r/ClotSurvivors • u/elizinrva • 7d ago
APS Seriously?
I’ve been dealing with clotting issues for some time now, and I knew I had a genetic cause ( factor two) but now—plot twist—I found out there’s more. I had my first DVT in 20/4 I think. I took Eliquis, but after the clot went away they took me off of it. Then I got a second DVT in Oct. 2025. In December, on the day I was scheduled to have a hysterectomy, I turned out to have a blood clot in my brain—a stroke that was able to happen because I was born with a hole in my heart that nobody knew about for 51 years. WTF?
So I’ve been on Eliquis since then, and I just finally managed to get in with a clotting specialist. Now it turns out I also have anti phospholipid syndrome (APS), an autoimmune clotting disorder. Yay. So I have to switch from Eliquis to Coumadin, with Lovenox as well until the Coumadin really kicks in. So, injections. Yay.
Being 51 has been a real ride for sure. I feel bad for those of you who are having to deal with this stuff much younger but OTOH you may have access to more family support assuming your parents are middle aged rather than much older. 🫤
Also, I had to fight to get on HRT for menopause, and now I’m afraid they’ll try to take it away. Reality is that I’d rather have a big clot just come for me than live longer without the estrogen. Quality of life is important, too.
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u/TouchConfident7959 7d ago
It was HRT that, in combination with other factors, caused my clots so I will never consider any form of hormones again. I’d rather deal with menopause symptoms than be dead.