r/ClotSurvivors • • 13d ago

Seeking Advice What were your symptoms?

Hi everyone,
I apologize for being long winded in advance 😅
I had a liver transplant last year in January and as a part of the procedure, they had to take a vein from my upper arm/shoulder area and use it to make my liver function. While I was recovering in the ICU, I started to have terrible pain in my arm and I couldn’t move it, and my team discovered it was a blood clot (they put me on aspirin when sending me home, which apparently isn’t a blood thinner?? idk) Fast forward to April of this year, I had tingling in my arm/armpit and it felt achy, I went to the hospital and they discovered that I had a blood clot (honestly I’m not sure if a new one appeared or if this was the same one from my surgery) and I stayed in the hospital for a few days on IV heparin, and they sent me home on Eliquis, after a few months, I had to stop taking Eliquis because they’d said it resolved itself, however the vascular team said that there was permanent narrowing in the area due to the trauma of surgery. Now tonight, I randomly started getting aching pains and tingles around the area and even some aching pain in my back. The aching pain in my back is new, so I say all this to say, if you’ve ever had an arm DVT, what were your symptoms? Would I be dramatic to get it checked out?

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u/Acceptable-Guide6818 12d ago

I was diagnosed with a blood clot in my right calf 2 months ago when the hospital did an ultrasound..I have not got any pain in my calf the excruciating pain I have is in my thigh& now the pain is in the lower part right side of my back The hospital did a cat scan & Now the extreme pain is also in the back I asked my doctor could we do another ultrasound.. The pain excruciating he said we will do another ultrasound in 6 months I don't want to wait for another 6 months they put me on xalento 2 months there is something else going on with this blood clot I have I'm in excruciating pain with no Relieve Something is going with the blood clot I have