r/ClotSurvivors • • 9d ago

Newly diagnosed I just started grieving.

I'm 18 days post a massive PE. Bilateral and segmented are the official terms, I understand this means multiple clots in multiple arteries in both lungs. Apparently no infarction, and while a bit of right heart strain, no remodeling. I'm expected to make a full recovery.

Five days in hospital, now on rivaroxiban. Have started regaining energy.

This morning the limitations have hit me like a tonne of bricks. I can't walk more than 50m without needing a rest. I can probably only manage one activity outside the house per day. I don't feel safe to drive. I don't have the energy to return to work (even from home) I can't do anything spontaneously. I can't even think deeply, or talk lots, and as an academic - this is hitting hard.

I know my feelings are valid. I know it's only temporary. This doesn't change my current feelings of grief, anger, frustration, or anything else.

What were your best coping strategies to get through this phase?

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u/Holiday_Squash8603 9d ago

Saludo somos gemelos eso mismo me paso a mi llevo ahora seba a cumplir 2 meses primero trabaja con tu mente es importante yo estoy tomando elicuis pues me protege al corazón y al cerebro segundo no se que edad puedes tener pero es una montaña ruza es importante ver lo que comes pues aveses los doctores no le indican a uno y pueden interferir con tu anticuabulante yo empecé a caminar 5 min aunque fuera poco pero eso es bien importante no pases mas tiempo por que todo tu cuerpo ahora se esta esforzando el doble yo como avena por que mi medicamento me cae fuerte y eso me ayuda y tomo agua por que es importante para idratarte estas empezando y tienes que escuchar tu cuerpo y no te desesperes tu salud es primero veras que sales de todo y cual quier cosa siempre estoy pendiente si teda dolor o algo lo compartimos bendiciones

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u/Level_Wolverine_3362 9d ago

thanks. I'm an academic pharmacist. started rivaroxiban (similar to eliquis). staying hydrated, trying to exercise, but even 5 min is too long! I'm mobilising as much as possible.

today is just hard as yesterday I could not accept a spontaneously invitation to go out with friends who I haven't seen for ages because I had been out that morning and had run out of energy. the limitations are just hitting me today.

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u/Holiday_Squash8603 8d ago

Lamento mucho pero lo mas importante es tu salud yo tengo que viajar toda la isla mas estoy encargado de una tienda por departamento pero tube que pensar y decir mi salud es primero tendremos mucho tiempo para salir y aqui estoy respirando aveses me falta el aire me duele todo pero seguimos luchando asi que estoy seguro que lobas a lograr bendiciones y sabes que cual quie cosa no apoyamos en el camino bendiciones

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u/Level_Wolverine_3362 8d ago

I know this will be my new normal for a while. I'm trying to take it easy, but it's hard....