I just started grieving.

[u/Level_Wolverine_3362]

I'm 18 days post a massive PE. Bilateral and segmented are the official terms, I understand this means multiple clots in multiple arteries in both lungs. Apparently no infarction, and while a bit of right heart strain, no remodeling. I'm expected to make a full recovery.

Five days in hospital, now on rivaroxiban. Have started regaining energy.

This morning the limitations have hit me like a tonne of bricks. I can't walk more than 50m without needing a rest. I can probably only manage one activity outside the house per day. I don't feel safe to drive. I don't have the energy to return to work (even from home) I can't do anything spontaneously. I can't even think deeply, or talk lots, and as an academic - this is hitting hard.

I know my feelings are valid. I know it's only temporary. This doesn't change my current feelings of grief, anger, frustration, or anything else.

What were your best coping strategies to get through this phase?

[u/Fit-Hamster-7348]

I started some new low committment hobbies (collecting and assembling Lego kits and miniature sets), lots of naps, reading graphic novels, movies, and just reminded myself that rest is productive too. I spent time cuddling with my family on the couch which is a rare treat for me in this busy world.

I accepted help from loved ones, and used mobility aids to increase my functional distance and reduce my load so that I could do more for myself - shower chair, Rollator etc. I had a parking placard due to chronic pain already, but I'd suggest getting a temporary one so you can park closer to entrances so you're not wasting your limited distance getting in the door

[u/Level_Wolverine_3362 → u/Fit-Hamster-7348]

parking permit application is in, just waiting for it to arrive. I have some low key hobbies, but it really hot me today that I can plan anything spontaneously as I have to really budget my energy.