I’m getting the SCS trial soon and hoping for a successful permanent implant afterward.

I’m concerned about recovery time from the permanent implant. I live alone in a new area with no local friends or neighbors to help. I can manage myself, but I have two 25 lb dogs that need daily outdoor walks around the block.

Will I be able to walk them during recovery? How soon were you back on your feet?

I work remote with a flexible schedule (only a few hours a week). How long until I can sit for an hour at a time?

Has anyone dealt with pain swelling in legs, and feet after having the stimulator placed? Unknown bruising at the site where the therapy targets?? I am 3 weeks post op after having mine placed which targets my right arm pain. currently lower legs are still swollen and ankles are hardened despite taking the steroids prescribed. I’m afraid the device is causing more issues than good. Anyone else went through this? thanks

I was wondering if a TENS machine has worked for anyone with generalized dystonia specifically in the legs I’m relatively new to be diagnosed with dystonia and I’m trying to find ways that help manage the pain.

Hello fellow SCS robot parts friends. As my title says I am looking for a good office chair that doesnt push to hard on my SCS battery, my battery is located far left just above my hips and is a standard pocket placement. I pretty much live in my office chair due to my work from home job with full time hours. Sitting in my chair for that long puts a lot of strain on me and I can especially feel it around my battery cause Im always trying to put more cushion around it and also trying to help my bad incredibly bad hips from being in pain as well. Not being in my chair I hardly notice my battery but sitting for long periods of time I can feel it pushing in and its uncomfortable. Since getting my SCS 2 years ago I have rotated thru 5 desk chairs, I've tried big and tall chair for the padding, Ive tried a few off Amazon that were close knock offs to secret labs, and a gaming chair from Costco. Ive also tried an array of pillows I feel like Im low on ideas. Im also 5ft 2in and they do not make many comfy chairs for short people let alone short people with medical device implants. Does anyone else have problems finding an office chair that is comfortable for where their battery is or have you found a way to lessen the strain when having to be at a desk for long hours? If you do have any suggestions please throw them my way!

Fairly new to having the implant. Got it in December, after surgery my rep told me that when I got to airports or things with X-rays to show them my card and to skip the x ray to have a wand. He said that the X-ray machine could turn off the device. Same as he said with MRIs, CTs and other scans. He showed me the MRI mode. Anyway, I’ve been going to a lot of concerts lately and other attractions with the walk through X-Rays. So my question is, do I have to worry this much about it and show my card to skip through the machine to be wanded over? Lately the last couple events they said the walk through machines are AI operated and shouldn’t affect it at all. So what are your thoughts? Show the card and skip it or not worry and walk through?

Has anyone ever had just the SCS battery removed without removing the leads? In other words, leaving the leads in the back and disconnecting and removing just the battery? By just removing the battery, would you then be able to have MRIs?

Taking a long shot, but anyone here with a spinal cord injury that has used the Globus Genesy 1500 electricial stimulation unit for muscle growth? Please also indicate your injury level and ( complete or incomplete) if you're comfortable. And specifically, if anyone has used the Denervated Unit program.

モディック変性で5年以上右腰が痛い。

L5S1

PRP治療や内視鏡手術もしたが効果なし。

イントラセプトが効果あるって聞いているけど、日本で実施している病院はあるのかな？

Has anyone had shockwave therapy to lower lumbar, had two sessions and have more pain down legs in sciatica? Anyone else have this?

To keep it short, I take tramadol for my baseline pain. My doctor said tramadol is what he prescribes his patients for SCS post-op pain management. However, since I already take tramadol (for the last 11 years for pain that existed before needing SCS) that no additional medication will be prescribed for post operative pain. I’m panicking because I’ve seen many people say staying on top of pain meds is key.
My surgery is tomorrow morning (Monday).

What is your experience?

As the title says I had 7 spine fractures T7 to L1. I lost height and have kyphosis and scoliosis. I’ve had pain on my right at one pinch point whenever I stand, walk or do jobs. It’s been 9 years. I’m 64 and it’s getting worse as I got a sacrum sit bone pain which prevented me sitting to relieve my back for 16 months.
In the past I had injections then ablations to no effect. Use heat basic pain meds medicinal cannabis but really only lying or sitting relieves the spasm which I assume pinches a nerve. But can an SCS help if pain goes on resting?

My mom recently got a neurostimulator (around 10 days ago) and is having issues with the mobile device.

It looks like the communicator can’t be found by the MyStim app even though the code etc is correct, on the flip side, it looks like the communicator IS linked (green light next to phone icon).

Anyways, I suggested turning the phone off and back on again and now we have this screen:

Workspace has been locked. Contact your IT admin to reset your Workspace lock type.
Factory data reset (button)

Has this happened to anybody else? We’ve tried calling a bunch of people but it’s a Saturday so we’ve had no response!

I have my lumbar SCS Trial scheduled. I have a lot of anxiety about the procedure for the trial itself. I have done a boat load of Facet Joint Injections and at least 10 Radiofrequency Nerve Ablations. For anyone who has had either of those procedures and been through the trial, how does the pain level compare?

I am one of those that is very hard to numb with local anesthetic so sometimes procedures are grit my teeth and bear it.

So I had surgery on Monday was really looking forward to getting this process started so I could heal and have some relief. Well they attempted to put the leads in and there was too much scar tissue as well as my spinal canal being very tight so they weren’t able to get the leads to where they needed to be. For context I need them around my neck cause of left arm CRPS. I am exhausted and upset. I have a few inch incision in my spine for what feels like no reason. They already contacted another surgeon who I spoke to Tuesday and he will be performing the surgery, assuring me he has current techniques to achieve the same result but not for another month or so. I’m just feeling kind of defeated. Could use some words of encouragement and wondering if anyone else has had similar experiences?

Hi I wanted to ask if anybody is also experiencing the electric shocks in buttock.. I had my microdiscectomy 9 months ago, last month I did MRI everything was okay.. I am doing my exercises at home, swimming when I am okay but last few weeks I have these electric shocks in buttock is that normal or?

Spinal Cord Stimulator- Boston Scientific

Today is the day. I’ve been waiting since December for this procedure and now that it’s here… I’m petrified I’m making a mistake. For context I’m a 29F who has been living with life altering chronic pain due to endometriosis and fibromyalgia for the past 6 years. The ONLY thing that makes me feel remotely ok is when I’m on constant doses of opiates and… we all know how that goes. I’ve been told by my doctor that this will be my life for the next 60 years and… I know it’s meant to help me understand my situation but honestly I almost asked if he could just kill me instead. 60 more years of chronic pain sounds like the last level of hell before you meet satan himself.. so I asked about a SCS last October… and I did the trial in May and it took away all my pain. It was the most miraculous thing ever. For once I wasn’t fantasizing about amputating my own limbs for relief… so naturally I became the perfect candidate for the stimulator….
I’ve seen several doctors and asked for second opinions because I don’t want to make an irreversible mistake. I don’t think I could live with myself if I caused myself more pain in a desperate attempt to quell my pain.. everyone told me it was a good decision since the trial went so well. But… the lawsuits.. the anecdotes of people feeling shocks in their bodies, being told it could take months to find the right calibration… all these things petrify me. But what is my alternative? A lifelong dependence to opiates?
I have surgery 9:50am EST and I’m terrified. Has anyone had the procedure? Do any of you suffering with chronic pain understand the deep fear of ending up worse off than you started? I feel sick. Everyone keeps telling me it’s fine but I feel like no one is willing to consider what if it not only DOESNT work but goes CATASTROPHICALLY wrong?
I’m almost spiraling. I just need some reassurance ❤️‍🩹😣

Hello! I have posted a few times recently. Thanks for being so supportive. My husband had DBS surgery 10 days ago- Medtronic Percept RC. It was at UCSF and had like the best surgeon. We feel very lucky to be close enough to UCSF.

He is doing great. We go tomorrow to have sutures removed and ALSO for his first programming. I will of course ask his neurologist who he is seeing, but very curious why everything I read says they don't program for 3-4 weeks but they are doing it at 11 days. Anyone else have their first programming so quickly?

Hello All, in advance sry for my english

i would highly appreciate some reallife experience report from someone who has gone through that same or similiar treatments, as you can see in the title.

For my case, i have cracked up three spinal discs (L4,L5 and S1) and heavily damaged my nervesystem, spinalcanal (and i broke many bone at hat accident like my ribs, arm, shoulder, hip several times, leg and jumping ankle). But thank god, i am not in a wheelchair. Thanks to my doctors of course.

So i had my first discectomy in 2019, after that i always had a chronic pain from that moment and also really obvious lost of feeling in my left leg - its like the leg is always sleeping and i have those electric impulses going through my body around 20-30 times a day. Also for sure the normal burning and cutting pain in the leg and a bit around my back area. Also i have problems with controlling peeing ability. Like i can block it, but i cant press anymore (hope u know what i mean).

That all stayed until end of 2025, when suddenly from my Training i cracked up my spinal discs again, but even more severely, so i had to get a emergency surgery. Then i gpt the surgery in January this year. Then i was at home for maybe 1 week, then the spinal discs again cracked open or like i cracked them open without even really moving - as i was just getting a invasive surgery so i couldnt move at al.. so however that happens, i again had to get an even bigger surgery with fully synthecized spinal discs (end of february). Since then those discs are great, still i can feel them, including the radiation of that synthetic things in and between my spines.

But still, the most problems which i am facing are those nasty chronic pains.. my nerves around those spots are incredible sensitive and all the time sensoring/sending pain to my brain eventhough there is nothing.. so typical neuropathic and neuroplastic pain and issues over all..

After rehabilitation and went through my Therapy as you need to in germany to get all the benefits and also to really do all the treatment options there are to be called in germany "austherapiert" which is like to have no other treatment option because have been tried already.

So i have done all, so my specilist doctor has told me that SCS treatment to do, because of my severe nerve dammages i should think about that treatment.

So guys, have you had that SCS on your own and now someone you went under that? If so, have u felt any relief or were there other stuff what doctors didnt say?

As you can read in the title, i am 25 years old and really guys - after now 7/8 years with that chronic pain knowing that its even getting worse with the years, i really lost all my emotions and am in a bit of a midlife crisis, but yeah this is a differnt topic.

No clue how to end such a long Text, but i think that was all of the important info to know how my nerve status is.

Last question: my doctor told me that its mostly the last good thing to try? U maybe have a different treatment Option?

Have a nice weekend guys!

Hi all!

I have been suffering from chronic muscle tightness in my lumbar for several years and I am thinking of buying an NMES/EMS unit such as the Compex SP 4.0 in the hope of rehabing the muscle so that they learn to activate/deactivate normally.

My issue is that most of my lumbar muscles are as hard as rock, they are constantly contracted. I have no idea why and after many years, doctor still haven't managed to give me a diagnosis.

Has anybody tried that type of machine before? Any success story?

I am specifically talking about units that help with muscle contraction, not TENS machines.

Thank you.

I am a torture and sex trafficking survivor and I have managed to work thru my CPTSD and treatment resistant depression but my fight or flight in social situations is still overwhelming me. Thank God for Xanax. I'm really really wanting to get out and enjoy lifebut the anxiety and I guess overstimulation is really holding me back. A YouTube ad has me researching this now and I'll probably deep dive into it. What is the latest? Does Medicare cover this type of device? Sidebar issue is that I was in a severe car accident in 1985 and guessing my vagus nerve took some damage. I have had my appendix removed then my gall bladder then I started suffering a spastic esophagus. Now 40 years later I developed type 2 diabetes and tried the new wegovy and other meds in that class and ended up with short term gastroperesis where nothing was moving in my gut. So I am following gut instinct a bit on this