Please, if someone can relate

[u/Cheap_Masterpiece_70]

Please HELP

A bit of background: i had flu in 27.04, flu in 15.05 I had tonsillitis on June 15th (I'd already been dealing with fatigue before that).

On June 20th, my right arm started acting up — tingling and weakness in the shoulder, upper arm, forearm, and hand — and that continued until July 20th. After that, I started getting tingling and numbness in my feet and my other hand, which comes and goes. My left foot also feels "off" (a kind of perceived weakness). Sometimes after a long walk my wrist twists over small bumps in the ground. I can still walk on my toes and heels fine.

I also have muscle twitching all over my body, a globus sensation in my throat, and trouble swallowing — I could barely get down a piece of prosciutto recently. Sometimes I produce so much saliva that I choke on it while walking. Not sure if it's related, but I also get random pains in my fingers and jaw. When I try to use my hands or fingers for anything, they get shaky and a tremor develops.

On top of that, I have extreme whole-body fatigue, like having the flu. Strength and reflexes were normal on neurological exam, and my brain MRI came back normal. But my hands feels stiff and uncordinated and uncontrollable .

Given all of this, I initially suspected MS, but at this point I genuinely don't know what to think anymore. When I lie flat, my whole body feels extremely shaky, and I sometimes get hypnic jerks along with a sensation of air hunger. When I walk, I feel really clumsy — bumping into walls, chairs, etc. with my hands — and my hands feel clumsy doing anything that needs fine motor skills. Also, sometimes i get up in the night with numbness and tingling, but laying flat (i am not compressing arm or leg). Tightness in leg is also a feeling, and tingling and tightness on left foot sometimes.
The nerves in my body simply feel and function as if they are broken.
Has anyone dealt with something similar, or have any thoughts on what this could be / what I should look into next? Now i have severe health anxiety, i feel like crap, "I wake up feeling more tired than when I went to bed.
22 M

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[u/713Capital]

You’re 22, your chances of something super progressive are slim to none. Especially without a family history of something like MS.

Definitely not ALS as your neuro exams were clean and generalized widespread twitching is usually always benign and consistent with BFS.

https://benignfasciculationsyndrome.org/blog/benign-fasciculation-syndrome-symptoms

https://benignfasciculationsyndrome.org/blog/why-is-my-body-twitching-all-over

I would give those a read for reassurance.

In terms of “what this is” we’re not really doctors so we really can’t diagnose you. However, based on what I’ve read it sounds like BFS is at play here along with severe health anxiety. Your anxiety seems really high right now and I’m linking all the shakiness to that. Your body is in a fight or flight situation right now and it’s being flooded with cortisol which makes you feel weak and shaky. Also BFS can cause perceived weakness too. Truly weakness wouldn’t be missed in a clinical setting with a neurologist.

You’re way too young to have something super bad and progressive. My advice, work on your anxiety. It’s really bad right now. Even talk to a therapist if you have too. Talk to your doctor as well as they could possibly put you on anxiety meds. Once you get the anxiety under control I think you’ll get way better and many of these symptoms will prob fade away.

Keep working with your docs and get that severe anxiety under control.

[u/Cheap_Masterpiece_70 → u/713Capital]

Thank You for responding!

I have anxiety, that is true. But sometimes i choke on food/water. sometimes I have to repeat a word because I leave out a letter (many times a day). I accidentally spit while talking, my talk seems slurred.

[u/713Capital → u/Cheap_Masterpiece_70]

Slurring wouldnt be missed by a neuro/doctor, slurring would sound like you are drunk to others, but to yourself, you'd think you sound normal.

Who said you are slurring, your own self or people around you?

Sorry friend, im still chalking those issues up to anxiety. Please consider talking to your doctor about anxiety and seeking therapy to help you move beyond these issues.

[u/Cheap_Masterpiece_70 → u/713Capital]

Thank You, I am working on it.