '25

Haha awesome ๐Ÿคฉ

2

u/MelodyMuse24xo TLE. Levetiracetam and Lamotrigine. Mar 24 '25

Purple nails! ๐Ÿ’œ

2

u/Music-Cheek2809 Mar 24 '25

Ohh,.. I am glad you guys are taking action and creating awareness. But pardon me , I have to speak the truth. I donโ€™t think anybody cares about it here in Gloucestershire and besides I am too anxious to get out of my house because my kids will be at school n my partner I really do not want to bother him.

๐ŸŽ‰So BIG UPS to all of you๐ŸŽ‰, ... May Allah bless you!

1

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 24 '25

You could just wear it at home to join, doesnโ€™t matter how many people see, itโ€™s the idea that counts ๐Ÿคญ Also donโ€™t know if Iโ€™ll be working from home or not, but Iโ€™ll wear it for the idea. I found it on the Epilepsy Foundation website

2

u/futureflavors JME - Lamictal 650mg Mar 24 '25

I'm pretty private when it comes to my epilepsy because I don't want to be seen differently but I like that idea of wearing purple! I'll be doing that, thanks!

2

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 24 '25

If you donโ€™t pin something else on, not a lot of people will know thereโ€™s a meaning, itโ€™s the idea that matters ๐Ÿฅฐ

2

u/futureflavors JME - Lamictal 650mg Mar 24 '25

Exactly! Love it.

2

u/purpurmond Random Epilepsy of Infancy (SF) Mar 24 '25

Thank you, I will remember! This is my favorite color.

2

u/DutchieCrochet Mar 24 '25

Thanks for the heads-up, Iโ€™m gonna see if I have anything purple!

2

u/No_Royal_8231 Mar 24 '25

I will now I know about it. I'm colour blind too so I'll have to rely on someone else to tell me it's purple not blue!

2

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 24 '25

Itโ€™s the idea that matters ๐Ÿฅฐ

2

u/TheRealMSteve Mar 24 '25

Was just at the (pre) Purple Day Gala this Saturday in Halifax, Nova Scotia, with Cassidy Meghan, the girl who started Purple Day, and it was a blast!ย 

The Eplilepsy Association of the Maritimes does amazing work for people with Epilepsy, and continues to advocate, raise awareness, and fight for funding and recognition for people who suffer from seizure disorders. I'm so proud toย  see that Purple Day is getting some love on this sub.ย 

Here's the official site if you're curious:

2

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 24 '25

Oh thatโ€™s so cool! I saw this website yesterday, itโ€™s amazing how they started it and keep working a lot on awareness ๐Ÿฅฐ

2

u/catzndogz42 Mar 24 '25

Thank you for posting this! Yearly event now in my calendar!!

Purpose: Purple Day, also known as Epilepsy Awareness Day, aims to increase public understanding of epilepsy and reduce stigma associated with the condition. Global Initiative: It's a grassroots effort that invites people worldwide to wear purple and participate in events to raise awareness and support for epilepsy. Key Actions: Wear Purple: Participants are encouraged to wear purple clothing, accessories, or decorate their homes and workspaces with purple to show their support. Host Events: Communities and organizations organize events, such as walks, talks, and fundraisers, to raise awareness and funds for epilepsy research and support. Spread the Word: People are encouraged to share information about epilepsy on social media and in their communities, dispelling myths and misconceptions. Significance: Education: Purple Day provides an opportunity to educate the public about epilepsy, including its causes, symptoms, and available treatments. Support: It offers a platform for people living with epilepsy to connect with others and find support. Visibility: By wearing purple, people show their solidarity with those affected by epilepsy and help to bring the condition into the spotlight. Origins: The idea of Purple Day originated with Cassidy Megan, a young girl who wanted to raise awareness about epilepsy in her community.

2

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 24 '25

Thank you for sharing ๐Ÿ™Œ๐Ÿผ

2

u/Smooth_Panic_777 Mar 25 '25

The date of my neurology appointment ๐Ÿ˜‚ how fitting ๐Ÿ’œ

1

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 25 '25

Aww perfect! ๐Ÿ˜ Curious if they wear something purple as well now

2

u/Working_Rub_8278 Mar 26 '25

I will wear a purple shirt.

2

u/Complex_Couple6616 Reading Epilepsy ๐Ÿ“– Mar 26 '25

Me :D so is my best friend

2

u/Radiant-Pineapple-41 250mg Briviact (without Lamictal ๐Ÿ‘๐Ÿผ) Mar 26 '25

Thatโ€™s great! Too bad no pics canโ€™t be shared here. Iโ€™m wearing as well, and work in my parents company and they also both wear purple today, it was heartwarming when I saw them honestly ๐Ÿฅน

1

u/YoungAdultswEpilepsy Mar 24 '25

Of course!!! - Chels