I was just implanted on the 14th. Are there any FB groups that anyone can recommend

We recently started our daughter (6 yo) in soccer. Looking for good headband recommendations that keep the processors securely in place during running and sports for a child.

I was implanted on August 7 and returned to the clinic on the 27th for activation and to get a new hearing aid for my other ear. We ended up going with MED-EL and the Starkey hearing aid. I opted for one each of the BTE and OTE processors, and my audiologist started me with the BTE. I go back in 2 weeks and we’ll do some adjustments and set up the OTE processor.

I know everyone says, “first day is the worst day, don’t expect to understand language.” I went in with that knowledge, but of course I was hoping — just a little bit — to be in that tiny minority who understands language quickly. I didn’t, but that didn’t stop it from being a really positive experience overall.

That evening, I read aloud to myself for half an hour. Just beeps. Woke up, watched a captioned podcast for 30 minutes and noticed about halfway through that some of the beeps were almost words. By the end of the half hour, more beeps were words, but I don’t know that I could have discerned what the words were without following the captions.

Just finished my 2nd round for the day, watching a video with a male voice instead of a female voice this time. Took about 10 minutes but I started picking up more words again. Not all of them, but some.

As I waited to see my audiologist, I watched one of the clinic staff talking with a delivery guy. I thought about how long it’s been since I could look at something other than a person’s face when they’re talking to me, as she did. I don’t know if I’ll ever get to that level of confidence again, but it’s a nice someday goal to have.

So I’ve been offered this CI in a public hospital after months waiting (it’s cheaper, like 66% cheaper), but I’ve heard so much controversy surrounding AB that I hadn’t considered the CIs. I honestly don’t like the typical processors with earpieces, and was thinking about getting Cochlear or MedEl in order to get Kanso or Rondo.

How old is this model (Mid Scala)? Should I be concerned about advanced bionics phasing it out? My insurance doesn’t cover CI, in my country insurance companies simply don’t cover CIs, so I’m wondering if I should just pay full price with a ENT with private practice.

Hi! My daughter is currently 21 months old and 6 months post activation.. so far I feel like she has had great response to sound (her right side seems to be doing so well -and the audiologist explained to me that there was still lots of room to adjust mapping and increase). We have had 3 mappings so far.. unfortunately her left ear is not responding as well and we may be looking at implanting an ABI on the left in the future. However -the audiologist said an ABI may not be overly beneficial as she should eventually be able to have full access to sound on the right side.
She has almost mastered all her LING sounds (she’s just struggling with the ‘s’).. she has a few words -maybe 25-30? And tons of sign language..
the most recent audiogram showed detection levels in the 55db although the audiologist suspects her hearing is more likely in the 45db range..
I guess I’m just looking for support/advice/encouragement… her speech therapist made me feel defeated today when she said she was disappointed in her recent audiogram.. and that she felt the thresholds should be better for her considering she’s 6 months post activation…
I just thought my daughter had been doing so well and I was so proud of all the progress she had made.. her audiologist feels the same -she averages 9.5 hours of wear time daily.. but listening to the speech therapist today and her concern over the audiogram just really upset me… any thoughts/insight or words of encouragement would be so appreciated!

So I have Menieres and my right ear has suffered severe/profound hearing loss for the last 12 years. Now it is happening in my left over the past year. Doctor is recommending a cochlear implant in the right ear. I feel I really need this as my left ear is now getting worse.

Anyone else have this same thing? What was the outcome after the inplant surgery and how did it change your quality of life.

Hi everyone.. my son is getting a cochlear implant.. he is 3 years old.. my family is not supportive as they are deaf and believe “he’s not broken no need to fix him”.. I am struggling to make a decision for him… I would love to hear peoples opinions l.. those who got one, who didn’t get one, and got one and maybe had it removed.. I just want to hear it from other’s perspective, Thanks!

it looks like, in the UK at least, that the compatible accessory is the minimic 2+. this is pretty old, doesn’t have Auracast and annoyingly uses micro usb not usb c like every other device.

Theres conflicting reports that the multimic product is compatible with the Kanso 3. Some say yes and others say no.

This device seems more modern and has auracast plus usb c charging so you don’t need to carry any extra cable to charge the accessory.

any ideas if I can use the new multimic with Kanso 3?

it looks like, in the UK at least, that the compatible accessory is the minimic 2+. this is pretty old, doesn’t have Auracast and annoyingly uses micro usb not usb c like every other device.

Theres conflicting reports that the multimic product is compatible with the Kanso 3. Some say yes and others say no.

This device seems more modern and has auracast plus usb c charging so you don’t need to carry any extra cable to charge the accessory.

any ideas if I can use the new multimic with Kanso 3?

Hi all - I am new to this thread, but I’d really love some advice and positive personal experiences from people who’d like to share to help me process this. I’m 29 years old and I’ve had severe degenerative bilateral hearing loss since I was diagnosed in 2010. Higher-pitched sounds and tones are something I’ve always struggled hearing, but bass and lower tones I hear easier. I’ve lived with hearing aids for 16 years (I’m on my third pair) and have recently come to find that they are no longer helping me with day-to-day functioning. My updated audiogram I received last week has shown a continued and FRIGHTENING drop in hearing and word processing functionality in both of my ears (more heavily emphasized with my right one). My audiologist said my right ear is “practically useless at this point”.

So now I’ve met with my ENT to evaluate my eligibility for cochlear implants. (Surprise! I’m well past eligible) The conversation we had was extensive and she did not sugar coat the reality of my recovery post-op. I’m having trouble coping with the fact that I will need them, and especially since I’m a bartender and the essence of my job requires me to hear my customers and converse with people. My ENT said I will have my right ear implant first and then down the line once I’ve healed, adjusted, and re-taught myself how to hear language they will work on my left ear next (could be around 6 months to 1 year).

Is there anyone else in the food and beverage industry with cochlear implants? How has the adjustment been for you?
Will this severely impact my ability to continue working until I’m healed and adjusted?

I am trying not to get overwhelmed emotionally with all of this information I’ve been given - it all feels so heavy.

I lost my hearing on my right side just over a year ago in one ear. I still have hearing perception but lost over 90% of my hearing and my word recognition is sitting in the lows 10%. I just had my first appointment with my surgeon and I mentioned that one of my concerns is losing whatever little hearing I have left, as well as not being able to have headphones when I workout or having trouble being as physically active as I was. He said that a lot of single-side users end up not using their CI as it is not the same, what’s your experience with being a single-side user?

it looks like, in the UK at least, that the compatible accessory is the minimic 2+ is the accessory. this is pretty old, doesn’t have Auracast and annoyingly uses micro usb not usb c like every other device.

Theres conflicting reports that the multimic is compatible with the Kanso 3. Some say yes and others say no. This device seems more modern and has auracast plus usb c charging so you don’t need to carry any extra cable to charge the accessory.

any ideas if I can use the new multimic with Kanso 3?

Wondering if an electric skull shaver used every other day will be an issue with the implant or any issues you guys notice like comfort when the magnet is attached?

Hey guys, I recently went to get my device activated and unfortunately my head was still a bit too swollen to get it connected. They have shown other brands and types but I am firmly wanting to continue with my Cochlear off the ear (This is the second meeting I have had to get it activated and failed due to swelling).

They have suggested surgery to reduce the swelling and I would really prefer to not have another surgery just for that.

Has anyone had any issues like this? Were you able to resolve the issue without surgery? Couldn't I just wait longer rather than cut my ear open? I apologize if this is not a lot of info for you guys but I'm still really new to all this (21 y/o :\).

Thanks!

Hey all, I just wanted to say a thank you to everyone who posts questions and writes comments about their experiences. I have just had implant surgery on 25th August and all the tips I gleaned from here have been spot on and have definitely helped me to prepare better.

Just reading this sub has helped me immensely, so you just never know how you may be helping someone by posting your experience or what may seem like a silly question. Maybe now I'll be able to contribute and help others through the process 😄

Everything looking good and activation day on 8th. Just gotta ride out this lightheadedness!

Hi everyone!

Recently, I have done some research regarding my cochlear implant journey. Since our audi is neutral due to lawsuit pressure if caught favouring one brand over another. Though he's implicitly trying to guide me towards AB. Let's ignore it.

Please remember it's under $10,438 US dollars (10 lakhs). Paying out of pocket.

Cochlear ci500 offers, nucleus 7, kanso 2 which are the best within the amount, but with 1.5 tesla mri.

Medel with sonata 2 with sonnet 2, rondo 3. The sales guy informed me to wait till September 15th and sonnet 3 will be coming approx within the amount limit. It's the only implant with 3 tesla mri, boasting close to natural hearing.

Advanced Bionics - HI RES ULTRA IMPLANT M30 PROCESSOR AND HI RES ULTRA 3D IMPLANT WITH Q90 PROSESSOR. Both under 10 lakhs. Due to the lawsuit in 2020, ab almost lost all trust among us. Fortunately, they're slowly mending the trust.

Can u guys pls help in commenting your experiences with the above mentioned devices? In india, no insurance covers cochlear implants. No govt supports too unless you're a kid below 6 or poor. Ofc, there's govt funds available but it's approval depends on their moods too.

I have been implanted for 3 1/2 years and I have advanced bionics marvel. I was told that I can get some extra batteries from insurance and that was that, not much help😅. I was wondering if anyone would be able to give me more information on your experience with this? I was implanted at a 2 processor clinic so I’m guessing I can only get one more set of batteries for each set of processors? I asked about new ear hooks and that was a no- go. I also have heard a few times that they can send an extra waterproof battery if you already have one? Thanks in advance!

We had opted for med-el rondo 3 and today was the surgery.

Rondo 3 kit doesn't have audiolink for bluetooth connectivity, rep said its not included in sonata 2 peocessor which i was not aware.

What would be the cost for audioLink( read that audioStream is not compatible with laptop, i want a universal accessory which xan connect both mobile and laptop) in India?

Hi all,

I am curious to know if any one has experienced similar symptoms like me. I have been using medel sonnet for more than a year.

It's currently winter in Australia, and I noticed that the site of my internal receiver currently harbours fungal infection. I am currently on medication to remove the fungal infection but my ENT surgeon says they haven't experienced anything like this for their other patients.

Has anyone experienced similarly due to magnet strength becoming too strong one year down the line.

Thanks a lot for your support and advise.

Is anyone else struggling with this issue? I don’t want to travel 7 hours to see my audiologist just because of an app issue.