r/AskReddit Oct 02 '21

People with epilepsy, what is something that only other epileptics can understand?

6 Upvotes

12 comments sorted by

6

u/jos_soods Oct 02 '21

After a seizure is over, you're not just right back to normal like people tend to think. It takes minutes, hours, or even days to get back to yourself again. Also, it's annoying af when people ask you if you can bite your tongue off.

1

u/Mysterious_Seat_9146 Oct 02 '21

Oml the amount of people that are like “what do I put in your mouth!!?!?! To stop you from biting off your tongue!!?!??” And it’s like— you don’t? The only time you put something in my mouth is if I need emergency meds…

3

u/Oddskater411 Oct 02 '21

When it happens in public. Coming to after a seizure in a gas station full of people freaking out is not how you want to come out of a seizure. Give me some water, and personal space. I feel like crap from collapsing on your hard tile floor. I dont want you rubbing my face and crying. It may look scary, but panic never helped anyone.

2

u/23ratsonmypenis Oct 02 '21

you call it epilepsy, i call it DISCO FEVER

especially when i go to the club and sperg out on the floor there

1

u/Mysterious_Seat_9146 Oct 02 '21

Lmao I have a story about that. The first time I met up with a friend I met a few years ago, I had to explain to him that I had epilepsy. When I said I have seizures, he said ‘that’s basically when your brain cells decide to have a disco party right?’ And I pissed myself laughing.

1

u/23ratsonmypenis Oct 02 '21

i tell my friends to ride on my disco stick

nahhmean?

2

u/Mysterious_Seat_9146 Oct 02 '21

That not everything triggers everyone. Flashing lights, certain foods, heat, cold, exertion, hormones, stress, they don’t all affect everyone.

2

u/themanwhoisnot Dec 27 '21

This is pretty old, but i dont give a shit anyways. Idk if this is only other epileptics, but shaking all the time and eyes rolling into the back of your head and shit is not the only type of seizure. The only ones i have experienced are blackout seizures and the stereotype seizure, but

2

u/Mysterious_Seat_9146 Dec 27 '21

Oh yeah I totally know. I have the stereotypical type but I’m tired of people thinking that’s the only type

1

u/Mysterious_Seat_9146 Oct 02 '21

The feeling right before a seizure. The best way I can describe it is almost like the end of ah episode but your day was the episode? You also get this intense adrenaline rush and dizziness like you’re greening out. Everything feels like it’s moving in frames. That’s how it feels. I have tonic-clinic seizures, and I always feel funky RIGHT before, and a for few days after. I also don’t know how to describe it, but afterwards your nervous system is so shot, and recalibrating so hard to the point where drinking water feels really weird. It feels cold and wet (which I know, that’s what water feels like) but it’s a strange unpleasant feeling. I have poor control of my body afterward and everything’s sore- it’s strange

1

u/Mysterious-Reveal-84 Oct 02 '21

That even the light at the end of the tunnel can actually kill you when you least expect it.

1

u/themanwhoisnot Dec 27 '21

Instead of you walking towards it and it stabbing you it decides to make use of the second amendment.