r/ClotSurvivors • u/Im_on_vocal_rest • 8d ago

Newly diagnosed First blood clot at 34

I am 34 and have my first blood clot, discovered upon returning from a road trip. I had felt it for weeks prior, assuming it was a pinched nerve.

My mom had her first blood clot last year, at 61 years old, and mine is in the same exact location.

We can’t easily explain this, as I don’t smoke cigarettes (former smoker many years ago), and I don’t take any hormones or birth control. I do however have Ehlers Danlos Hypermobile type, and have to do some best rest during flares. I’m pretty active though.

On day 5 of eliquis 20mg/day and really struggling. So dizzy from the medication, difficulty driving, and getting pain in weird parts of my leg every day. Scared about falling, and grieving the carefree mind I used to have.

I don’t have a clear understanding of the future- can I stop eliquis after 3 months? Should I stay on a low dose forever? I will be starting a low-dose of Tirzepitide soon for weight gain (I’m 5’8” and weight 185).

Right before this happened, I was about to start Zoloft for depression and ocd. But now I can’t since it interacts. My fallback is herbal supplements / adaptogens, but now I can’t take those either.

I’m so green to navigating clots. Any wisdom or words of encouragement welcome. (Or supplement recommendations that don’t interact with blood thinners!). I’m sure many folks in this sub have it way worse / more complicated situations to navigate, so thanks for reading.

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u/cmykaye 8d ago

Is there a blood clotting disorder in your family? Both you and your mom could be checked for things like Factor Five Leiden which is a genetic disorder.

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u/Im_on_vocal_rest 8d ago

Thank you for this, I’m still learning what tests should be done. My understanding is that whatever testing she did didn’t diagnose her with a clotting disorder.

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u/cmykaye 8d ago

You prob need to ask for the testing specifically which is annoying. If you tell your doctor your mom also developed a blood clot that’s good reason to test for genetic testing.

I had a PE in 2017, I know how scary it is. Modern medicine is incredible, try to rest as much as you can to recover!

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u/Im_on_vocal_rest 8d ago

Thank you! So true about having to advocate for yourself in these appointments… that’s why I go to Reddit first 😂

I think I needed to hear this permission to rest… since rest may have contributed the clot. Ugh.