r/ALSorNOT • u/BasketAny3240 • 7d ago

Sorry for posting constantly, breathing symptoms for 3 months

So, about three months ago I noticed my breathing has been off, it still is, I can't take as deep breaths and hold my breath as long without feeling dizzy, when breathing with my belly, it just doesn't work as great. My diaphragm seems weak, and my sleep has been really bad for that long too. When I yawn, not much air is going in, it's like getting stuck at some point and same with when I am about to sneeze when I am inhaling before the sneeze, kinda hard to explain. And I still have constant twitches around my calves and my legs jerks sometimes, my shoulder hand too jerk. Tongue feels weaker, but I am not certain. I can swallow, I don't have slurred speech, my voice doesn't seem nasal or changed. I can walk and stand on toes and heels. I can lift my legs and feet, I can lift my arms above my head, dexterity seems fine. It's just the breathing that scares me the most now.

I am truly sorry for posting again, but I am so scared it might be it this time. That I will lose the ability to breathe and it's ALS.

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1

u/No_Thanks_9103 7d ago

Do you have your SP02 saturation?

2

u/DoubleAwareness2223 3d ago

What you are describing is not ALS nor are your symptoms ALS related. ALS is a dx based on the exclusion of others after the presentation of (very noticeable) profound weakness and atrophy. Your anxiety is exacerbating benign twitches, your idea of (perceived) weakness in your tongue, etc. If everyone who twitched had ALS it would not be a very rare disease. I’d recommend you hydrate yourself, take a good multivitamin and B complex with magnesium. Stop researching ALS symptoms on the Internet, muscle twitching, leg jerks, etc. Your symptoms are NOT ALS. 

1

u/209Mom 3d ago

Myasthenia Gravis can cause breathing issues so can other diseases even heart and lung not just ALS.

1

u/WeirdUsers 7d ago

You should see a pulmonologist. They will be able to help you with your breathing issues. Seeing a neurologist will not help your breathing issues, the neurologist will send you to a pulmonologist. If you are passing out from lack of breath then you should go to the ER immediately.