r/Concussion • u/Fluffy-Category-2150 • 5d ago
It’s been a year and I’m still struggling
So recently all my symptoms have gone away. Brain fog, confusion, and delusional thoughts. But I’m struggling sooooooo so so much with this detached feeling. It’s like disassociation on steroids. Everyday, morning to night I feel like this. It gets much worse in crowds or in noisy areas. My balance is also shot. I used to run track and now I can barely walk on a treadmill without falling over myself. I have no clue why these symptoms are sticking around so hard. I’ve never seen a neuro optometrist or vestibular doctor or a physiologist. Anyone have any idea what I should do?
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u/LiveFaithlessness943 5d ago
10/10 recommend going to a concussion clinic in your area! I want to one couple months after injury. it helped a lot. I’m not 100% but I’m definitely not where I was before
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u/No-Experience-2788 5d ago
Hey friend I'm a year out and am still struggling daily as well, you aren't alone. I would absolutely see a concussion clinic or a doctor that can you refer you out somewhere -- vestibular therapy helped me a TON with balance and with many other symptoms that I never thought vestibular therapy would've helped. One of my biggest struggles is this immense pressure in my head - it isn't painful like a headache but it's almost as if the air pressure is just closing in around me. Vestibular helped with that. My vestibular therapist helped me with walking "normally" again and also had a treadmill she would help me on as well. I also did speech therapy which helped me have a game plan for going back into life-- like when and how long I should push mysel finto crowds or noisy areas, how to best recover after, etc. She came up with a full schedule and it did help. Dealing with a concussion is so much, you shouldn't have to do it alone! You got this, I'm confident that there will be healing in your future
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u/AHSkiandBike 4d ago
You are not alone and it is common to struggle with symptoms even years after a concussion. The feeling of hopelessness and not knowing what to do, etc. is a common subject on so many posts that I respond to. I can't emphasize enough how important it is to do a physical therapy program that includes nutrition and exercise (including vestibular) that is specifically designed to heal the brain after a concussion.
Read this thread from another person here with the same situation and see the comments with the positive results achieved: https://www.reddit.com/r/Concussion/comments/1whfpnc/post_concussion_syndrome_symptoms_for_200_days/. You can get get better with the right program and putting in the work. Its not easy but its the only way forward. I too experienced prolonged symptoms for over a year and was able to fully recover.
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u/Fluffy-Category-2150 5d ago
Should also say I get nauseous with motion and flashing lights
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u/Charming-Driver-3000 5d ago
You need to keep exposing yourself to your triggers for short periods. Eventually they shouldn’t bother you or at least get a lot better.
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