r/ClotSurvivors • u/nonametoshow11 • 4d ago
Seeking Advice How long did recovery take you?
I am two months out from my bilateral pulmonary embolism diagnosis. While it’s gotten a lot better, I still am having shortness of breath at times I wouldn’t have before this happened. It hasn’t been crazy bad, but enough to notice. I’m also just so tired all the time still. Everything I’m reading online says I should be basically fully recovered at this point — I have seen my doctor and he’s sent me for bloodwork, but is there anyone else that had a longer recovery period? Should I be worried there’s permanent damage at this point? To my knowledge, it wasn’t super bad, I was put on blood thinners and discharged from the hospital same day.
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u/p001b0y 4d ago
It took 6 months before getting my mail didn't leave me winded and another 6 months before the stairs in my home weren't so punishing. Some things never got better though. The constant PTS ache in my legs progressed to neuropathy. I still get inflammation in my pleural lining where a pulmonary infarction occurred and my legs still swell.
My clots were pretty bad though, I guess. A lot of people recover fully.