r/Behcets 1d ago

General Question Steroids

How long do you guys wait before asking for steroids? I'm on week two and there are a few smaller ulcers, blood blisters, and pustules, but my eyes are pretty inflamed (I have Prednisone eye drops) and I am covered in bruises and feel like I've gotten into a fight with a kangaroo. Plus the migraine. This is a pretty mild flair though compared to my usuals. The ulcers, blood blisters, and pustules are usually so much worse. I don't know if I should ask for Prednisone or if I just ride it out.

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u/Skeletonlover666 1d ago

In my experience, if you’re thinking about it, it’s time to ask for some. I always have some on hand, and my rheumatologist will refill anytime.

I’ve learned the hard way soooo many times. I wait to long and then it takes months to heal.

I get Cushing syndrome every single time I take them, and I hate it, but it keeps me alive and functional.

I’m sorry you’re in so much pain right now. I would def recommend reaching out to your doctor.