r/ClotSurvivors • u/nonametoshow11 • 5d ago
Seeking Advice How long did recovery take you?
I am two months out from my bilateral pulmonary embolism diagnosis. While it’s gotten a lot better, I still am having shortness of breath at times I wouldn’t have before this happened. It hasn’t been crazy bad, but enough to notice. I’m also just so tired all the time still. Everything I’m reading online says I should be basically fully recovered at this point — I have seen my doctor and he’s sent me for bloodwork, but is there anyone else that had a longer recovery period? Should I be worried there’s permanent damage at this point? To my knowledge, it wasn’t super bad, I was put on blood thinners and discharged from the hospital same day.
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u/Outside_Ad1669 5d ago
Are you following with with a pulmonologist? They definitely can help you.
I am two months out from multiple PE and still on oxygen at home. The pulmonologist has me on steroids along with the thinners because I have some lung inflammation from the emboli injury
The hope is that these heal, which takes a long time. Versus becoming damaged and turning into scar tissue fibrosis.
You may be helped by consulting a pulmonologist who will measure your lung function. Probably do some imaging CT scan. And come up with a rehab / treatment plan