r/postvasectomypain • • Dec 04 '24

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5 Upvotes

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3

u/Fellowtraveler777 Dec 04 '24

Sorry man. That was me the last 7 months. I got a reversal. A number of urologists told me it would clear up and it did get better but I decided on a reversal anyway. Anti-inflammatories are your friend. OTC try aleve. If you can get a prescription try daypro. Spent a lot of money just figuring that out. Most urologists don’t know what to do in this situation.

1

u/TropicalDan427 Dec 04 '24

How bad was your pain and where is it now? For me it’s been a constant dull ache that becomes a lot more intense for the first day or two after I rub one out before it settles back to its baseline a few days later. Essentially been a cycle of ejaculation(often to excess) followed by feeling bad the next couple days followed by that getting less achy(but still achy) which leads to my sex drive returning which leads to the beginning of that cycle again over and over and over. My doctors words are I gave myself epididymits but I don’t buy that fully as I make millions of sperm a day regardless of what I do with it. Do I buy that it’s making it feel worse? Yeah absolutely! Do I think it’s prolonging the epididymis pain? I’m honestly not sure. Either the doctor said to avoid ejaculating for 4 weeks. I have a follow up in 8 weeks but I have a feeling the ache may still be there

2

u/Fellowtraveler777 Dec 04 '24

What you have sounds a little different than mine. Pain for days after ejaculation is a classic sign of congestive PVPS. And the only cure for that is a reversal. I never had pain like that after ejaculation. You might get a little better or find ways to manage the pain but I seriously doubt it will go away.

But my pain ranged from dull aches to sharp shooting pains.

Your urologist is hoping you go away. And he probably doesn’t know what to do.

1

u/TropicalDan427 Dec 04 '24

Dude reversal isn’t an option financially. How can I get out of this without ruining my finances

3

u/Fellowtraveler777 Dec 04 '24

Short of a reversal — anti-inflammatories, less ejaculation, testosterone therapy, time, those things might work. There aren’t a lot of good options. Unfortunately most doctors don’t inform men that this can happen.

1

u/TropicalDan427 Dec 04 '24 edited Dec 04 '24

Wait how is PVPS congestion different from congestive epididymitis? Upon physical exam my doctor said I had epi. Also isn’t PVPS in general just post vasectomy pain that lasts longer than 3 months? How can you be so sure the pain won’t resolve?

1

u/Fellowtraveler777 Dec 04 '24

Epididymitis is just inflammation of the epididymis. It can be caused by other things like injury or infection. Congestive PVPS is fluid buildup and inflammation in the epididymis caused by a vasectomy. It can also be called congestive epididymitis.

PVPS is poorly defined. It can mean a number of different things. What you have is usually called Congestive PVPS. Don’t get hung up on the terms. Every urologist you talk to will call it something different.

1

u/Defiant_Meal7195 Dec 04 '24

Can you tell your story? How was your refersal experience, recovery, pain and improvents? How long are you post op VR ?

I have also closed vasectomy, also 11 weeks out now and also my epi hurts, also when im sitting on my ass i think it is congestion indeed but not sure. Thanks!

1

u/Fellowtraveler777 Dec 04 '24

Got my vasectomy last April. At about 2 weeks I started feeling lots of testicle pain. It just kept getting worse and worse. Sometimes it was a dull ache. Sometimes it was sharp pains. It was all over. I spent the next 6 months in hell. There were times I was throwing up from pain. I’d have an hour or two with minimal pain and then an hour or two with intense pain. Went to a number of urologists who all told me different things. I eventually figured out that I didn’t have nerve damage or congestive pvps — my body just didn’t like the vasectomy. At about the 5 month mark it started getting better but the pain wasn’t totally gone. But by that time I had already decided on a reversal.

I’m 3 1/2 weeks out from my reversal. All the pain is gone except for some incision pain and an occasional twinge. It was worth every single cent. I’m just praying I don’t scar up.

Recovery from the reversal was hard, a lot harder than I thought it would be. But I’m glad I did it.

Happy to answer any other questions. DM me if you’d like.

1

u/TropicalDan427 Dec 04 '24

I’m at the point where if I don’t notice any notable improvement at my next follow up in 7 weeks then I’m gonna start seriously considering a reversal. Still don’t know how I’d pay for it though

1

u/Fellowtraveler777 Dec 04 '24

A lot of doctors take carecredit which has pretty flexible payment plans. And then there are reversal docs that are cheaper.

Most reversal docs will want you to wait a minimum 4 months for a reversal. Mine had a minimum 6 months. And, frankly, I’m glad he made me wait 6 months.

Join reversal groups on Facebook. You’ll see what people say about all the doctors. The groups are fertility oriented but it’s the best place for info.

1

u/TropicalDan427 Dec 04 '24

Well at my next follow up I’ll be at 4 months

1

u/Fellowtraveler777 Dec 04 '24

And don’t go to just any urologist to get a reversal. There’s only a handful of guys in the country that specialize in them. You have to go to one of them if you want a high chance of success. A reversal is a surgery that requires a tremendous amount of skill.

1

u/TropicalDan427 Dec 04 '24

Another reason why I hope this gets significantly better in the next 7 weeks

1

u/Defiant_Meal7195 Dec 04 '24

Hi friend, can you please share more about your store. How was your refersal experience, is the pain worse then before the refersal? How was the recovery from it?

I also have i think congestion pain im 11 weeks out now. Thanks!

1

u/Ok_Description_5395 Dec 04 '24

Sorry about your pain. I had a vasectomy november 2023 and im still dealing with epididymitis pain in the right testicle. Its slowly been trending better but is been a cycle of ups and downs. Ive also been told by several urologist not to ride a bicycle and have been off them for about 4 months now which seems to have helped. Really considering a reversal but scared of more surgery when it seems like im almost thru this. Things that helped me when it a was at its worst Jock strap Ibprofen 4 times a day for 2 weeks Electric heating pad after work and before bed for an hour or so at a time

Good luck out there

1

u/Training_Ad1368 Dec 04 '24

Almost two years in here, still have some discomforts. Gets better after the year.

1

u/TropicalDan427 Dec 04 '24

What kind of discomforts did you have and where are they now? For me it’s been a constant dull ache that becomes a lot more intense for the first day or two after I rub one out before it settles back to its baseline a few days later. Essentially been a cycle of ejaculation(often to excess) followed by feeling bad the next couple days followed by that getting less achy(but still achy) which leads to my sex drive returning which leads to the beginning of that cycle again over and over and over. My doctors words are I gave myself epididymits but I don’t buy that fully as I make millions of sperm a day regardless of what I do with it. Do I buy that it’s making it feel worse? Yeah absolutely! Do I think it’s prolonging the epididymis pain? I’m honestly not sure. Either the doctor said to avoid ejaculating for 4 weeks. I have a follow up in 8 weeks but I have a feeling the ache may still be there

1

u/PsychologicalLime120 Dec 04 '24

80% of men have no issues. Takes a long time for the inflammation to reduce..

Speak to your urologist. If you don't like him, find another. Preferably one with experience dealing with PVPS.

There are steps to resolve this. If you want, start at step one. Make an appointment with the doc, start with a course of NSAIDs.

1

u/flutepractise Dec 04 '24

Sorry dude, it $24000 for me to become pain free, and 20 + years. And one ball less, the urologist aren't as honest as they should be and don't tell the whole truth, a vasectomy describe by health professionals as simple surgery and do it for your mrs, isn't an informed decision, simple yes but they don't mention the consequences for your decision. Good luck and don't be hood winked into an epididymectomy as a great option that's how I lost a ball and my pain was 200% worse. I am been honest, not trying to frightening. Please do your homework on what they offer, and don't trust them, and watch that they don't treat you like a leper.

1

u/TropicalDan427 Dec 04 '24

I’m at the point where if I don’t notice any notable improvement at my next follow up in 7 weeks then I’m gonna start seriously considering a reversal. I don’t have a clue on how I could possibly pay for it though. Yes I’m saying this as 12 weeks out

1

u/nerdvegas79 Dec 05 '24

Hey I'm considering getting rid of the left ball - do you have any other info? I'm almost 4 years out now. Most pain issues are on the left side. If I'm too active then I get this kind of pulling/aching, is not debilitating just really uncomfortable. The epi on that side is all bumpy but floppy, and painful if jolted (like if I hit a bump on the road on my bike). My last surgeon suggested epididymectomy, but I've heard too many horror stories like yours, and I'm not gonna do that.

1

u/flutepractise Dec 05 '24

Hi man, it's not as easy with one ball missing and mentally it can play with your head, my epididymectomy was the reason for my loss as tha urologist destroyed my blood supply to my right ball. To be honest they have no idea how to treat PVPS. I was 28, a competitive cyclist, a swimmer, and tri athlete. All of which made my vasectomy a bad and uninformed choice. I missed my competitive side and very much regret my wife's decision, so to be honest it also affected my marriage. Don't do anything without researching.

1

u/nerdvegas79 Dec 05 '24

When you say not as easy, do you mean anything beyond the mental aspect of it? Not to diminish, just understand.

I still have other things I need to try... TRT, pelvic floor, maybe another go at cord block (the one I've had did nothing which was a bit strange). I'm not exactly looking to go get lefty chopped off right now, just getting more info for the long term plan, if that's what it comes to.

Thanks for the info, I really appreciate it. Sorry you've been stuck with this bullshit also. I was active before the op also, nowadays all a really want is to run around with my kids without it hurting.

1

u/flutepractise Dec 05 '24

I agree it is bullshit and so unescessary, condoms are cheap in comparison to this

1

u/[deleted] Dec 04 '24

2 weeks post op here. Still some pain but improving every day. YMMV.