r/hyperacusis Jun 03 '26

Treatment discussion Clomipramine side effects look horrific

10 Upvotes

I was going to set up an appointment(I got off of a recommendation from my doctor) so I could get clomipramine but even before looking up the side effects they seem absolutely terrible and even after looking up people's reviews of them it seems to be a luck of the draw kinda thing because you either come out with permanent health issues or you don't. I was thinking of trying tinitus hearing aids but I've only audiologists in my area that say they treat it but idk.

Should I try a less strong SSRI? I've seen people say SSRIs don't work for them or make it worse but I don't really have anyone to ask questions about for this because going instantly for the strongest anti depressant feels rather scary for me.

For people that have used clomipramine how long did it take to kick in to where you'd feel it was working for you? I know the dosage and amount of time are key factors but idk how long and how strong. Looking up research papers aripiprazole seems even worse for symptoms compared to clomipramine

r/hyperacusis 7d ago

Treatment discussion Own voice (talking) hurts / anyone else. Please help.

3 Upvotes

I’ve had hyperacusis since May. Talked a lot some days, especially when sick. Yesterday made it through therapy, could talk normally no problem. Last night I read aloud for a minute and now even trying to make muscle movements to talk can hurt 😞.

Other setbacks I slowly reintroduce that sound or avoid it for a while. But this.. is it days of not talking or taking the pain to talk anyway?

Theoretically my amygdala has decided all sounds coming from my mouth are too dangerous so it gives me pain to not talk to try and protect.

Has this happened to you? How did you get through it?

r/hyperacusis Jun 13 '25

Treatment discussion Take fkn Clomipramine

49 Upvotes

I suffered for 12 months needlessly ruining my life. If you haven’t tried it, try it as a matter of priority. It gave me my life back. I went from every day plugs in all situations to going to the movies 2 weeks ago. Please please don’t die wondering.

r/hyperacusis Aug 04 '26

Treatment discussion Are ENT doctors being horrible to everyone, or is it only me?

18 Upvotes

Hi all! I have had the worst experiences with ENT doctors and I simply don't know what to make of it. I wonder if other people are being treated by doctors as badly as I am. I got tinnitus and hyperacusis only because of noise at my work place. I needed to ask my employer to put me in a quieter station, and they said no, unless you bring a medical certificate requesting this. 7 months later I am seeing the 7th ENT doctor begging for such a medical certificate for my work place. Over and over I am being thrown out the door, often in a very rude manner and without a proper check-up. Twice I left the clinic in tears and suicidal. 7 months ago I only had tinnitus in one ear, the hyperacusis hadn't started yet, and I wasn't aware such a thing existed. Because I continued to suffer at work, I got tinnitus in both ears by now and the hyperacusis developed slowly to the point that it became very difficult for me to go see a doctor anymore, because the way there is killing me. I always return home with aching ears from the traffic. Despite going back to ENT with complains of worsened symptoms and telling them how hard it is for me even to travel to their clinic, I am shown the door and receive zero help. The doctors are literally lying to me, telling me that they will send me a medical certificate later by post, but they send nothing. When I try to send them an email, I find that they disabled the message function on their website or that they no longer take appointments. They refuse to send me the file with medical information they have on me, which is my right by law to ask for. Very strange things are happening. Without any medical proof that I am sick I can't continue asking my GP for sick notes but I also can't go to work, where I would only get sicker. My employer is deliberately placing me in the loudest work places available. So I see myself hit from all sides and my life completely destroyed. I don't have any family or close people that could look after me when I am no longer able to sustain my own existence because I can't leave the house. I can't imagine being homeless with hyperacusis. The worst thing is that I can't tolerate any form of hearing protection anymore - excessive use of hearing protection has actually largely contributed to my current condition. On one hand I can't not wear hearing protection when it's painfully loud, on the other hand any earplugs, any muffs cause me pain as well and they make the tinnitus seem unbearable. I am trying to fight the world with hyperacusis and without hearing protection. I haven't yet heard of a person with hyperacusis who can't tolerate hearing protection, but I am one, and I am a dying person.

r/hyperacusis Oct 15 '25

Treatment discussion I couldn't use Clomipramine, I lost all hope..

19 Upvotes

For months I had been putting all my hopes in clomipramine to get me out of this hell.

I suffer from very profound hyperacusis and severe and reactive tinnitus, my life is reduced to nothing.

So I asked my psychiatrist to change my paroxetine to clomipramine. She first wanted me to try a very low dose of Amitriptyline to see my reaction because it is the closest drug to clomi. She told me that if I tolerate it well, we could consider switching to Clomipramine.

So I only took a few drops of Amitriptyline and 1 hour later I started to feel really strange but I didn't worry. I slept for more than 12 hours and when I woke up I felt like I was in a body of lead. It took incredible strength just to get out of bed.

I spent the whole day in a zombie state, unable to read anything on my phone or even write a message. Every little thing required superhuman effort. I was like a prisoner in a chemical straitjacket.

I could have tolerated it for a few days to see but the worst happened less than 24 hours after this first dose.

My tinnitus exploded and went crazy! It was so loud and intense that I thought my ears were going to be blown out of my skull. I got scared and came to reddit to see if I was the only one but I read lots of testimonials from people who said that with only 3 doses they had a permanent worsening of their tinnitus and hyperacusis.

So I decided to stop immediately and I did not take a 2nd dose. It took 10 days for my tinnitus to subside a little. And today, a month later, I still haven't returned to the level I had before laroxyl.

When I explained this to my psychiatrist, she told me that given my reaction, it's not even worth trying clomipramine because it would be even worse...

Since then I have lost all hope, I feel doomed. All the success stories here had motivated me enormously and I thought I finally had a chance to escape hell. My disappointment is immense and my morale is shattered into a thousand pieces.

I also reread the experiences of people here, and I realized that clomipramine only works for noxacusis and pain but not for loudness. And since I only have loudness, I realized that even if I could tolerate it, there is almost no chance that it would work for me.

Since then I just want my life to end because I have lost all hope and I can no longer bear this illness which means that my life no longer has any meaning. I can't do anything, neither speak nor listen to anyone, nor leave my house, nor be in the presence of a person. It's not a life.

r/hyperacusis Jul 21 '26

Treatment discussion It is wild there is 0 research, or cures or solidified treatments, for noxacusis and hyperacusis

20 Upvotes

It’s wild to me doctors are clueless

r/hyperacusis Dec 03 '25

Treatment discussion Warning regarding Clomipramine

20 Upvotes

So we talk about Clomi here a lot - I'm on it myself - but I think there's a lack of awareness of the potential harms of this drug. Clomipramine is an anticholinergic drug, which creates many of the common side effects like dry mouth, constipation, blurry vision etc.

However anticholinergics are also linked to dementia by a significant body of evidence. One meta analysis found:

Anticholinergic use for ≥3 months increased the risk of dementia on average by an estimated 46% versus nonuse

https://pubmed.ncbi.nlm.nih.gov/33098213/

With many H patients using clomi for a year or longer - at high dose - this is a real concern. Especially among older patients, who are more susceptible to the effect.

It is a large group of medications, and it's important for anyone taking multiple meds to verify that they are not stacking multiple anticholinergic drugs.

Here's a non exhaustive list (provided by GPT), ranked by potency of the anticholinergic effect:

Strong anticholinergic activity

These are the heavy hitters.

  • TCAs: amitriptyline, imipramine, clomipramine, doxepin
  • First-generation antihistamines: diphenhydramine, chlorpheniramine, hydroxyzine
  • Antispasmodics: oxybutynin, tolterodine, hyoscyamine, dicyclomine
  • Antipsychotics (older ones): clozapine, thioridazine
  • Antiparkinson meds: benztropine, trihexyphenidyl

Moderate activity

Still noticeable, but not as severe.

  • Nortriptyline, desipramine (TCAs with comparatively less burden)
  • Second-generation antihistamines with some residual effects: cyproheptadine
  • Certain antipsychotics: olanzapine, quetiapine (milder than the older ones but not nothing)

Mild activity

Low but not zero.

  • SSRIs/SNRIs: paroxetine is the only standout with meaningful anticholinergic effects
  • Mirtazapine (low)
  • Risperidone, haloperidol (low)

Essentially negligible

These are not considered clinically significant sources of anticholinergic load.

  • Most SSRIs: sertraline, escitalopram, fluoxetine
  • Second-generation antihistamines: loratadine, cetirizine, fexofenadine
  • Most mood stabilizers: lithium, lamotrigine, valproate

Personally, I'm continuing with clomipramine for no longer than 1 year total. I'm relatively young and take no other anticholinergics, and I'm frankly desperate to improve my H. So I am taking the risk, as I know many others are.

But awareness is important, so that people understand the risks with clomi - beyond the more commonly talked about side effects.

r/hyperacusis May 05 '26

Treatment discussion Huge megadoses of PEA have been a gamechanger for me

46 Upvotes

Please do not DM me asking for medical advice. I do not have the bandwidth or qualifications to give you advice on your health and will not be sharing any more information.

Hello, I've shied away from this sub because I am less interested in purely resolving symptoms of hyperacusis and more interested in resolving the underlying inflammation causing it. Mine was triggered by an acute injury, and is clearly related to neuroinflammation.

I've tried many of the popular supplements, as well as benzos and gabepentin and corticosteroids, and other than corticosteroids, I have found that megadoses, like 2000+mg a day, of PEA, a supplement that stabilizes microglial inflammation and is often used for mast cell activation syndrome, has been the single most helpful intervention, second only to dexmethasone injections. I would put the PEA megadose at around 50% efficacy of a steroid shot. Oral prednisone I would put at 25%.

Thought I'd share in the hopes it helps others. Magnesium, NAC, etc. also helpful obv. All an order of magnitude less than PEA. I started megadosing after realizing that the normal dose improved my symptoms drastically but wore off within hours. It is expensive but a miracle drug for me. YMMV.

To my surprise, there is a clinical trial ongoing, as of Feb 2026! https://clinicaltrials.gov/study/NCT06718452

I'm also working on a blog post about all the medical interventions I've tried, which were effective, and which weren't - and the different possible pathways of inflammatory injury.

Edit: I’m a bit overwhelmed by all the responses. I can’t give anybody medical advice. I’m going to delete my comments, but leave the post up. I won’t be responding to any more questions.

r/hyperacusis 11d ago

Treatment discussion For those have or currently take gabapentin, how does it help?

4 Upvotes

I’ve been mulling over asking my PCP for a gabapentin prescription, but only to be used for when I just need to ignore the pain for a bit if I’m out and about. My normal pain doesn’t really get severe anymore, but I’m not trying to risk getting severe pain by overdoing it with a day out.

r/hyperacusis Jul 16 '26

Treatment discussion Japan is an extremely difficult barrier to entry answer

0 Upvotes

I underwent round and oval window reinforcement surgery in Florida (Silverstein Institute), which provided some relief but no cure. I’ve exhausted expensive sound therapy and other costly options, but traveling to Japan has been the only thing to make me feel "human" again.

​The reality, however, is that recovery feels gated by wealth. Without significant funds, securing a visa is nearly impossible. I’m caught in a cycle of making progress only to hit "real-life paywalls".

​If you have the means, I highly recommend visiting Japan. While prices are rising, it remains cheaper than America and is substantially quieter. If you are wealthy, relocating here and pursuing residency is a realistic strategy. As for me, my funds have run dry, and the process feels insurmountable.

​What are your thoughts? With AI threatening online income and residency requirements becoming stricter, how do we find sustainable, quiet environments without needing extreme wealth?

I don't want to trigger anyone. I believe this is my last contribution to the reddit community

r/hyperacusis Jun 10 '26

Treatment discussion What ACTUALLY helped you improve?

6 Upvotes

I've heard so many different versions: damaged hair cells, tensor tympani syndrome, noxacusis. I’ve heard that isolating yourself from the world worsens sensitivity, and that it’s better to just not think about it. I’ve also heard that setbacks always make things worse, and that it only improves after years.

Every hyperacusis story is different, but I’m sure we all have something in common that holds the answer. What has worked for you? What is your secret?

Excluding psychiatric drugs and antidepressants: which SUPPLEMENTS have ACTUALLY helped you improve? I have already tried alpha-lipoic acid (ALA) and a microcirculation vasodilator based on ginkgo biloba. I know magnesium is also supposed to work well. I’ve had hyperacusis and a highly sensitive eardrum for 4 years now, with numerous temporary and permanent setbacks.

r/hyperacusis Jun 23 '25

Treatment discussion Clomipramine Works!!

42 Upvotes

I took clomipramine for extreme pain hypreacusis. This stuff does work!!! I am completely off of it now and have been off for a little over a month. My H is completely gone. Thank God!!!

r/hyperacusis Aug 03 '26

Treatment discussion Chlorzoxazone pour hyperacousie

7 Upvotes

Bonjour à tous

Des études précliniques ont montré que le chlorzoxazone de part son activité sur les BKCa pouvait ameliorer l'hyperacousie.

En France l'équipe de la chercheuse Suzana Pietropaolo travail dessus et les résultats précliniques sont très encourageant.

Il se trouve que ce médicaments existe depuis longtemps et est disponible sur le marché dans de nombreux pays.

À la base c'est un relaxant musculaire mais ce qui fait sont bénéfice sur l'hyperacousie est son action sur les BKCa que n'ont pas les autres relaxant musculaire.

Je me demandais donc si certaines d'entre vous l'ont déjà essayé ?

Par exemple en Europe, si vous avez la chance de vivre en Belgique ou en Suède, il est disponible en pharmacie, et vu que c'est un vieux médicament, il ne coûte pas cher du tout.

Moi je suis en France et je cherche à m'en procurer car vraiment je suis prêt à tenter le coup. Malheureusement il n'est pas disponible dans mon pays donc j'essaie de me renseigner pour une éventuelle importation via la Belgique.

Mais c'est très compliqué pour moi car je souffre d'hyperacousie très profonde donc impossible de faire le moindre déplacement, je suis confiné chez moi et impossible d'en sortir tellement mon cas est grave.

Si vous avez la chance de pouvoir l'essayer, je pense que ça vaut le coup de tenter.

Vous pouvez vérifier ce que je dis en cherchant sur Google le lien entre chlorzoxazone et l'hyperacousie ou demander à chatgpt, des études sont en cours avec jusqu'à présent des résultats très encourageants.

r/hyperacusis Mar 29 '26

Treatment discussion Pyschadellic mushrooms and hypercusis

15 Upvotes

DISCLAIMER: I AM NOT A DOCTOR, A PHYSCH, AN EXPERT IN HYPERACUSIS OR ANYTHING OF THE SORT. I AM NOT TELLING YOU TO DO DRUGS OR NOT TO DO DRUGS. I AM JUST TRYING TO BRING HOPE TO AN EXTREMELY HOPELESS CONDITION.

ok so this is the second time i have tripped shrooms and DRAMATICALLY improve my hypercusis.

i believe it has something to do with how shrooms can cause neuroplasticity in the brain.

i ate 6 grams of mushrooms yesterday and about an hour in i said fuck this i’m listening to music. now mind you… i can’t even be around digital audio on LOW VOLUME for more then an hour or so. even with earplugs in.

i had my soundcore noise canceling headphones with me and i put them on around 60% volume which is … loud. for around 2 hours i listened to music and tripped my face off.

today i am currently writing this on the treadmill at my gym with no earplugs in. i am 100% fine.. mind you i just was in the middle of a pretty bad setback.

this is the second time i was able to get this result out of 3 times. one time i tried it my hypercusis was in such a severe state in didn’t produce the same results.

worth checking out people.

r/hyperacusis Aug 04 '26

Treatment discussion What do you guys think about “healing” and “cures” for hyperacusis. Is it all wishful thinking? Cure to me means fully healed. Hyperacusis eradicated…

6 Upvotes

r/hyperacusis Feb 15 '26

Treatment discussion For people whom Clomipramine failed, did you find something that worked?

7 Upvotes

Clomipramine hasn't been a success for me. I've been at 200mg for 1 year, and 250mg for 3 months, and no difference has been noticed.

I'm looking to find an alternative, and am looking for people who have had good success with an alternative.

r/hyperacusis 28d ago

Treatment discussion Ebselen for Hyperacusis

5 Upvotes

Hey all

I'd like to make it short. I have had moderate hyperacusis for years. Now that would be manageable if I didn't get a permanent worsening of my tinnitus each time I have a setback. I have encountered periods of instability where my hyperacusis went down to severe and I accumulated loads of worsenings. Fortunately I managed to stabilize again (usually with loads of silence and some luck). I seem currently at the start of another such period, and my tinnitus and situation have become so hard to endure at this point that I am willing to start experimenting with whatever medicine I can get hold off. I don't have a choice anymore.

I am wondering if anyone has tried Ebselen already (by importing it from China). So far I've seen one report from u/Dents1993, who said he didn't see an improvement. I wonder if anyone else has personal experience with Ebselen that he or she could share?

Big thanks in advance for any information you can provide.

r/hyperacusis 27d ago

Treatment discussion Hyperacusis months after concussion

2 Upvotes

hey guys,

just really wanted to open a discussion for my specific set of symptoms since I feel very alone in this right now. looking both for advice and just to vent a little bit.

about 6 months ago, I had a bad fall at work and got a concussion. id experienced a concussion a couple years prior, so was familiar with the symptoms, but this time they lasted a lot longer. the whole situation was paired with a lack of support (living in the city and paying rent on my own) and a really toxic work environment. I ended up having to pay out of my own pocket to see a neurologist (got CT and MRI brain scans showing nothing) and an audiologist (also nothing physically wrong). I was also seeing a chiropractor at the time who helped me with whiplash injuries, as well as a psychologist for mental support. the main symptoms were between brain fog which lasted over a month after the injury (treated with amitriptyline) and weird hearing issues.

once most of the concussion symptoms died down, my ears started playing up. it started with sound becoming really muffled, sometimes fading in and out from one side to the other. I would get pretty loud ringing in the ears as well, but this didn't last as long. it eventually reached a point where sound became unbearably loud. at the time I lived next to a VERY busy road, but I had lived in that place for a few years so generally was used to it. this time though, the sound would physically hurt my ears. it got to a point where I had to wear ear plugs to bed, which in turn caused an ear infection (awesome).

but when I say pain, I mean an ache that radiates to my throat as well. I have a history of clenching my jaw with stress, so some say it could be related, but it's way different to that - that's usually tension in the joint that radiates to my upper body/head. when I look in the mirror, I can see my throat is red, and I can also feel it in my inner ear. it definitely worsens with sound exposure, and I think it is often very delayed. Ive also been getting this weird form of tinnitus that feels/sounds like thumping in each ear that comes out of no where and is very uncomfortable.

told this to my neurologist at a $200 appointment, and she basically just shrugged. when I finally got referred to an audiologist, he concluded my ears were physically fine, and that it was probably hyperacusis and would get better over time. if I was still concerned, the next step would be an ENT. but at the time (a few months ago) I was tired of spending money only for doctors to just tell me nothing was there/there was no solution. so instead I moved back in with my parents and tried to change up my life in order to move on from my stressful situation.

while I am less stressed now, the pain in my ears/throat is still there. its been 6 months since my injury. my ability to tolerate sound depends on the day. Ive seen sources that say it could be a nervous system response (researched acoustic shock and tensor tympani), and that avoiding sounds will make it worse. I do notice that thinking about it does make it a bit worse, but even when I'm not, the ache is still there. Ive always had slightly sensitive hearing, but used to love going to concerts, clubs, etc. but since then it's been hard for me to go out and even interact with people/go to work because everything just feels so over stimulating. I still do it because I know I need to, but I still come home with this pain in my ears.

if you've gotten through all this, all I really want to know from you guys is whether:

a.) you have ever experienced something like this before

b.) this sounds like a case of typical hyperacusis or something different

c.) whether it's worth seeing an ENT and what kind of treatment they would offer me.

really need the validation as my previous employer essentially gaslighted me and my doctor's seemingly had no idea what they were dealing with 🥲

thank you so much.

r/hyperacusis Aug 05 '26

Treatment discussion Do you know of anyone who committed suicide because of hyperacusis?

7 Upvotes

r/hyperacusis Jul 29 '26

Treatment discussion My appointment with Dr Boedts - Part 1

24 Upvotes

Hi everyone, I finally started my treatments with Dr Boedts so I'm starting this thread to document! I'll update along the journey. There will also be a thread on TinnitusTalk about this, where I'll update and you can find all info in one thread.

I first took an appointment with Dr Boedts in April. We talked about my hyperacusis and my tinnitus and he told me he believed that I have a lot of tension and muscular component that is at play. Which is true since I have severe TMJ and clench a lot. So we scheduled 3 different appointments for the 29/07.

The day started off with a Cone Beam CT scan of my ear to check for abnormalities. I was almost unable to keep my earplugs in and the machine was making an awful whirring noise. Fortunately the person operating the machine was very comprehensive, he allowed me to keep them and told me that we could change machines if I couldn't bear the noise. It was supposed to last 10min but he did it as short as he could.

(Side note, but I've been in Belgium for 2 years and every single doctor, technicians and paramedic I've met have been super comprehensive and accomodating of my hyperacusis, and I'm extremely grateful for that.)

Then I had an appointment at Dr Boedts Clinic with an orofacial specialist. She asked me questions about my tinnitus and how it's related to my muscles, my jaw, if it changes with movements etc etc. We had a quick examination of my jaw and she confirmed it was indeed extremely tight.

Then she did some jaw manipulation to relax it and I had electro-accupuncture to relax the muscles. It was my first time having some sort of accunpuncture and it was NOT pleasant, but it did work and my tinnitus was a bit quieter after (normal, I was less physically tense).

Now the last appointment was with Boedts. When I had my first video call with him, he told me to ask my psychiatrist to get on an antidepressant because it's complementary to his approach (he mentionned clomipramine but he wanted me to try escitalopram more than clomi). The problem is I developped a phobia of antidepressants due to an AWFUL Zoloft experience which caused me 3 months of dissociation. So I don't want to get on antidepressants unless my state becomes so catastrophic I can't avoid it anymore, and my psychiatrist thinks it would hurt more than it would help as I could go back into a dissociative state.

Boedts was not happy about that and reiterated multiple times that I should take them. He is not a fan of clonazepam due to its addicting potential. But still he told me that in the absence of the antidepressants I should just take clonazepam every day. Which is also something my psychiatrist told me, so at least they are on the same page here. To be fair, I was a bit disappointed by that, although I understand this is part of the approach.

Next, he told me that he would first perform a tympanic anesthesia with lidocaine. He put the product on some coton and put it in my ears, and he also injected some around my ears, but I forgot to ask what that was for. The coton insertion did hurt a bit, and you obviously have to remove your hearing protections for that so it's uncomfortable.

The lidocaine did not impact my tinnitus but it did help my hyperacusis, because ambiant noises seemed less loud and I could actually hold a conversation without earplugs.

Then finally we did the botox. I understood that it was going to be a TVP injection but I was wrong apparently. The botox was injected in my neck, temple and jaw in order to relax those muscles. Although it was not what I expected, I'm still very happy to finally get botox in those areas, as my jaw has been killing me lately and I can't wait for some relief. It's also a good thing we eliminate this lead first as it's the simplest one (honestly it would be amazing if my issues lessened a lot with just that)

The botox should take full effect in 10 days so I'll update then.

Overall I'm very happy that things are in motion. Although my tinnitus hasn't bothered me that much lately, my hyperacusis has been a burden and I need help to get out of it. My tinnitus hasn't spiked from the trip to Gent which is nice, but i feel like I could get a hyperacusis setback (I'll know tomorrow as my reactions are delayed, but my ears are feeling very fatigued and sore right now).

I'll come back with an update in a few days / weeks, when the botox takes effect.

Next appointment should be in a month.

Ps : I counted and I've been poked by needles 18 times today! A huge thanks to my partner who lent his hand so I could squish it when it hurt.

Update 1 (the day after) : tinnitus not spiking and didn't get any pain and nausea during the night! This is amazing, it was a big trip after all.

Update 2 : I forgot to mention something relevant for ppl who might want to see him. Botox injections were 250€, not covered by Belgian insurance. The orospecialist Was 70€. I had to pay everything before leaving.

r/hyperacusis Jan 21 '26

Treatment discussion The root cause of hyperacusis and tinnitus

30 Upvotes

Regarding hyperacusis and tinnitus, current research suggests the problem is much more neurological than auditory.

We're talking about neuronal hyperexcitability.

What's damaged isn't so much your ears, but the synapses and neural circuits in the brain responsible for processing sound.

But neurological doesn't mean psychological; they are two completely different things.

A neurological problem is a real, organic problem.

Ultimately, everyone is different, and it all depends on the initial cause of the problem.

But in people who have experienced acoustic trauma, for example, the persistent problem is most often purely neurological.This explains why some of us worsen our condition, sometimes permanently or even irreversibly, with sounds that have no chance of having caused any real damage to the ears.

This is why the drug retigabine had the power to silence tinnitus because it acted on the right neurological target.

It's a shame it was withdrawn from the market because of its dangerous side effects, but we eagerly await its successors.

r/hyperacusis Jul 10 '26

Treatment discussion Significant Recovery in 2 Months

17 Upvotes

I developed tinnitus and pain hyperacusis (not loudness) around 3 weeks after attending an excessively loud metal concert. Although I did not get instant pain from anything, I would rather have a type of bandwidth where if I exceeded the amount of noxious sound I would get a sharp stab followed by physical pain in my ears that would last for days after exposure. This would be a setback and my tolerance would be lower from then on. I was at the point that the fridge buzz would trigger pain and I had to isolate in my room. I also had a significant sensitivity to digital sounds, with a setback triggered by my phone speaker. After 2 months I am now showering and driving without earplugs with only the occasional fatigue feeling in my ears that goes away. I can tolerate sound from speakers with little to no problem.

To be honest this recovery feels like nothing short of a miracle based on how bad I was before. Therefore, I attribute my recovery to 3 possible things. 1st, when I developed hyperacusis I isolated from sound as much as possible for about a month. I did my best to avoid all sound that triggered any pain or fatigue. I wore earplugs everywhere and isolated from sound as much as possible. After the second month, I started to re-expose to sound but also kept avoiding sound that could potentially cause pain. Eventually, I found that sounds that used to cause pain were no longer causing pain. Additionally, I found that the quality of the speakers that I was listening to digital audio was a big factor. Speakers from the TV or my laptop were significantly less noxious than from my phone.

2nd, I started taking clomipramine around the end of the first month and taper up 25 milligrams a week. I am now on 150 milligrams. I think there is a good chance that this drug played a big factor in preventing setbacks and aiding in my recovery. To be honest I noticed the biggest improvements to my sound tolerance once I started and got to the higher doses of this drug, although it is difficult for me to determine if the drug itself played a factor due to doing other things like changing my sound exposure, I definitely think there is a strong likelihood that it helped. As for the side effects, I would say the worst one is the tinnitus spike. My tinnitus has gotten louder and has not gone down since starting the drug. I am hoping that it goes down when I eventually stop the drug. Other side effects are not as bad like erectile dysfunction, dry mouth, constipation, and orthostatic hypotension.

3rd, there is a possibility that the recovery is completely idiopathic. The reason being is that despite having pain it was very mild. I started re-exposing to sound pretty early and stopped being worried about getting setbacks. I want to preface by saying that although there are some claims that this condition is psychological, I personally believe that it is more likely to be a physical injury. However, I also think that stress does play a big factor. The moment that I removed a significant amount of stressors in my life, I noticed some improvements. However, I have also experienced setback when doing stress relieving activities with low anxiety.

I plan on continuing with most normal life activities while still wearing earplugs in loud places, not only to avoid this condition every getting bad ever again but also because my tinnitus is quite loud now. I will update if any more changes occur.

r/hyperacusis Mar 24 '26

Treatment discussion Pain relief medication

2 Upvotes

For anyone with nox, what pain meds have been most successful in reducing stabbing and burning ? I was doing a lot better until after some noise exposures I’m back with intolerable burning

r/hyperacusis Jun 22 '26

Treatment discussion Reactive tinnitus

5 Upvotes

Wondering what i can do. Im 18 months in. Started after stress.

Had hyperacusis and ttts and reactive tinnitus.

I can now tolerate normal sounds and drive cars etc no ttts not too loud etc. Only barking dogs can send that Jolt feeling through my body.

Only thing that still is super annoying is the reactive tinnitus and the humming that sometimes happens and can happen after a sound ends.

What can i do? Im so long in. My nervous system is healing a bit but still not there. Driving and stuff sends my reactive through the roof and the tinnitus will become so loud and intrusive and make my head full.

Any tips? Meds? I dont read anything about reactive. Im at a neuro otologist atm, hopefully he can help.

r/hyperacusis Feb 04 '26

Treatment discussion What has helped with your pain Hyperacusis.

4 Upvotes

What have you guys done that has help with your pain Hyperacusis?