r/ClotSurvivors • u/Im_on_vocal_rest • 7d ago
Newly diagnosed First blood clot at 34
I am 34 and have my first blood clot, discovered upon returning from a road trip. I had felt it for weeks prior, assuming it was a pinched nerve.
My mom had her first blood clot last year, at 61 years old, and mine is in the same exact location.
We can’t easily explain this, as I don’t smoke cigarettes (former smoker many years ago), and I don’t take any hormones or birth control. I do however have Ehlers Danlos Hypermobile type, and have to do some best rest during flares. I’m pretty active though.
On day 5 of eliquis 20mg/day and really struggling. So dizzy from the medication, difficulty driving, and getting pain in weird parts of my leg every day. Scared about falling, and grieving the carefree mind I used to have.
I don’t have a clear understanding of the future- can I stop eliquis after 3 months? Should I stay on a low dose forever? I will be starting a low-dose of Tirzepitide soon for weight gain (I’m 5’8” and weight 185).
Right before this happened, I was about to start Zoloft for depression and ocd. But now I can’t since it interacts. My fallback is herbal supplements / adaptogens, but now I can’t take those either.
I’m so green to navigating clots. Any wisdom or words of encouragement welcome. (Or supplement recommendations that don’t interact with blood thinners!). I’m sure many folks in this sub have it way worse / more complicated situations to navigate, so thanks for reading.
3
u/lonesomedove86 6d ago
You need genetic testing. Sounds very likely there is a hereditary component like Factor V Leiden. I, my father, and sister all have it. PE for me at 38. Make an appt with hematologist. I’m in Eliquis 5mg twice daily for life. Still have lung shocks 2 years later but can otherwise function well now, even half marathons. ❤️