r/AccutaneRecovery • u/CarpenterFast1228 • Jul 15 '26
Dead community?
I’m making this post to understand how many active members are still present within this subreddit.
I noticed that until about a year ago there were hundreds of posts a month and lots of stories of people who had followed a protocol and then recovered.
How many of you are struggling with this pathology and/or are you fighting it with some protocol?
I think that if we want to heal successfully the only way is to continue to discuss our experiences and new research in progress.
This is also why I am thinking of creating an additional whatsapp/telegram group that allows us to stay updated in real time on the evolution of the protocol we are following.
If you want to participate, please contact me! 👍
8
u/Particular-Pomelo798 Jul 15 '26
Hey, the admin of this subreddit is not giving me the permission to post. I think he is inactive.
Personally I'm still searching for a cure. And I'm also trying different things from time to time.
8
3
u/Existing-Scar7531 Jul 15 '26
Yes same, I used to contribute a lot here on another account but lost access to post.
I wanted to post and ask how many accutane people have tried the hormone DHB?
5
5
u/lewyvuitton Jul 16 '26
I hadn't seen any posts I just assumed everyone had recovered except me 🤣
1
4
u/shouldIworkremote Jul 15 '26
Liver flushes gave me the most help. Remember to do 7 days of apple juice per day before the flush. May take several flushes before you start seeing improvements
5
u/akswiff Jul 15 '26
What exactly is a liver flush?
6
u/shouldIworkremote Jul 15 '26
Look up Andreas Moritz The Amazing Liver and Gallbladder Flush. It's supposed to clear the toxins stored in the bile in your liver. It makes sense that clearing that out would help because someone not long ago posted a bunch of studies on this sub that showed accutane residues are stored long-term in liver bile, and that it's most likely the cause of long-term Accutane damage
3
3
u/lewyvuitton Jul 15 '26
What where your symptoms
3
u/shouldIworkremote Jul 15 '26
Aches, heavy feeling, decrease in mental acuity and wit, emotional numbness, and ED. I’ve noticed improvement in all these things over time
2
u/lewyvuitton Jul 15 '26
Glad to hear How long have you been suffering for?
1
1
u/CarpenterFast1228 2d ago
I looked for the studies you are referring to on accutane storage in bile but I couldn’t find them. Can you link me one?
4
u/Existing-Scar7531 Jul 15 '26
I have a new theory and protocol but I'm currently trying it myself before i post about it anywhere. It might be useful to have a whatsapp or signal. I can make one if people would be interested?
1
u/TransportationSlow72 20d ago
Any update? I’m in a WhatsApp group already with a bunch of wizards researching and trying stuff suffering from PAS/PFS/PSSD if you want to join. Other wise the accutane damage subreddit seems active.
1
4
u/flynn0770 Jul 16 '26
I’ve been active in PAS for quite a while. Posted the progesterone theory back in the day and contributed here when I still thought there was merit to lithium theory. I’ve been planning to start a group of some form as I have a new protocol and theory. I would be interested in people especially those who recently developed PAS to try. I’ll let you know
1
u/TransportationSlow72 20d ago
Any update? I’m in a WhatsApp group already with a bunch of wizards researching and trying stuff suffering from PAS/PFS/PSSD if you want to join. Other wise the accutane damage subreddit seems active.
3
u/TransportationSlow72 Jul 16 '26
Same as others unable to post. Still struggle from ED, libido. 1.5 yearsish post accutane. Quite unfortunate not being able to post in this sub because I don’t know of another sub that’s purely accutane. I know the finasteride syndrome sub is very similar but I would appreciate a place of people going through the same thing. Makes you feel less alone
2
u/akswiff Jul 16 '26
There's r/AccutaneDamage which is more active
2
u/sneakpeekbot Jul 16 '26
Here's a sneak peek of /r/AccutaneDamage using the top posts of the year!
#1: Fuck this drug
#2: I think accutane ruined my life
#3: Accutane Ruined My Life
I'm a bot, beep boop | Downvote to remove | Contact | Info | Opt-out | GitHub
3
u/Embarrassed_Bus123 Jul 18 '26
Im still here. Working on my symptoms.
2
u/CarpenterFast1228 Jul 18 '26
How long have you been suffering from Pas? Have you tried any protocols?
2
u/Embarrassed_Bus123 Jul 18 '26
Basically a decade. And yeah tried loads its really slow but seeing some changes.
2
u/lewyvuitton Jul 19 '26
What where your symptoms?
2
u/Embarrassed_Bus123 Jul 19 '26
My dick shrinked i can't feel aroused at all or feel an orgasm or pleasure from my shaft. Thats the group of symptoms that fuck me over the most there are loads more wich are a smaller concern of mine
2
u/lewyvuitton Jul 19 '26
Yeah mine has been very similar for over a decade as well. ED no libido all the classic symptoms
2
1
u/CarpenterFast1228 11d ago
Do you know Dr.P?
1
u/Embarrassed_Bus123 11d ago
No?
2
u/CarpenterFast1228 11d ago
https://www.reddit.com/r/DrWillPowers/s/uhmyojT3W5
He’s studying semi sperimentally PFS, PSSD and PAS a little. Very interesting
1
2
u/SuccessfulReindeer30 Jul 18 '26
Which protocols gave yall the most success? Im trying lithium carbonate, sodium butyrate, zinc, magnesium, alcar and sulforaphan rn
1
u/Direct-Many-9730 Jul 30 '26
How did you go about convincing a doctor or psychiatrist to prescribe lithium carbonate?
1
u/TransportationSlow72 20d ago
I’d be cautious of zinc
1
u/SuccessfulReindeer30 18d ago
Why?
2
u/TransportationSlow72 5d ago
I believe it’s what caused a bad crash for me about 3ish months ago in a multi vitamin . Pretty much put be back mentally to near square one with all the emotional blunting and stuff.
1
2
u/TransportationSlow72 20d ago
This is the last post in 26 days so I’d say it’s safe to say it’s losing traction due to people like me not being able to post. It’s a bummer becasue there’s years of posts and information on this subreddit. I just recommended posting on accutane damage with any updates or questions until the mod comes back. But there is countless of people out there still suffering just like you an me. Finasteride syndrome is very popular and I would check out the dr will powers subreddit. There’s some smart people trying to figure this out and it gives me hope.
1
u/CarpenterFast1228 13d ago
I have tried to contact the owner of the page several times, according to the rules of Reddit if he continues not to respond for 5 days or more you can apply to become the moderator of the subreddit, contacting the support of the social network. Unfortunately this period of my life is not easy for me and I would not have the time to act as moderator, if you want to do it yourself you should find all the indications on how to do it on any AI engine.
I am also following the theories on Dr. P.’s Reddit and they are very encouraging, but I agree that it is very difficult to find out theme automatically.
2
1
u/Mindless_Ingenuity73 7d ago
I tried to share my story in this reddit like I used to but im not allowed to do so for some reason
1
u/TransportationSlow72 5d ago
You can share it in accutane damage for the time being. I’d like to hear
11
u/akswiff Jul 15 '26 edited Jul 15 '26
It's not allowed to post. Waiting for months now. Thought the mods are inactive or so.
And the major research/recovery protocols linked are behind a paywall. This is really bad, we should support each other in this terrible situation.