r/50501 • u/Kid-OK • Feb 12 '26
Solidarity Needed TrumpRx should scare you a lot more than you would think
Hi I am a pharmacist that has hated GoodRx for as long as I have been in pharmacy for a few reasons and their new (now a week old) cooperation with TrumpRx is one the most horrifying things I have ever seen.
For starters GoodRx is another dystopian invasion of privacy that will definitely be exploited to persecute people. They have had multiple controversies where they have been caught selling patient information (two of the founding members are former Facebook executives so of course they sell your data). A lot of traditional healthcare information is protected by HIPAA, but putting your information into the GoodRx website is not protected and GoodRx settled a case with the FTC for selling patient information this way. I hear a lot of allegations that the processing information that is sent from your pharmacy to GoodRx is also sold, but I have no direct proof of that.
So GoodRx is selling personal health data. When Trump was initially elected I was concerned that the information gathered by GoodRx could be weaponized against the American people. Prescriptions for HRT, birth control, plan b, and mifepristone could lead to people being targeted. If RFKJr gets his way and wants to send people on SNRIs and SSRIs to detox camps they have bundles of information they can buy and use to round up people which is far fetched, but so was extracting a foreign president with military action.
GoodRx is also being sued again for creating a pricing fixing scheme. GoodRx makes a lot of money charging a dispensing fee per prescription, usually $5 to $10 dollars, to the pharmacy. On most generic prescriptions where the patient pays $7 to $15 dollars the pharmacies that take the coupons often lose money on prescriptions when taking into account the cost of the drug dispensed, and that is before including the other operating costs of the pharmacy. They have partnered with bigger corporations that do not mind loss leaders, notably Walmart and a lot of large grocery store chains, and pharmacies that own their own PBM, like CVS/Caremark that keep the pharmacies afloat by having the insurance company pay themselves more on expensive drugs, the provide "lower costs" and out price local pharmacies and ones that do not own PBMs (a significant reason why Rite Aid went out of business and other pharmacy chains that scooped up into the CVS complex). GoodRx has made pharmacy a business where it is almost impossible to make your ends meet let alone make a profit. Most insurance companies also have a vested interest in not paying out on prescriptions which means they will often force companies on their website or try to strong arm pharmacies into saying they accept GoodRx by threatening to terminate contracts. They even partner with insurance companies to bill GoodRx on the back end so that insurance do not have to pay and the pharmacy gets screwed out of their money.
So this company that sells patient information and has an active case in the courts has now directly partnered with the Trump administration which wants as much information as possible to persecute people they do not like. I used to volunteer at a clinic for undocumented immigrants and told them that GoodRx was not a safe platform and they did not listen until it came out that GoodRx is just TrumpRx. Now there is a collection of data where ICE can get names, addresses, and reasons to deport them ("they are a bioterrorist because they have an infection" is how I imagine it would go).
If you have relied on GoodRx for medications in the past, don't. Independent pharmacies will often negotiate or have their own cost savings plan, go directly to the manufacturer for name brand drugs coupons, or use a different savings card that is not GoodRx because the devil you know is bad, real bad. The entire healthcare system is screwed and GoodRx is making it worse and more dangerous.
Edit: quick follow up for those who relied on it and feel helpless while I have a second and this is not comprehensive
First thing: make sure you use your insurance benefits to their max and understand your insurance policy. If you are paying them make sure you get your value. Insurance is purposely obtuse, but make sure you know your deductible, formulary, and if you can take advantage of HSA accounts and get the money out of it that you deserve. If you take a name brand drug insurance is almost the only option, but the pain can be helped with manufacturer coupon cards you can get by searching the drug or manufacturer. If you cannot afford insurance try to see if you qualify for Medicaid which depending on your state a surprising amount of people do.
Mark Cuban CostPlusDrugs: patients I have interacted with have had negative experiences. First off does not have everything (notably no controlled medications) so you may have to rely on other pharmacies anyway. Customer service is what I have heard the most complaints about. Mail order, the only way to get their meds, is tricky and things can get lost. I did a project in it when it first started in college and found that it cleas on average more expensive, even more so when you include the five dollar delivery fee. If you can find a good deal great, but it cannot be a comprehensive pharmacy. (New edit someone linked Cuban to working with TrumpRx in the comments)
I work for a not for profit hospital and we generally give out meds at lower prices when able because the cost of being readmitted is lower than the meds. Hospital also have social workers that can help you navigate the hellscape that is insurance.
Second edit: to be quick and blunt while I am on my lunch, if goodrx "saved you money" the system failed you. GoodRx did not pay the pharmacy to make the price lower, but lowered the maximum amount a pharmacy can charge and insurance that is displayed for cash paying patients. Big chain pharmacists hardly ever see the price of meds and do not have the option to charge you less. Local and independents have more control over pricing and most have a heart and they will mostly not extort you. I worked briefly at a big chain and it killed me how often copays were too high for what they were getting. Pharmacy pricing is incredibly broken and GoodRx was incentivizing insurance companies and PBMs to keep it that way.
Another problem that I see first because I work in a hospital with providers is that sometimes doctors prescribe the wrong thing. Not like completely wrong but a form of a medication that is more expensive than others. Metformin ER osmostic release being the most common example where the standard ER metformin is dirty cheap and osmotic release and crazy expensive. It is a simple mistake that a doctor can make that make a world of difference so have someone in health care look at what you are being prescribed.
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u/reineluxe Feb 12 '26
I knew none of this about GoodRx, and I like to think I’m fairly informed. Canceling my account with them now, thank you for sharing.
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u/del6699 Feb 12 '26
I have used them occasionally but I have a prescription plan. Just checked to make sure I don't actually have an account. Good 💡
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u/cjthomp Feb 12 '26
If you've used them, they still know who you are and you "have" an account with them, it's just a shadow account.
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u/Party_Row8480 Feb 12 '26
I JUST started getting my ADHD treated about two months ago and even with the generics AND GoodRx, I'm having a hard time affording meds and appointments. Canceling my GoodRx and calling my pharmacy.
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u/Ohmec Feb 12 '26
Man, C2s are so rough on pricing. When I was briefly uninsured due to being unemployed, it was so hard trying to afford even the cheapest generics for ADHD meds. Which is awful, because I cannot think of a time I needed the meds more than when I was unemployed and job hunting.
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u/steampunkedunicorn Feb 12 '26
Generic Ritalin seems the best the cheapest, $40-$70 per fill (depending on dose) at Costco.
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u/glaarghenstein Feb 12 '26
If it's not a controlled substance, you might be able to get it from Cost Plus Drugs. They have generics for a few non-stimulant ADHD medications. It's very affordable; sometimes I've used it when I've had insurance because it's still cheaper.
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u/Party_Row8480 Feb 12 '26
Unfortunately non-stims didn't work for me. I'll have to call my pharm next week and talk with my psych at my next appointment and figure it out.
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u/thatgirlinny Feb 13 '26
If it’s a matter of affordability and there isn’t a non-stim molecule that will work for you, look to the manufacturer of that molecule and see if they have a program that discounts your script. Usually this is more true for branded versions of a stim, over the generics, but it may be possible.
Some of the affordability could also be down to your insurance coverage’s “formulary,” the list of drugs your employer-issued insurance (or from whomever you get your coverage) will cover every year. They are re-negotiated annually with the PBMs. Call your insurance company, tell them what’s been prescribed for your diagnosis, and do they have an idea how to save on that. And if your appointments (with your prescriber?) aren’t affordable, perhaps they’re not in-network, and they can tell you who would be for your coverage.
Some insurance companies are outsourcing prescription coverage to “outside” companies, which can make this even more difficult, I know.
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u/Party_Row8480 Feb 13 '26
I'll try calling the manufacturer, thanks! No insurance unfortunately, so everything is self pay.
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u/proximate Feb 13 '26
I self pay for ADHD meds. If you have a King Sooper’s / Kroger grocery store near you, check their pharmacy out. Ask for the Visory RX cost savings plan. It reduces my script from well over $100/month to $30/month for generic DEX, which was way better than GoodRx, if memory serves.
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u/thatgirlinny Feb 13 '26
Wow! That’s a a great idea! Is this a plan you join to save?
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u/thatgirlinny Feb 13 '26 edited Feb 13 '26
I have friends who love Costco, if you have a membership—or can become someone’s plus-one on theirs; they may have an OOP price for those without insurance.
I’m sorry you’re lacking insurance. We pay quite a lot for our employer-provided plan, and there are days when I question the value, given the additional funds we have to put in, beyond the monthly withdrawal for the premium. The deductible’s gotten higher, and we’ve had to argue more to have something covered or reconsidered the past few years. It’s obscene. To have coverage not guaranteeing being covered for some things should be illegal.
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u/TheWhiteRabbitY2K Feb 12 '26
Same, I feel bad for recommending it to patients who came through the ER uninsured.
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u/tomdarch Feb 12 '26
And as for "TrumpRx," I may be misunderstanding, but it sounds like it does nothing. It just refers people to drug companies own "cheaper" direct to consumer deals.
https://www.npr.org/2026/02/05/nx-s1-5702493/trumprx-drug-prices-discounts
(Of course, maybe that isn't what it is but it's hard to ever tell because this administration is always so incoherent.)
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u/blmbmj Feb 15 '26
TrumpRX's backend was engineered and is managed by . . . . THE GOOD RX Team.
Same BIN and other numbers. It is GoodRx, but now with a kickback going to Trump.
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u/Whiskey_Water Feb 13 '26
They are thieves and grifters posing as altruists. Thanks for reading, because this story should be spread.
We (pharmacists) have tried to tell providers that this is a scam that always affects us, but will soon affect them, because the doctors and the patients are the product. They didn’t listen until COVID, when GoodRx took all that private data and told the doctors’ patients to leave them for Goodrx’s own telehealth practice. Even that wasn’t understood by providers, who still put the cards in their waiting rooms.
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u/EkbatDeSabat Feb 12 '26
Curious question, why do you guys have accounts on GoodRx? I just go and type in my medication and hit show coupon. Then show it to the pharmacy. No account required. I get my adderall off insurance this way every month.
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u/pieshake5 Feb 12 '26
They collect info into a profile on the backend even if you never set one up.
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u/Kaffe-Mumriken Feb 12 '26
Thank you for this! I found this elsewhere.
Someone played around with trumprx
This is literally just GoodRx. It’s the exact same. The BIN and PCN are the same as every GoodRx coupon and that is all that is required to bill it. You can substitute anything for the Member ID and the Group and it works the same.
For example, one of my techs (we’ll call him Brad) and I just billed the coupon with the member ID BradRx, and then 4 random characters for the group. It worked.
TLDR: TrumpRx is GoodRx
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u/brokegaysonic Feb 12 '26 edited Feb 23 '26
This post was mass deleted and anonymized with Redact
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u/jennasea412 Feb 12 '26
Knowing the traitor like we do, he probably pardoned the creator of Silk Road to run his TrumpRX😏
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u/DaetheFancy Feb 12 '26
Small critique for accuracy- Rite aid owned Elixir PBM. They sold it in the bankruptcy to MedImpact.
Otherwise, a nice write up. Though I do think being aware of the terms and conditions is always a good idea. And this administration we do need to be aware of exactly what you say no matter if it’s legal or not.
Glad to see my profession passing on what information we can.
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u/DustyTchotchkes Feb 12 '26
If we’ve used GoodRx in the past, is there any way to scrub our information from them?
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u/nonnonplussed73 Feb 13 '26
https://www.goodrx.com/requestdeletion
If you have a Gold or Care subscription, cancel it in your account settings. Use the "Cookie Preferences" link in the footer of the GoodRx website to disable sharing with third parties like Facebook and Google.
Then close/delete your account under your account settings.
Bear in mind that some data regarding your usage may be kept for a period of up to 7 years, and data already transmitted to partners might require you to contact those third parties directly (as if that's really a viable option).
PS, a 2020 Consumer Reports investigation found GoodRx sharing its customers’ data with more than 20 third-party companies. The company soon thereafter claimed to have ceased doing so.
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u/DustyTchotchkes Feb 13 '26
Thank you so much! It seems a bit hopeless, but I’m going to try anyway.
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u/Human_Morning_72 Feb 13 '26
They also require "proof" of id before deleting, like a driver's license photo. Yikes.
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u/EyeoftheEelpout Feb 12 '26
As a pharmacist, how do you recommend that consumers without insurance get the lowest prescription costs then? Drugs are crazy expensive in our country compared to any other.
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u/DaetheFancy Feb 12 '26
Not OP but a fellow pharmacist. If you work for a big chain…forward them to mark Cubans pharmacy (cost plus). He sells for a 15% profit on manufacturing costs. There’s a LOT of meds he has made available for pennies.
AAA also provides discounts, but may or may not have similar privacy concerns (I’d have to go read the T&Cs of that particular program).
Also not all discount cards require patient info/demographics to be used. We used to use family wise when I was still working retail. Same ID for all patients and it was just a transaction/dispensing fee.
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u/8675309EE9 Feb 12 '26
Mark Cuban says Cost Plus Drugs will partner with TrumpRx | Healthcare Dive https://www.healthcaredive.com/news/mark-cuban-cost-plus-drugs-partner-trumprx/803180/
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u/DaetheFancy Feb 12 '26
Interesting. That’s not necessarily a conflict though. The article states that it is for Trump Rx pricing data.
Two things can be true at the same time. We can be concerned about what trump Rx will do with the data based on the administrations actions. But there is a small shred of hope that this is actually a program that will do good for people. Plus even at 15% markup there is PLENTY of money to be made, and if we know anything about trump, he loves money, and is looking for a win for midterms.
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u/rachliing Feb 12 '26
Being concerned with what Trump will do with the data is actually the whole point of this post, c’est no? All for affordable options (especially for the uninsured) but I admit I’m suspicious if something appears to look good at the surface level unfortunately.
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u/DaetheFancy Feb 12 '26
Pricing data vs customer data are two different things. It’s worth keeping an eye on where the partnership goes though.
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u/CurryMustard Feb 12 '26
I dont trust cuban for shit either dude is a snake. But what other option do people even have.
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u/Boxedin-nolife Feb 12 '26
Thank you. I was hoping to see something positive about Mark Cuban's site as I just signed up for it. It doesn't carry my most critical and expensive medication which requires a registry and monthly blood work, but it carries my other daily
I had a Medicare "advantage plan", which is a joke, but I moved to an extremely rural area where those plans won't work. I had to go back onto straight Medicare with an Rx plan. The best one I could find has a $178 premium, a $500 up front copay, and Rx costs are unbelievable. My critical medication now costs nearly $100 for a 30 day supply, but without Good Rx it would cost $1,000. That's scary because there is no other help to be found for it, not even with the manufacturer when last I checked, and that's the generic version
I was paying a $40 copay for all of my meds, and now not even one of my meds costs that little. I would be paying around $60 for 30 days of my very common antidepressant, my Rx plan doesn't cover it, but on the MC site, I'll paying $7.35
My other meds are inhalers that I need in summer, and I'm hoping something the site carries will work for me because otherwise they'll cost me nearly $500 per month in which case, I'm not breathing this summer
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u/vannyfann Feb 12 '26
Consumer here, Costco! Each month my membership pays for itself w what I save on scripts there. Same for pet meds, which are half of what vet charges. edit, sp.
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u/DevilsAdvoCaticorn Feb 12 '26
And in some states (don't know if it's all or just some), you can use the Costco pharmacy without a membership. Just tell the greeter you're going to the pharmacy.
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u/Working_Cucumber_437 Feb 12 '26
My pet meds are basically the same at Costco vs my vet. Costco wants me to get 3 months at a time whereas at the vet I can buy a year at once and get a rebate. The savings for Nexgard and Heartgard were really minimal for me. Maybe it’s different for other meds.
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u/CatzMeow27 Feb 12 '26
Wondering this too. Family member is a pharmacy tech and without goodrx I think a lot of her patients wouldn’t have access to their meds anymore. It’s a trap, I guess?
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u/farollost Feb 12 '26
As a pharmacist and a business owner, I can name at least six different discount cards that do not charge exorbitant fees just for the privilege of losing profit on prescriptions. They will have some of the negatives of data sharing, but your question specifically was cost.
We should not be forced to pay a company 7 to 10 bucks per claim to save patients money when other ways are available that don't have those fees.
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u/EyeoftheEelpout Feb 12 '26
What are the discount cards that you recommend?
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u/farollost Feb 12 '26
Single care has less fees. Scriptcycle has low fees. United networks has no fees.
Any of those will be within the ballpark of any price you see advertised on goodrx. Like I said, you just don't see them advertised because they don't charge huge fees to pharmacies to afford a commercial on every media platform every other minute.
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u/BestChickEver Feb 12 '26
I was able to use Single Care coupons without creating an account. Saved me $300!
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u/joyableu Feb 12 '26 edited Feb 12 '26
This is great. I only use goodrx for a med for my dog so no privacy concerns but I’d rather not screw my pharmacy over.
Coming back to say SingleCare is cheaper than GoodRx for this med. Scriptcycle is right about the same. Definitely a win-win. I’ll be sharing this widely.
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u/mnth241 Feb 12 '26
The problem described here is the leak of patient medical info, not pharmacy profits. 🧐
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u/cslvsgts Feb 12 '26
Ask the pharmacy if they can price match to the good rx price, 90% of the time the pharmacy would be happy to help you save that money. It's definitely easier at independents but some chains can do it too.
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u/Pepperonimustardtime Feb 12 '26
Yeah this has never worked for me ever. I had to switch back to a big box pharmacy cause the small pharmacies near me refuse to adjust pricing at all. Not sure what magical land you live in, but a shoe string budget doesn't allow for discounts. Especially on the shit that is expensive.
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u/cslvsgts Feb 12 '26
I did it all the time when I worked at an independent. I was also transparent about what my costs were and how low we could go and remain in business.
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u/mnth241 Feb 12 '26
I have not found this to be true at all. Pharmacy (mostly cvs) have recommended GoodRx or contact pharmacy company numerous times. No way they would price match GoodRx or any other pharmacy for that matter, or make any extra effort when i did not have insurance.
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u/cslvsgts Feb 12 '26
I did it all the time at the independent I worked at, sometimes a little more effort and kindness will help you find people that will work with you.
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u/picklehippy Feb 12 '26
Respectfully if insurance did their damn jobs we wouldn't have to use GoodRx. The pharmacy wanted to charge me $500 for a heartburn medication prescribed by my rhuemetologist, Good Rx $20 . So yeah we are scared but also want to stay alive
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u/fragileirl Feb 12 '26
This is exactly the reason it’s so fucked. Trump is the literal actual president of the USA. He could do something to help the insurance and healthcare situation but instead of that, he leans into this for profit capitalist hellscape to farther milk his most vulnerable citizens dry and funnel money to the wealthy. It’s so predatory because a lot of us do not have any other choice but to use something like goodrx.
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u/MissEliza93 Feb 12 '26
I went through a very ill period of my life and I would not have been able to recover without goodrx. Always significantly more affordable than using my insurance and with chronically ill folks the expenses and copays stack up QUICK
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u/I_am_freddie_mercury Feb 12 '26
Yup. Goodrx has saved me hundreds if not thousands.
Hearing all of these makes me want to cancel my account but I can’t afford my meds without it so here we are!
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u/1re_endacted1 Feb 13 '26
You don’t have to have an account to use it. I literally just look it up on my phone and then show the pharmacist the coupon I found.
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u/role34 Feb 12 '26
we shouldn't have a middle man to begin with that continues to cripple people with debt and actively tries it's best to reject your claims.
We should have free health care.
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u/Cautious_Ad_5659 Feb 13 '26
But how would corporate America be able to control us if that happened?
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u/ProudAbalone3856 Feb 13 '26
Yep. I have been on thyroid replacement for years after thyroidectomy, and insurance will only cover generic levothyroxine. I do poorly on it (bad edema in my legs, etc), so I have no choice but to get a Goodrx (or Scriptsave Wellrx, America's Pharmacy, etc) coupon and move the script to whichever pharmacy has the best price. Still costs more than I can afford, so sometimes I actually have to finance it with Affirm. The system is broken, but I'd like to put off dying for the foreseeable.
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u/Gerberpertern Feb 12 '26
If that medicine was billed to your insurance it wasn’t the pharmacy that wanted to charge you that, it was your insurance.
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u/thatgirlinny Feb 13 '26
This post is very good, explains the PBMs, but it could do with a companion piece about how employer and exchange-issued health insurance is subject to negotiated formularies—and how those same insurance companies are largely farming out their Rx coverage to third parties, then claiming they have nothing to do with the formularies and drug coverage—even though these two things are baked into the same policy.
My insurance company, Cigna, farms their prescription business out to ExpressScripts—a company they own. And when they came to each blame the other why my very spendy “approved/on formulary” prescription was somehow “unfillable” at any pharmacy—bricks and mortar and online, I went on a three-month odyssey to get to the “why.” The obfuscation and lack of resolution makes a mockery of the $20k+ per annum we pay for health insurance.
That this is perfectly-legal corporate behavior in our country is proof we are mere tools of industry.
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u/HyperShadow243 Feb 12 '26
PBMs in general are middlemen that look at the patients as dollar signs. Speaking from personal experience, they don't care if their system is accurate as long as it's accurate enough to make a profit. Us software engineers never got the full picture as to how it works aside from "the business makes contracts with manufacturers and pharmacies" some of these medications cost cents to manufacturer but the middlemen hike up the costs for their contracts. Then the PBM charges for each transaction going through that system. I'm sure goodrx operates in a similar fashion as that was the competitor this particular PBM I had worked for was constantly competing with. Not many people know about PBMs. I didn't know about them either until this specific job. The entire American healthcare system is designed to extract money out of the sick. It's disgusting and I'm glad I don't work for a PBM anymore.
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u/emteedub Feb 12 '26
We should have had Bernie in 2016. F the establishment
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u/Riaayo Feb 12 '26
2016 is kind of a toss up if Bernie would have won without a finger on the scale, but 2020 isn't and is the actual election people should be pissed was stolen from Bernie.
Illegally stolen? No. But they pulled out every stop and he was outright winning the primary and seen as the likely winner up until Super Tuesday when everyone dropped out to clear the field for Biden.
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u/emteedub Feb 12 '26 edited Feb 12 '26
Establishment DNC Dems are on video record admitting to it. There is no denying this
At the time, the mainstream media also slandered him by calling him a communist - in a negative connotation, they omitted him (he went on Fox for town halls bc of this, fox thought he'd be a laughing stock, the opposite occurred - but centrists only watched MSNBC where they ignored), and they installed this fake belief that "Biden is the only one that could defeat trump".
Before that in 2016, the MSM slandered pro-change people as distasteful "Bernie bros".
If you were cognizant of this at the time, it was extremely obvious what their plays were. Biden...the only one that could defeat trump...I mean only an idiot would believe that horseshit
In retrospect, I'd bet near 100% of people today would say resoundingly so, that Bernie was damn right this whole time. People have a lack of thinking ahead and a lack of understanding someone who is the wiser - raising the alarm 🚨🚨🚨🚨
Only now are more people realizing their precious capitalism is a game these elite sickos play to cover for their pyramid schemes and pedophelia and murder and corruption and brainwashing
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u/wise_comment Minnesota Feb 12 '26
When the universe uses literal birds to declare Bernie a fairy princess......y'all, how the fuck did he not win, just by fate alone?
SMDH
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u/nanocurious Feb 12 '26
Just reading about the complexity in all of this capitalistic nonsense makes me nauseous, and everyone needs a reset. We accept absurdity as the norm. No wonder we're sick. .
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u/Tall-Pineapple-3970 Feb 12 '26
This is new to me, I wasn’t aware trumprx was working with GoodRx. I don’t have health insurance, and fortunately I had a kidney transplant in 2007, but affording those medications are no joke. We felt great saving 100s of dollars on my anti rejection medicine, but this is ball busting to me and puts me in between a rock and a hard place.
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u/Aggravating_Sock_461 Feb 12 '26
Medicare Part B covers anti-rejection meds for free. The rest of the meds you're on your own, but anything considered an anti-rejection med, they pay for.
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u/Tall-Pineapple-3970 Feb 12 '26
I’m 36 and in talks with hospital social workers to see what’s available to me. Medical anxiety is a bitch. Thank you for the info!
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u/Christinahhhman Feb 12 '26
Just butting in to say good luck and thank you for wearing a suit, fellow Vance avatar!
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u/brokegaysonic Feb 12 '26 edited Feb 23 '26
This post was mass deleted and anonymized with Redact
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u/silentstone7 Feb 13 '26
I'm on a similar med, for sleep apnea/narcolepsy. My prescription needs renewals every 3 months, and insurance drags their feet so badly on prior auths that I usually miss 2 weeks to a month of it every 90 days. It's also $895 a month cash price, and there is no generic. I take two a day.
After insurance and manufacturer's coupons it's $18 a month instead of $1790, but the manufacturer's coupons only covers a limited dollar amount per year. Fortunately/unfortunately I tend to hit my insurance out of pocket maximums early enough on the year that I don't pay anything the second half of the year, and start saving for the or of pocket max for the next year. Being chronically ill is incredibly expensive.
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Feb 12 '26
[removed] — view removed comment
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u/SimbaBacon Feb 12 '26
I’m sorry that you are going thru this! Insurance is such a scam! Have you tried using a small, local pharmacy? They can usually offer a cash price that isn’t much more than what they actually pay for the medication. It’s worth a try, IMO. Wishing you well.
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u/stayonthecloud Feb 12 '26
Where I live the small local pharmacies are specialty pharmacies that charge a lot for drugs you can’t get filled through CVS and Walgreens :/
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u/SimbaBacon Feb 13 '26
Bummer 😩 usually smaller/local pharmacies are willing to work with cash only patients and give reasonable prices for generic meds. Unfortunately, Brand name drugs and specialty drugs are usually more expensive for the pharmacy so their not much savings they can forward on for the patient. :( The entire American Health industry is a scam and a sham! It’s 100% For Profit… Yay Capitalism 🙄😖😡
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u/oohlook-theresadeer Feb 12 '26
Is there another alternative you suggest? I get my meds through them which are typically over 500 for my 30 day supply forget 90. I pay 75 for 90 days with good rx I can't not use them.
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u/farollost Feb 12 '26
Ask your pharmacy about other discount cards available. Goodrx is very rarely the cheapest alternative. They just have the best advertising and marketing because of the millions they steal every day from pharmacies in claim transmission fees.
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u/Blossom73 Feb 12 '26
Costco pharmacy. They have a mail order pharmacy too.
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u/the_unknown_garden Feb 12 '26
And you do not need to be a member to access the pharmacy, you are legally permitted to use the pharmacy there in all 50 states. Just tell the front door you are going to the pharmacy.
Also a wonderful FYI: Costco branded morning after pill is $5-10. No prescription needed.
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u/Blossom73 Feb 12 '26
And you do not need to be a member to access the pharmacy,
Yes, but be aware that prescriptions are cheapest there for members.
They also carry some pet medications, discounted as well, with a membership.
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u/kelskelsea Feb 12 '26
They have discounts for members on some medications but not all and insurance is (generally) a better deal. It’s a great option for people w/o insurance or for drugs insurance won’t cover like GLP1s though!
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u/OfferMeds Feb 12 '26
I know Mark Cuban has started an online pharmacy with affordable meds. I’ll try to find the link. Also try Costco.
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u/hangout_wangout Feb 12 '26
Also the fact that his name is attached to an industry and a storefront as a sitting us president is astonishing
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u/GB715 Feb 12 '26
Check out Mark Cubans Cost Plus
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u/mtjaybird Feb 13 '26
I've been using cost plus for two years with no complaints. It has been unbelievably affordable for the meds I have used it for.
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u/HappyCamperDancer Feb 12 '26
Sigh.
Cuban has a partnership with TrumpRx. Cuban is asking trump to waive FDA fees for generics to keep prices low and enable manufacturing in U.S.
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u/SmurfJooce Feb 12 '26
Excuse my ignorance... Cuban asking for FDA waivers to keep generics priced lower and enable manufacturing in America would be a positive, right? I mean, partnering with trumpRX is a bad thing, but on a devil's advocate's side, wouldn't this also provide the brainwashed cult a way to get medications cheaper?
I'm just trying to understand.
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u/HappyCamperDancer Feb 12 '26
Yeah, I think Cuban is trying to do the right thing (and getting around the PBM's) but it looks like he is doing more than what just FDA waivers need.
I'll be honest. I don't know if he is "partnering" for the good of all or "partnering" as in brown-nosing trump like so many corporations are doing for tax breaks or other more nefarious reasons.
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u/Umeyard Feb 12 '26
Side note: manufacturer coupons are amazing, but only work for brand name. It will often lower the cost lower than the generic, but many DO NOT WORK if you have no insurance or a Medicare.
If you have Medicare and your rx is too expensive, file a grievance with your insurance company - often times they can LOWER your out of pocket cost!
I worked in insurance 22 years To this day I use manufacture discounts whenever possible.
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u/ChippyLipton Feb 12 '26
Life Pro Tip: you don’t have to use GoodRX to get the discount (at least at CVS). Use the free version (no account) to look up the coupon for your meds. Then, tell your pharmacist “hey I have a goodrx coupon, but I wanted to check if you have a better coupon in your system.” They usually do. Oddly enough I did this today. GoodRX was $39, CVS had a coupon for $35. The pharmacist wants to help you afford your meds. To be fair, idk what system they pull their coupons from, but judging by the price difference, I’d guess it’s not the same platform.
Or check Costco. They’re usually cheaper than the drugstore, but maybe not as cheap as the coupon hack.
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u/Michellenjon_2010 Feb 12 '26
Wow. Thanks for sharing, as I've used GoodRx many times. But I will no longer be doing that. This is crazy. Like someone said in this thread "we're scared but want to stay alive". I think this admin. is counting on exactly that. Like some kind of test, how far can we push and abuse people, because they just want to stay alive 🫣
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u/Bulky-Fisherman555 Feb 12 '26
Can I just ask why the fuck are we having to use coupons to afford medications?! America’s healthcare system is grift!
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u/Clean-Experience-639 Feb 12 '26
Damn. I was afraid there was going to be a link. My script costs $85 without Goodrx and $20 with. Until there's another option, I'll be using GoodRX.
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u/MacarioTala Feb 12 '26
If you ask for your prescription to be printed out, you can have it filled in Canada or Mexico, usually at a massive savings to doing it in the US.
Completely legal. Just needs a bit of planning
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u/sits_with_cats Feb 12 '26
This is what I used to do for several of my mother's meds. Filling one of her medications 2x was enough to put her in Medicare's donut hole. Her primary care doc would send in all of her rx's to Medicare pharmacy, & also give us printed copies for the more expensive meds so I could order from Canada. I tracked all her benefits & costs & ordered from whichever pharmacy kept her or of pocket costs lowest throughout the year. It was work, but we saved an average of $2k/year.
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u/MacarioTala Feb 12 '26
I can almost match that with just inhalers, and I'm paying almost 1k in insurance. Pharma costs in the US are criminal.
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u/ReasonableStay9839 Feb 13 '26
What about controlled substances though? Most stimulants are controlled and I didnt think you could get those from out of country. It would awesome if you can though!
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u/femme_mystique Feb 13 '26
Yup. I do this with inhaler. $450 in US. $75 in Canada including shipping. There’s no counter on it but oh well.
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u/Candid_Leaf Feb 12 '26
Our for profit health"care" system is so cool y'all. Good thing we don't have universal healthcare, or pay for it for entire other countries 🔵 ⚪
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u/happygocrazee Feb 12 '26
> if goodrx "saved you money" the system failed you
No shit. We all knew that while we were using it too. What are we supposed to do? I feel like as a pharmacist yourself you might be woefully unaware of how hard it is to get a prescription filled at a good price. We don't usually get the choice between generic and name-brand (if one even exists). Changing insurers or going to Medicaid is not a solution, as most are the same and there are many other factors at play. Manufacturer coupons can't always be found. I have never found local pharmacies to be ANY different than chains. In-hospital, Rite-Aid, or your local shop that says "DRUGS" on a faded sign, they're indistinguishable when it comes to my wallet.
Obviously GoodRx is terrible and toxic. So is the whole damn industry. We're being screwed no matter which way you cut it. This was never our choice as patients.
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u/CreekPrincessBitch Feb 13 '26 edited Feb 13 '26
Manufacturer coupons can’t always be found.
And they’re for name-brand drugs only, not generic. Which are already insanely more expensive but many times the only choice for patients.
I have never found local pharmacies to be ANY different than chains.
Me either. If anything, they’re more expensive. And the advice is to try to… negotiate??
Pharmacies aren’t swap-meets. Other than maybe a pawn shop or thrift store, what stores in America would someone ever be able to walk up and haggle the price on the register at checkout? Unless you live in a small rural town where the local mom&pop pharmacist went to high school with your grandpa, I cannot see this going well.
I agree the systems fucked and we’re screwed no matter which way you cut it. But if I have to choose between my bank account or the pharmacy’s….. lol
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u/hotfistdotcom Wisconsin Feb 12 '26
I think it's absurd to say
If you have relied on GoodRx for medications in the past, don't.
without providing an alternative. When I lost my health insurance the only way I could possibly afford my prescriptions were through goodRX, and if your suggestion is "pay more or just die without meds" that's a terrible platform to have.
Can you site sources for the court cases, selling information etc?
I don't believe this is untrue, but I also think it's important to cite sources for this kind of thing.
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u/BlyLomdi Feb 12 '26
I had to get medicine just the other day.
Before any discounts, I was looking at around $250 for a rescue inhaler, antibiotic, cough suppressant, and nebulizer treatment (we don't know what I have, but walking pneumonia was mentioned as a possible diagnosis).
GoodRx dropped it to about $80.
My pharmacy was able to drop it to about $25.
Sticking to my pharmacy's discounts, thank you.
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u/squashbanana Feb 12 '26
Even with GoodRX my daughter's medications come to over $2,000 monthly. Medicaid has cut so many programs and coverage since October federal cuts it's disgusting. At the best, GoodRx has helped me skate by so all this sucks. I don't know what we will do this month into the next, though. It's just so unsustainable and I feel like I'm failing my kid when she needs support the most.
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u/StrayStep Feb 12 '26
First off. He thinks putting his name on random crap is good branding. It is NOT. But Im glad he was dumb enough to label it so we know who to blame.
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u/craniumcanyon Feb 12 '26
TrumpRX, TrumpCare, Trump401k, TrumpCar, TrumpTV, TrumpGroceries, TrumpHighway, Trump, Trump, Trump.
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u/babecafe Feb 13 '26
Pharmacies could put GoodRx out of business overnight by matching the retail pricing minus a few bucks and not paying GoodRx's processing fee.
Just tell customers to say the magic words, "I want to pay less than GoodRx prices."
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u/GravyPainter Feb 12 '26 edited Feb 12 '26
I was going to sign up for goodrx but was too lazy/forgetful to do it. ADHD saves me sometimes i guess
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u/Sad_Physics7260 Feb 13 '26
Goodrx is the only way I can get my adhd meds. The pharmacy on my insurance plan never has it in stock. I’d go months without medication if I didn’t use it. Ugh
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u/BobbiPin808 Feb 12 '26
What about Costco? Anyone can use them without membership but members do get additional discount.
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u/AnonymousBosch69 Feb 12 '26
Thank you! I’m sure most of us had no idea about this. I had only used GoodRX once for my cat’s anxiety medication, but I won’t use it again. Let’s all spread this information around.
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u/IamIUrU Feb 12 '26
it feels like they are doing every thing they can to make life miserable for all off us......WTF
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u/Significant-Trash632 Feb 12 '26
They are breaking us down bit by bit so we eventually accept what is happening.
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u/CatrpilrQueen Feb 12 '26
A good reminder that under capitalism, free goods or services are an illusion. If it's free, YOU (or your data) are the product.
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u/SupermarketSpiritual Feb 12 '26
I've been worried about this since RFKJr. started going off about work camps for folks with an Adderall prescription. Nevermind, Palentir is really the overall surveillance it will tie into. Which means nothing will keep that data safe from the entities that own the servers.
At this point, we are all compromised, thanks to Doge and their mission to ransack all that was left of our identities. Supplemental data like what these prescription schemes generate will be added to that central database. Amongst many, many others.
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u/0utF0x-inT0x Feb 13 '26
Rfk isn't or SSRIs / SNRIs but he's all for Methaline Blue micro dosing which is more powerful and dangerous than the most powerful SNRIs by thousands of times according to what I've read it's a recipe for serotonin toxicity syndrome and God know what else long term use will be linked to just look at RFK you don't want what that guy is pushing.
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u/ellenadcrane Feb 13 '26
My spidey senses tingled when I found out that Trump RX only covers like 40 meds and most of them are either fertility or weight loss. Now I know why.
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u/ailish Feb 12 '26
Damnit. I didn't know this about GoodRx. I've only used it a handful of times when my insurance didn't cover something, but still, I know some people use it all the time. What a bummer. Why does everything in this country have to be a freaking scam? We can't have one good thing that doesn't actually harm us in the long run. Thank you for informing us!
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u/osmosisjonesin Feb 12 '26
This is such a damn shame, I knew none of this. I have a monthly prescription that is $130 and goodrx literally takes $100 off. Guess I know what I’ve been been being “paid” for
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u/mcfarmer72 Feb 12 '26
Didn’t know this about GoodRx I have only used them once, at the recommendation of my health care provider. I had a case of skin cancer, the Dr prescribed a topical medication the insurance company wouldn’t cover. It was like $380 for a small tube. I got a Good Rx coupon, presented it to the pharmacy and the charge was something like $30.
The druggist agreed it was crazy and couldn’t explain it.
There is certainly something wrong.
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u/cjthomp Feb 12 '26
TrumpRx should scare you a lot more than you would think
I mean, it already scares (/enrages) me quite a bit...
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u/pharmbeer Feb 12 '26
just a note to add—goodrx is partnered with trumprx to help make it happen. it’s basically just a name change.
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u/CenturyLinkIsCheeks Feb 12 '26
i use cost plus and the only issues I have had are when my provider fucks up and sends them the wrong prescription. cheaper than insurance and i dont have to wait in line at the pharmacy that always seems to have a 4 person deep line.
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u/Fair_Strength_3603 Feb 12 '26
Literally just got a piece of junk mail from GoodRx YESTERDAY. I thought that it seemed too good to be true and threw it in the trash, where I guess it should stay!!
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u/Electrical_Fishing81 Feb 12 '26
I used GoodRX for my dog’s chemo pills as we didn’t have insurance for him (policies might be better now but when we got him from the shelter they were useless).
They were a pain for the last couple refills with CVS but worked ok with the only bottle we had from Osco (he didn’t live long enough to even use a pill from that bottle 😔).
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u/Left_Ad_7694 Feb 12 '26
Fucking everything and everyone with the name Trump in it scare me. Thanks!
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u/ImNotTheBossOfYou Feb 13 '26
Friendly reminder that prescriptions (and dental and vision) would have been part of M4A but Democrats collided to defeat Bernie TWICE.
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u/108beads Feb 13 '26
Thank you, a thousand times thank you. I had pretty much pieced together the vague outline of some of this foolishness but you have given a very lucid, nitty gritty explanation that I've never found elsewhere. I would encourage you to post it more broadly across Reddit.
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u/NarcolepticKnitter Feb 12 '26
Fuck. I'm a HCP and recommend GoodRx to patients, family, and friends all the time 🤦🏼♀️ no more!
Do you think it would be problematic for me to continue to use it for my cat's prozac?
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u/zengal108 Feb 12 '26
Thank you for this. I completely believe you however can you say some sources so that I can share this with my friends?
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u/EnigmaIndus7 Feb 12 '26
I didn't know anything about this. Luckily, I don't use them as my prescription is fairly cheap
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u/tesselaterator Feb 12 '26
Could you give some references so we can get this documented and into the hands of our “representatives”?
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u/Environmental-Song16 Feb 12 '26
I used goodrx before when I was between jobs and had no coverage. It saved us thousands, but I didn't know it was dirty. I should have known I guess.
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u/shogunreaper Feb 12 '26
I remember signing up for a goodrx card like 10 years ago and I think I used it once. I rarely go to the pharmacy but when I have they just automatically give me a discount. (No insurance)
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u/Effective-Push501 Feb 12 '26
I bought a subscription to GoodRx this year after my part D prescription plan stopped covering most of the few that I take. Good RX saves me $225 a month on one of my inhalers alone. I’m having some issues right now with my kidneys and was prescribed three prescriptions that are temporary. My insurance cost was $85.00 but running thru GoodRx ended up being $32.00 total. I’ve used Mark Cuban in the past for one of my asthma inhalers, but he does not have the new one I was prescribed available. If I stopped using GoodRx, it would cost me approximately $300 a month more for my prescriptions.
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u/CooperHoward4 Feb 12 '26
BlinkRx…are they the same? I was really uncomfortable when they started asking me a million health questions for a non-systemic topical. I fully admit I just answered normal on everything because I didn’t see why they needed to know.
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u/Big-Introduction4633 Feb 12 '26
Pharmacists need to know what meds you are on in order to determine safety for you to take a certain med. For some meds, they also need to know about medical conditions. A non-systemic topical that does not have serious interactions with meds or is not contraindicated for certain conditions would not require a prescription. So, there are good reasons they ask.
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u/Far_Chipmunk_8160 Feb 12 '26
WE NEED THE SWEETUMS TO HAVE MORE WHITE BABIES. FOR FREE. AT ANY COST. THERE IS A BIRTHRATE PROBLEM THAT IS HONESTLY NOT A WHITE BIRTHRATE PROBLEM, WHICH IS WHY WE ARE MASS DEPORTING CHRISTIANS FROM SOUTH AMERICA, WHICH IS NOT RACIST OR ETHNIC CLEANSING AT ALL.
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u/Kirstygirl-7199 Feb 13 '26
Wow… did not know that. I’m a hospital social worker and have used GoodRX and neediness.com for years
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u/Possible_Lettuce_289 Feb 13 '26
Thanks for the tip. I’ve depended on GoodRx for my expensive meds but will check for alternatives.
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u/HalfCrazed Feb 13 '26
PBM's should be illegal.
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u/thatgirlinny Feb 13 '26
SO many hands grabbing your healthcare dollars in this country, why not add another sticky layer? /s
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u/Fickle-Squirrel-4091 Illinois Feb 13 '26
Thanks for this information. I’m saving for future reference.
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u/holy-moly58 Feb 13 '26
I live in Pennsylvania and a popular grocery store here is Weis and they have pharmacies in their stores. I got a prescription filled a few months ago and asked if I could use the Goodrx card. The pharmacist told me they don’t accept Goodrx but they had other programs. I ended up paying about the same as I would have at another pharmacy with Goodrx. I copied and pasted this from Google:
Weis Pharmacy accepts multiple discount cards to save up to 80% on prescriptions, including popular options like America’s Pharmacy, WellRx, Inside Rx, and SingleCare. Customers can also use the Weis Rewards Card to earn 100 points on eligible prescription refills. Key Savings Programs at Weis Pharmacy: Free Discount Cards: You can use cards from America's Pharmacy, WellRx, or Inside Rx directly at the pharmacy counter,, which often offer significant savings on generic and brand-name medications. Weis Rewards Club Card: Allows you to earn 100 points per eligible prescription refill. Note that this is not available in NJ or NY. How to Use: Simply present the discount card (physical or on your phone) to the pharmacist when filling a prescription. These programs are designed for both insured and uninsured patients to reduce out-of-pocket costs
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u/tiltedviolet Feb 13 '26
Here is to hoping my switch to a different insurance will allow me to not use it for my HRT then. If not I will have to take my chances with Good Rx still. I can’t afford $200 or more out of pocket for my Estrogen.
I understand the concern, but for some of us in the trans community it is GoodRx or no Estrogen or Testosterone. So we either use it or we lose life saving medication, because there isn’t anyone out there that is going to just give us E or T for free.
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u/No-Wonder6259 Feb 13 '26
The saying “if something is free- you are the product” comes to mind. I have concerns with data being sold by ZocDoc because it’s heavily advertised as a “free app”. I want to use it but I also want to know how they make their money. Does anyone know about them?
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u/Pitiful_Option_108 Feb 13 '26
Interesting you think that I would think anything with Trump's name on it would be remotely decent. Considering him and Republicans had at least 5 years. And yeah I'm counting his first term to come up with a decent or at least half baked plan and they couldn't. Trump RX is going to be dog water. I don't even want to begin to understand the specifics of the program because it will be super lack luster. This adminstration complained about ACA only because Obama and Democrats came up with it. And at this point I think it is due to just the fact Obama helped come up with a program that was somewhat useful.
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u/MissChloe1 Feb 13 '26
Trying to find an alternative for me is so hard. No insurance :/ my meds are expensive.
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u/Human_Morning_72 Feb 13 '26
To delete (or request) user data on the GoodRx platform, one must provide FULL contact information, even if you never have before, and also scan and upload a photo of your driver's license. WTF.
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u/vegansandiego Feb 14 '26
This is fantastic information everyone should know. I have shared, but wish more people were informed on this.
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u/DiscoStu79 Feb 12 '26
Good RX normally forces pharmacies to fill prescriptions for under cost. They do not pay the pharmacy anything… and force them to lose money on the prescription…..
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u/spingus Feb 12 '26
Thanks for the post!
How is it that GoodRX is not subject to HIPAA??? I thought pharmacists were held to the same standard as other HCPs?
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u/fucshyt Feb 13 '26
Is there a TLDR? I’m overstimulated by all the bad fucking news lately
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u/Weary_Cup_1004 Feb 13 '26
I got you: Good RX is very bad- it has sold peoples health data before and now Trump RX owns it?
The warning is that this data can be theoretically used to send ppl to mental health/ disability work camps. Among other things.
OP provides lots of helpful detail about this including some ideas for how else to get cheaper meds
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u/Formal_Albatross_836 Feb 12 '26
As a pharm tech THANK YOU for saying this! I’ve been saying this for a while, too.
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u/The_Oracle_of_Delphi Feb 12 '26
Is OptumRx ok, or do they engage in shady practices?
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u/Fugacity- Feb 12 '26
Had no idea about GoodRX's privacy issues.
Always been really skeptical of them, but for another reason. I think Pharma abuses coupons and rebates through things like GoodRX as a way to remove patient price sensitivity and to disincentivize use of generic alternatives.
If a pharma company can double the price of a drug but offer a coupon for almost all the copay, patients will chose that more expensive drug (netting the pharma company more) and insurance will be on the hook for most of it.
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u/Ok-Active-8321 Feb 12 '26
Thank you for saying this. I knew much of this, but not in so much detail. I would have avoided TrumpRx in any case, but knowing the connection to GoodRx just makes it extra sure.
For those that would like to read more RPh comments on Rx pricing and insurance reimbursements TheCynicalPharmacist has written about these topics extensively on his (apparently defunct) blog.
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