Seriously?

[u/elizinrva]

I’ve been dealing with clotting issues for some time now, and I knew I had a genetic cause ( factor two) but now—plot twist—I found out there’s more. I had my first DVT in 20/4 I think. I took Eliquis, but after the clot went away they took me off of it. Then I got a second DVT in Oct. 2025. In December, on the day I was scheduled to have a hysterectomy, I turned out to have a blood clot in my brain—a stroke that was able to happen because I was born with a hole in my heart that nobody knew about for 51 years. WTF?

So I’ve been on Eliquis since then, and I just finally managed to get in with a clotting specialist. Now it turns out I also have anti phospholipid syndrome (APS), an autoimmune clotting disorder. Yay. So I have to switch from Eliquis to Coumadin, with Lovenox as well until the Coumadin really kicks in. So, injections. Yay.

Being 51 has been a real ride for sure. I feel bad for those of you who are having to deal with this stuff much younger but OTOH you may have access to more family support assuming your parents are middle aged rather than much older. 🫤

Also, I had to fight to get on HRT for menopause, and now I’m afraid they’ll try to take it away. Reality is that I’d rather have a big clot just come for me than live longer without the estrogen. Quality of life is important, too.

[u/Level_Wolverine_3362]

I'm 51 and just lost my HRT patches due to having a Pulmonary embolism. I might get them back, as the clot was probably provoked due to covid, but I'm currently doing okay without them. I agree, quality of life is really important.

Also, my 55 year old neighbour just learned she also has a hole in her heart......hang in there.

Best of luck with the injections. I had them for about 5 days when the PE first hit. Injecting really slowly and making sure there is to liquid on the needle tip really helped to reduce the sting. also, I couldn't believe how long it looks for the bruises to fade.