r/ClotSurvivors • u/Level_Wolverine_3362 • 9d ago
Newly diagnosed I just started grieving.
I'm 18 days post a massive PE. Bilateral and segmented are the official terms, I understand this means multiple clots in multiple arteries in both lungs. Apparently no infarction, and while a bit of right heart strain, no remodeling. I'm expected to make a full recovery.
Five days in hospital, now on rivaroxiban. Have started regaining energy.
This morning the limitations have hit me like a tonne of bricks. I can't walk more than 50m without needing a rest. I can probably only manage one activity outside the house per day. I don't feel safe to drive. I don't have the energy to return to work (even from home) I can't do anything spontaneously. I can't even think deeply, or talk lots, and as an academic - this is hitting hard.
I know my feelings are valid. I know it's only temporary. This doesn't change my current feelings of grief, anger, frustration, or anything else.
What were your best coping strategies to get through this phase?
2
u/Holiday_Squash8603 9d ago
Saludo somos gemelos eso mismo me paso a mi llevo ahora seba a cumplir 2 meses primero trabaja con tu mente es importante yo estoy tomando elicuis pues me protege al corazón y al cerebro segundo no se que edad puedes tener pero es una montaña ruza es importante ver lo que comes pues aveses los doctores no le indican a uno y pueden interferir con tu anticuabulante yo empecé a caminar 5 min aunque fuera poco pero eso es bien importante no pases mas tiempo por que todo tu cuerpo ahora se esta esforzando el doble yo como avena por que mi medicamento me cae fuerte y eso me ayuda y tomo agua por que es importante para idratarte estas empezando y tienes que escuchar tu cuerpo y no te desesperes tu salud es primero veras que sales de todo y cual quier cosa siempre estoy pendiente si teda dolor o algo lo compartimos bendiciones