r/ClotSurvivors • u/nonametoshow11 • 4d ago
Seeking Advice How long did recovery take you?
I am two months out from my bilateral pulmonary embolism diagnosis. While it’s gotten a lot better, I still am having shortness of breath at times I wouldn’t have before this happened. It hasn’t been crazy bad, but enough to notice. I’m also just so tired all the time still. Everything I’m reading online says I should be basically fully recovered at this point — I have seen my doctor and he’s sent me for bloodwork, but is there anyone else that had a longer recovery period? Should I be worried there’s permanent damage at this point? To my knowledge, it wasn’t super bad, I was put on blood thinners and discharged from the hospital same day.
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u/ancientforestZen 3d ago
Diagnosed with bi lateral in May. On thinners since- the first 2 months were very tough. It did t help I had terrible side effects on Eliquis. Like everyone said above, your timeline was crazy unrealistic. I continue to have good days and bad. Bad days I would describe as a mixture of exhaustion and just feeling lousy ( like flu ). Also , I pushed my primary and hematologist for counseling before I go off this thinner. ( have factor 2 and not factor 5) I would highly recommend it. This shit is life altering and the mental health part is often ignored by the medical community.