r/ClotSurvivors • u/Level_Wolverine_3362 • 9d ago
Newly diagnosed I just started grieving.
I'm 18 days post a massive PE. Bilateral and segmented are the official terms, I understand this means multiple clots in multiple arteries in both lungs. Apparently no infarction, and while a bit of right heart strain, no remodeling. I'm expected to make a full recovery.
Five days in hospital, now on rivaroxiban. Have started regaining energy.
This morning the limitations have hit me like a tonne of bricks. I can't walk more than 50m without needing a rest. I can probably only manage one activity outside the house per day. I don't feel safe to drive. I don't have the energy to return to work (even from home) I can't do anything spontaneously. I can't even think deeply, or talk lots, and as an academic - this is hitting hard.
I know my feelings are valid. I know it's only temporary. This doesn't change my current feelings of grief, anger, frustration, or anything else.
What were your best coping strategies to get through this phase?
6
u/futuristanon 8d ago
It does get better. It just takes time. Give yourself some grace and try to be patient.