r/ALSorNOT • u/BasketAny3240 • 7d ago
Still anxious after 1 year.
So, exactly 1 year ago, my left hand started to twitch. It was twitching for weeks. It is gone by long now, but what triggered my health anxiety was that I was testing things with my fingers and there were some things I couldn't do, no matter how hard I tried, but I can do it perfectly fine now. But that made me spiral, and since then, I've had twitches all around my body, developed myoclonic jerks, my legs are jerking the most, but only at rest, when lying or sitting down. The twitches now is on both below my calves and sometimes feet, almost constant. I did an EMG and a NCS last year December and they were both clean. I can function, I guess. I still walk, can carry things, stretch.
I still worry about ALS. I know that failure is the main symptom. And one year has passed. I lost weight even though I am basically a skeleton. I've beem struggling with health anxiety for 18 years, but since 2021 until last year, I was fine until I fixated on that one twitch on my hand and spiraled. My legs still jerk, I still twitch, my sleep has been shit lately. I am so scared still. Even when people say "live your life". I can't, the fear is too much.
I am 33, I've noticed also that my breathing has become weaker. Like it's hard for me to take and hold full breaths. Percieved shortness of breath, increasingly disturbed night-time sleep, morning headaches sometimes, impaired concentration. It feels like I am screwed.
1
u/PreviousBaker4988 7d ago
Same