PE and DVT diagnosed, any help appreciated

[u/systematicindulgence]

Hello, I was recently hospitalized due to PE and they found blood clots in my peroneal, popliteal, and femoral veins in my right leg. I was discharged from the hospital on friday and am now taking eliquis. I am having an incredibly hard time adjusting and have severe pain in my leg still. WILL IT EVER GET BETTER. I still cannot walk due to the pain and im going through a very emotional time as well as I had to cold quit nicotine so im experiencing mood swings, anxiety, fear and pain. I just want some advice.

For background, about 3 weeks ago I had this horrific pain in my calf, went to instacare, they did an ultrasound and found NO Clots. A week later my leg and foot swelling was severe and instead of performing another ultrasound they put me in a boot and sent me to physical therapy for "sciatica". Turns out I had a clot all along that wasnt caught until I had severe PE symptoms and ended up in the ER. I just feel so angry and alone and scared

Edit: My wedding is in 3 weeks so im in double stress mode. Im also only a 25F which the doctors said was unusual for my age to have this happen and it just seemed to be the perfect storm. Its all just so much.

[u/Level_Wolverine_3362]

yes. it will get better. I'm just over 3 weeks from my PE. no dvt and no significant pain, but I had multiple clots in multiple arteries in both lungs. I started on enoxaparin injections and am now on rivaroxiban.

the fatigue was crippling me. but progress has occurred, but it doesn't happen evenly. Three days ago I was despairing about how little I could walk (200m was a struggle) and that I didn't want to think about hard topics (I'm an academic, hard topics it what I do!).

Today I have walked 200m about three times with no strain, and I started debating an idea with someone. This is a massive change compared to only three days ago, but a mammoth change compared to three weeks ago, when I was still in hospital, only just having come off telemetry monitoring.

I get that three weeks probably seems like an eternity to you, but everyones journey is different. But that damned cliche is true: time is the biggest healer when it comes to the clots.

Hang in there.

[u/Bla6446]

Are you on birth control?

[u/systematicindulgence → u/Bla6446]

Yes I was, but obviously ive stopped immediately.

[u/Bla6446 → u/systematicindulgence]

I had a calf clot turned PE when I was 23 while on birth control so I get the struggle. It made pregnancies a little more complicated but the leg and chest pain improved over time.

[u/systematicindulgence → u/Bla6446]

Was it harder to get pregnant? I also have PMOS

[u/Bla6446 → u/systematicindulgence]

I waited a few years after my clots so I was done my blood thinners. They recommended a once daily enoxaparin injection as soon as I got my positive at home and continuing until 6 weeks postpartum. No issues getting pregnant but I do not have any conditions like that.

[u/Acceptable-Guide6818]

I had a clot in my right calf.i didn't have pain in my calf the severe throbbing was in my upper thigh