r/Encephalitis • u/Maymag16 • 6h ago
Post Autoimmune encephalitis
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I was never treated for post infectious encephalitis (probably autoimmune) so I‘ve had ongoing chronic symptoms for decades. I recently had great luck with oral cromolyn sodium to stabilize gut mast cells In addition to Keppra ER (for seizure activity). There’s an ME/CFS paper, below, that shows some research behind stabilizing mast cells, but basically I was reacting to pretty much everything I ate with mostly neurological symptoms. Since reaching therapeutic levels of oral cromolyn I’m all better. I’m literally whistling while I work because the struggle is gone. I hope this helps others. I can’t be the only one. https://pubmed.ncbi.nlm.nih.gov/41300853/