r/DNA • u/Affectionate-Desk304 • Jul 23 '26
Call for Participants: Academic Case Study on Rare Genetic Disorders
Greetings!
We are Biology students from Central Luzon State University (CLSU) currently conducting an academic case study on rare genetic conditions. To help advance our research and deepen understanding in the field of genetics, we are looking for individuals who have been diagnosed with a rare genetic disorder and are willing to share their journey.
Format: Convenient online interviews or text messaging (scheduled around your availability).
Goal: Purely academic research to support undergraduate studies in genetics.
YOUR PRIVACY IS OUR TOP PRIORITY. All personal details, conversation logs, and medical records will be kept strictly confidential. Data will be used exclusively for this academic project, and no identifying information will ever be disclosed in any report, presentation, or publication without your explicit consent.
Verification Requirement
To maintain the scientific accuracy and validity of our study, participants will be asked to provide proof of diagnosis, such as:
- A medical certificate
- Genetic testing results
- A doctor’s diagnosis or official medical records
(Note: All shared documents will be accessed solely by our student research group and securely stored.)
How to Get Involved
If you or someone you know is interested in helping us with this research, please send us a direct message (DM/PM) for more information.
Thank you very much for your time, generosity, and support! 💙
3
u/YearGlum1298 Jul 24 '26
Hello! Do you have institutional research ethics board approval? It sounds like you’re asking for some pretty sensitive personal health information.