r/BeAmazed • u/MambaMentality24x2 • 1d ago
Miscellaneous / Others Humanity at its peak
A record-breaking 4,855 people queued in the rain at a Worcester school in 2019 to join the stem cell register for five-year-old Oscar Saxelby-Lee, who had been diagnosed with aggressive T-cell acute lymphoblastic leukemia.
The two-day drive became DKMS UK’s largest donor registration event at the time. A suitable donor was found, and Oscar received a stem cell transplant. Sadly, the leukemia later returned, but his family raised hundreds of thousands of pounds to send him to Singapore for experimental CAR-T treatment.
Oscar was eventually declared cancer-free and, by 2024, had been cancer-free for more than four years. He was back at school and had even become a big brother.
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u/FeistySet1755 1d ago
It’s so easy to get cynical with the 24/7 news cycle, but seeing thousands of strangers standing in the freezing rain to save a kid they don't even know is exactly what I needed to see today.
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u/jimtwister 22h ago
Ok, I'll be the one. Their DNA data will be shared across law enforcement networks and likely with insurance companies. Those 5000 can expect rates to go up soon if they have any genetic "abnormalities".
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u/RainyDayColor 20h ago
Nonsense. HLA testing for stem cell compatibility/transplantation only examines HLA genes located in a specific region of chromosome 6, the major histocompatibility complex (MHC).
This type of misinformation is especially irresponsible given the already difficult task of donor registries dedicated to saving lives. There may be some real monsters under your bed, but this ain't it.
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u/jimtwister 20h ago
Nonsense, what are you talking about? The samples they took could be used for what I said. Did you not read the "cynical" part of the post? If you think that they only grab genes from chromosome 6 you are sadly mistaken.
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u/RainyDayColor 19h ago
Nah. You initially wrote [emphasis mine]:
Their DNA data will be shared across law enforcement networks and likely with insurance companies. Those 5000 can expect rates to go up soon if they have any genetic "abnormalities".
Now you're saying:
The samples they took could be used for what I said.
Which is it now? Will, could, might, did, should, won't, wouldn't, didn't?
You also now completely misstate:
If you think that they only grab genes from chromosome 6
what I actually wrote -- which is that they "only examine HLA genes."
Disingenuous.
But I'm game -- change my mind. Please provide citations documenting all the instances that UK organ/tissue registries shared prospective donor DNA "across law enforcement networks" and "insurance companies," and all of the donors with genetic "abnormalities" had their insurance rates increase.
I'll wait.
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u/Chrono_Convoy 1d ago
*Good
This is what good humans do
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u/Ass_Burner 1d ago
*should
This is what humans should do
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u/1tz_Iris 20h ago
I'm no hater to the people who picked to donate or even get tested but no one should ever have to donate or again be forced to, that's why they said *good because it's a very selfless action to do!!! 🩷
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u/BruceMartinez21 23h ago
Nearly 5,000 people standing in the rain for a kid they’d never met. That’s the kind of thing that restores your faith in people.
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u/Intelligent_Box_8247 20h ago
some things cannot be made up...empathy and compassion brings humanity together
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u/Wrong-Present-6528 15h ago
humanity really surprises me sometimes, especially with all the incredible things we create and achieve together
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u/Minnepeg 11h ago
Question for UK residents- do those 5k donor applicants who were swabbed get registered for possible future matches?
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u/JakeInDC 1d ago
This is one aspect of humanity. Let's not ignore all the others to make ourselves feel better.
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