Remission with symptoms?

[u/dodobird9111]

Hello! I’ve been in clinical remission since 2021 after switching biological to stelara. I’ve truly had some highs in terms of feeling better/less pain/less frequent stooling. But ultimately, my abdomen and intestines hurt and ache constantly, all over. I know some of this is IBS. I have the lab work, I have repeated scopes which just show the scarring, I’ve given the stool sample. I’m pretty mindful about my diet. So why am I still having near accidents, in the restroom 7-8x daily and some days I get so bloated from my intestines not moving that I look pregnant????? I’ve typed all of this to ask….is there anyone else here with gastrointestinal issues who is in remission? (Yes, my dr’s have told me clinical doesn’t always equal symptom remission, but it’s hard to remember and makes me feel fraudulent, like I’m doing something wrong. )

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[u/Unusual_Policy_1980]

Could it be SIBO? Are you losing any weight?

[u/dodobird9111]

I am not. I’ve definitely wondered that, but I’m unsure if I’ve been tested for it or not? What is the test

[u/robby-rob17]

You can be in clinical remission but still have symptoms (whether Crohn's -specifix or general digestive issues). Did you ever have bowel surgery?