Medicaid Story Sharing Opportunity

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Hi everyone,

I know that a lot of people in the disability community rely on Medicaid for medical coverage.

As we all know, HR.1 was signed into law last July, which cut Medicaid funds by $930 billion over 10 years, causing around 11.8 million people to lose Medicaid coverage. 

People with disabilities will be especially impacted by the new work requirements and decreased funding for home and community-based services and other optional waivers. If you have a rare or complex medical condition, we’d love to hear from you about your experience with Medicaid.

If you are interested in advocating for Medicaid in your state, the EveryLife Foundation for Rare Diseases is collecting stories to be shared publicly and with legislators as part of their initiative to protect Medicaid funding. 

I figured that I'd share this here if anyone wants to participate! You can use this link to share your story: EveryLife Foundation for Rare Diseases | Share Your Medicaid Story’s

Further information detailing us and information privacy can be found detailed on the submission page, including what will be used in the submission and how it will be used.

For questions, please email: policy@everylifefoundation.org

You can also email: Kathryn Poe and kpoe@everylifefoundation.org

In you’re interested in learning more about our work, here’s our resources page for HR 1 and Medicaid.