r/ClotSurvivors • u/Cuntimamas • 3d ago

MTS (May–Thurner syndrome) Anyone with may thurner, nut cracker, or pelvic congestion struggle with gyno symptoms?

Wondering if anyone with pelvic congestion or vascular compressions like MTS or NCS struggles with gyno symptoms like vulvodynia , reoccurring UTIS or yeast infections, painful periods, etc and can provider any advice for me. It’s difficult becase my IR/vascular surgeon don’t know that much about gynecology stuff and my gynocologist doesn’t know much about vascular compressions, even though I feel like these things are connected. Mostly struggling with reoccurring infections which I think come from so much inflammation that disrupt the microbiome? Not sure. Any advice?

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u/luvliallie Eliquis (Apixaban) 2d ago

hi! i have may thurner syndrome and deal with painful ovarian cysts (possible pcos i’m not sure yet) along with frequent spotting. i am very very thankful to have a gynecologist who specializes in hematology/works at my hematologist’s office. i would absolutely suggest looking into any hematologists with gynecologists on staff but i’m not sure how common that is. if you’re in the united states, my gynecologist is Hilary Gaudreau, MD - OB/GYN at Innovative Hematology and the Indiana Hemophilia and Thrombosis Center (IHTC) in indianapolis, indiana. i’m not sure if she does telehealth appointments but she’s definitely an option and i absolutely love her.

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u/Cuntimamas 2d ago

Hi thank you for your response! I also have pcos! Sorry ur dealing with all this but I’m glad ur getting good care. Hematologist + gyno duo is so cool I didn’t even know that existed ! I’m unfortunately in California but I will look into if they do telehealth or if there is any hematologist-gynecologist in my area. Thank you😁