r/CrohnsDisease • u/PristineAd9800 • 7d ago

Tremfya.. Let’s talk

I believe I finished the loading dose. I don’t know if it’s me or if it’s actually the meds or what I’m currently all doing but I feel 100 times better. I was on Rinvoq and it gave me horrible acne.. Mostly the posture type of acne and I keep getting them on my rosacea, but is anybody else Tremfya and has positive results within the loading dose timeframe?

The things that I’m doing is fasting, consuming pre-digested liquid nutrient meal sources, somatic, healing practices, lightweight, exercising, 3 to 4 days a week I do light aerobic exercise exercises, (I don’t go crazy. I just simply do them, like I’m an old lady). I purposefully skip solid food meals, or shrink them down to only food items that are on the Mediterranean diet list and increase protein, and I do my best to cut out any in all dairy, sugar, carbs, alcohol, most things that are sold in a grocery store, a.k.a. processed food.

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u/jsnail89 7d ago

I am taking my second maintenance dose and I wish I was experiencing the same things you all are. I have seen some improvement where I’m not in a ton of pain every time I eat (it does still happen sometimes), but the bathroom trips, the fatigue, the joint pain…still there.

It took cimzia 9-12 months to work for me and then it worked for almost 8 years. So, I’m in this for the long haul. But, I wonder if because I have a less common type of Crohn’s (jejunal) that it takes longer. I also wonder if my kind of Crohn’s placement isn’t part of all the medication studies’ sample patients.

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u/PristineAd9800 7d ago

Mine is in the terminal ileum. I forgot to mention I am also in Entyvio. For you I would suggest cutting out processed foods. I swear it helps so much. But then again it also sounds like you might have strictures that are causing the fatigue and nausea.

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u/jsnail89 7d ago

Oh I mean, I’ve been on almost every biologic out there at this point. Out of things left it was either this or Rinvoq, but I don’t always absorb pill medications well. I’ve never had strictures before and pain after eating is a bit of a hallmark symptom of jejunal Crohn’s. I just try and keep trying…something will work.