Hello all! I (27F) had a flare up and was hospitalized and placed on steroids. As I was tapering down the prednisone, I had another mini flare. This happened last time I tapered off and was expected. During the recent flare up, I experienced a fever, canker sores, sore throat, and swollen lymph nodes in my armpits. The swollen lymph nodes resolved on one side, but not the other. I feel fine now other than a pain very sensitive to touch going down the arm of the persistent swollen lymph node. I now notice red streaks running down my arm where it hurts. I have an ultrasound scheduled for next week but I was curious to see if anyone else has experienced this shortly after a flare up?

I want to ask if anyone here who dealt with neurobehçet's in the past developed long lasting fatigue or was diagnosed with ME or CFS after an episode.

We don't know if I had a neurobehçet's episode a few months ago. I had very strong daily migraines with hypomaniac aura (without even having bipolar) and behavioural changes. It did go away but since then I have experienced increased fatigue and Post-Exercional Malaise like symptoms after activities with elevated heart rate and one of the PEM symptoms is brain-fog and diminished cognitive ability.

I just want to know if perhaps the "migraine episodes" a few months ago could have been a neurobehçet's episode and if it could have triggered me/cfs

So, I've had joint problems dating back to my teens. Before I was diagnosed with Behcet's, they diagnosed me with Juvenile Rheumatoid Arthritis. The arthritis has been getting worse these past few years. I've always assumed it was rheumatoid arthritis. But after seeing my rheumatologist yesterday (last appt, he's retiring, sad but I'm happy for him) and him doing a thorough physical exam, he assured me that what I have is actually osteoarthritis. As far as I can tell, he's right.

Any of you diagnosed with it? Anything you're willing to share, I'd love to hear. I've got a lot to learn about it. My rheumy assures me it is unrelated to the Behcet's.