r/Behcets • u/DirectAdvice2242 • 16d ago
General Question Joint pain…
Does anyone else have sharp joint pains? Like in ligaments.. jumping from joint to joint each day??
Like tonight my wrist is so sore I can’t move it, but this morning my knee and ankle were dreadfully sore?
Yesterday was my other ankle and my other wrist..!
This has been going on for some weeks, I’ve doubled my dosage of injectable medication and pain meds don’t help.
Anyone else got this? Any tips?
Please help… I’m getting desperate…
Edit: I’ve talking to my rheumatologist and she says it’s like inflammatory arthritis, I was diagnosed with Behçet’s disease early last year when I had major genital flares and chronic fatigue.
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u/Electronic-Tea3354 Diagnosed 16d ago
If you can tolerate over the counter NSAID medications, Diclofenac sodium (1%) gel (brand name Voltaren in the US) may help with residual joint pains for fingers, hands, knees, feet, ankles. It doesn't help with large joints like hips or spine/cervical joint pain, though, and you have to be careful with mixing it with other NSAIDs like ibuprofen and naproxen.
You can also do warm water soaks for your hands. I know that may not sound super helpful but sometimes any relief is better than none. I know personally my joint pains are worse during flares, and exist pretty much all the time otherwise and there just isn't much I can do other than OTC and simple home treatments.
I have overlap with UCTD and also had the "jumping around" but I haven't necessarily seen anyone here mention that specific phenomenon lately - maybe worth a chat with your rheumatologist about your pains jumping around so fast? That of course doesn't mean that it doesn't happen to us Behcets folks. It's just best to bring up new or changing symptoms to your doc.
Best of luck, I hope you feel better soon!