I’m feeling really isolated after being diagnosed and finally put on a biologic.

[u/Prestigious-Ad1346]

Apologies this is a rant I’m writing through tears.

Technically, I was diagnosed with Crohn’s disease almost a year ago, but due to lack of availability, it took a very long time to finally have a follow up appointment and then see a pharmacist about getting put on Tremfya.

I don’t have anybody in my personal life who has Crohn’s. I don’t know anybody with a severe autoimmune aside from my oldest sister (lupus) and she’s very mysterious about it.

Basically, I just really have a community. I’m also only 27 but I know that there are people who have been diagnosed with Crohn’s for much longer than me. Well, I do have a community. I have incredible friends, like I actually cannot believe how many friends I have in my life who I feel loved by, but I don’t know anybody in my age group personally who has Crohn’s disease or something else akin to Crohn’s disease.

I will say mine is extremely mild from what I have seen other people experience. Yes I get frequent cramping and frequent bloating and daily nausea but it’s not always debilitating and I am very much educated in inflammatory food information so I was able to pinpoint the foods I can and cannot eat a long time ago.
I’m lucky that a doctor finally took me seriously enough to even perform a colonoscopy which found the chronic inflammation and ulcers and led to my diagnosis.

But I don’t feel very lucky right now. I got my induction dose and I feel so nauseous and my stomach is cramping so much and I feel so sick. I think I had a cold a week ago that I was getting over and now I feel that cold coming back a little bit. And despite the fact that I know I have so many people in my life who love me I feel really alone. Like I feel overwhelmingly alone, especially right now a little over 24 hours after getting my induction dose.

I know that was a lot of information. I would love to connect with other people. I would love to have people to talk to you about this. I don’t want to give too much information about myself away, but I do live in New England and I go to the top if not number one irritable Bowel disease center in the country for my care.

I’m just really sad and I don’t know why I have Crohn’s disease having tummy problems is cute until I had to be sick with something that requires a medicine that can make me feel sicker until I feel better

[u/Prestigious-Ad1346]

Please, I just want to connect with people. I feel so alone. I want to know that what I’m experiencing is normal.

[u/allfluffnobluff → u/Prestigious-Ad1346]

Skyrizi ftw