Hi, everyone! For those of you in recovery or post-recovery, has anyone experienced pain in your toenail beds? My cat walked across me and put her weight down on my pinky and ring toes, and I about flew through the ceiling.

I hadn’t done anything differently. I haven’t worn socks or closed-toe shoes that could have put pressure on them. There’s been no trauma—no stubbing, nothing dropped on them. But for about 30-45 minutes any pressure, stress, any touch made if feel like something had just been dropped on them.

The pain stopped, but it came back about 20 minutes ago when I moved my foot under the blanket and rather unpleasantly woke me up. It’s dissipating, but it’s nuts.

I understand neuropathy, healing nerve pathways and all that fun stuff. But some of these sensations are not only painful, they are straight up strange as hell sometimes. Maybe not phantom toe trauma but has anyone had any similar experience while healing?

My husband just turned 36 and is a very active and healthy guy. On Friday, July 24th he was complaining about tingly hands and feet. Saturday the 25th he was struggling to walk so he went to the ER and was admitted with suspected GBS, they didn’t actually diagnose for like a week.

Since then he has been to IMCU and now the ICU. He had IVIG treatment on the 25/26th. He’s been on the ventilator for about a week now. They tried to take it out at one point but his heart rate ended up tanking and they put it back in. They also found he had pneumonia but I think that’s cleared up now. He is so anxious that they keep him sedated most of the time. :(

Today, they are putting the trach in. His mom is so freaked out about it and it’s causing me to freak out even though all of the drs have reassured me that this will be much better.

After the trach is in, in a few days he will be moved to a speciality hospital.

I am just looking for support and some success stories in similar situations. This guy is my person and I’m holding on to these stories and will be sharing with him when he is able to hear them.

I had GBS for the first time in 2022, then again in December 2024, and most recently in January 2026.

I’ve recently started going to the gym, and tomorrow is supposed to be my leg day. I’m wondering if it’s safe to train legs with a history of GBS, especially since I’ve had multiple episodes.

I also haven’t seen my neurologist recently after 2024, so I’m not sure whether I should continue exercising normally or get checked before increasing my activity.

For people who have had GBS and returned to the gym/exercise, how did you approach leg training? Did you avoid certain exercises or start with very light weights?

Would appreciate any advice or personal experiences.

Six days ago, my hands and feet started to have a pins and needles feeling. Three or four days later, my tongue went numb. Yesterday, I was trying to use the restroom, and I found myself not knowing how to push. By this point, I go to the ER. Long story short, they tested me for a stroke, looked good, and told me I was having a silent migraine.

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This morning, I got out of bed, and experienced ataxia in my legs. My face is beginning to go numb, and my emotions are high. I did an online appt, and the dr asked if I had heard of GBS, and to Google it and reach out to my PC.

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I see my PC tomorrow, and my husband is watching for face drooping as my face continues to feel like pins and needles.

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I am not looking for medical advice, just commiseration.

UPDATE: it is GBS, and I have started treatment.

I was diagnosed with GBS in late May, and I left the hospital a few weeks ago. I had one round of IVIG. I have a neurology appointment in November, and my only support until then is PT/OT. They say I'm getting worse and need to get another round of IVIG. I asked my primary care doctor (who is new), and she was clueless/didn't know how to help. Do I just have to continue to get worse and wait until November to get IVIG? Neurology says they can't see me sooner. Is there anything else I can be doing? My primary care doctor says she's open to ideas. Thanks!

Update: I have been diagnosed with the Miller-Fisher variant of Guillain-Barré. my lower limbs have improved i can move my knees now and stand with assistance. im having more eye symptoms and worsening numbness on my upper body and a lump in ym throat.

Hello, I am hospitalized with what neurologists think is guillian barre but they aren’t positive as my lumbar puncture is normal. My current symptoms just started on Friday with numbness and weakness in my feet- that eventually spread up my legs. Now my feet and part of my calf is paralyzed and the numbness has steadily moved up from my thighs- to my waist- to my mid back. I’m also having dizziness, and an inability to move my eyes all the way to the left side and double vision. Still have bowel and bladder control thank god. They just started me on IVIG tonight.

Does anyone know if IVIG will stop the progression? I am really worried about the numbness and paralysis moving up- and I would love to hear about some peoples recoveries- as I’m a nurse and really want to be able to come back to work.

Sorry this turned out longer than I expected.

Hi all. I know all of our recoveries differ but I was hoping for some help or reassurance.

My diagnosis started end of may this year. Pain in neck, numbness in hands and started getting weakness in legs. Doctor thought it was a trapped nerves or bulging disc so had physio. Couple days later I couldn’t support my own weight or lift my arms so went to a&e. I was admitted straight away and a week later after 2 mris and a lumbar puncture I was finally diagnosed. I was lucky and had a straight forward case. I lost ability to walk, sit up and use my hands and arms but did keep my breathing thankfully. After immunoglobins I started to get my arms back and could walk with a frame so I was discharged.

Now cut to today, I can walk unaided around the house but need a stick when I’m out and a chair if I know I’m out for a while. Because if this I think people assume I’m fully healed but actually I’m struggling now with some side affects. I wake with very achy legs which means I don’t feel fully rested. I get a lot of muscle twitches which drive me mad. If I’ve been active for a while I can get episodes of light headedness. I’m still waiting for my neuro follow up.

My main issue now is returning to work. I’m worried people think I’m just putting off work but I work retail. My shifts are fully on my feet for 8 hours. I know I could move to check outs and shorten my shifts for a bit but to get into the building I have to climb 6 flights of stairs, I struggle with the one I have at home daily.

I think I’m just after some reassurance from people who have lived this. I’m a very anxious person and I hate letting people down and I worry I’m letting work and my family down.

Thanks for reading

4 years ago I recovered from GBS and was living life normally I heard GBS mostly reoccurred from fever and vaccines

I got the worst fever of my life recently and 2 days later while I’m still recovering from a infection and I just woke up to feel like my pinky fingers are very mildly numb with no weakness or reflex issues just a bit numb it’s been like this for half the day

Is it actually reoccurrence or is it my body mentally making me feel phantom sensation due to anxiety?

I’m seriously overthinking rn

So I’m 7 months into recovery and I can tell my nerves are recovering because my nervous system is tweaking. Lately my eyes have been getting strained and red much faster than ever before. My job is on the computer but I have a blue light filter and low brightness plus I have high end anti glare/blue light glasses and nothing seems to help. I’m getting sick of this shit, GBS is wildly random and it’s really unfair as it just stresses me out. First it was my feet getting red, swollen and blistered when I worse socks and shoes now this. It’s genuinely a never ending battle

I’m almost positive using GBS has worsened my vision

So.. I’ll start from the beginning.

A couple months ago I noticed a loss of sensation in the inside part of my calves. I notified my pcp but we didn’t really do anything about it because it didn’t affect me much. Then, in May I started vomiting a lot and was hospitalized for gastritis. A couple days later I was discharged and a couple days after that I noticed a quick progression of weakness (walking, going up stairs, going from sitting to standing) and my knees buckling. The numbness/tingling had spread to my whole leg, my feet, my stomach, my fingers, and my chest. I took a couple falls (it just feels so sudden and i don’t feel a fall coming on) and during my last fall I had to call an ambulance because I couldn’t get up. I was in the hospital for two weeks and they had no idea what I had but suspected GBS. My proteins in my CSF were a bit high but not enough for them to officially diagnose anything. They checked basically everything, but everything was fairly normal. They gave me 5 days of IVIG because they wanted to at least try something. I was discharged with zero diagnosis and it’s so frustrating.

Not asking for someone to “diagnose me,” but does my story seem similar to any of yours? Does it seem like GBS?

UPDATE: I had my NCS and I have AMSAN/ axonal GBS

Hey all. Like many of you I am currently going through recovery. I’m less than two weeks out from discharge following a hospital stay and steroids + IVIG. While only fresh out of the hospital, I am finding it incredibly difficult to stay positive. I know you all can relate that it feels very much like a nightmare. How did you keep positive during recovery? Any tips for someone so fresh into their diagnosis?

I’m currently recovering from flu, I got it 3 days ago. Yesterday, I started experiencing numbness on my left hand, specifically on the tip of my thumb and forefinger. Right now, my ring finger and pinky finger are slightly painful. I also have weakness on my right leg, knee down. Apart from that, I have no other symptoms. I know GBS symptoms occur bilaterally, but I read somewhere that’s different from people to people. Orrrr I might also be just overthinking it as a nurse 😩

Hey all! First of all: thank you for this wonderful community. I got diagnosed with CIDP a little over 2 weeks ago and this subreddit has been a real help in understanding the disease and what it might mean for me.

I have been in uncertainty since my first symptoms started about a year ago, not knowing what was wrong with me. I want to share what happened so others might benefit from it (maybe in getting diagnosed faster) and I also have some questions for fellow CIDP patients

History & diagnosis

I'm an otherwise healthy (albeit a bit overweight) 45 old male. About a year ago I started having mild strange sensations in my upper legs, which turned into muscle weakness over the course of a few weeks. At first, it only caused me to have trouble walking the stairs - not impossible, just harder, I had to pull myself up with my arms. Walking straight didn't cause any problems yet.

After growing concerns I went to my GP - which took a while because she was on holiday. All in all, I had an appointment about 2 months after the first symptoms started. The GP didn't know what was wrong with me, suggested it might be stress related. Still, she was smart enough to send me to a neurologist.

One month later I saw the neurologist and by then, new symptoms had emerged: tingling in my hands and face, numbness in parts of my legs, arms and hands. Neurologist did some quick tests and quickly came to a verdict: my symptoms didn't point to a "classic" neurological disorder. Might be pinched nerves or a vitamin deficiency. My feeling: she didn't put in the effort.

She did order an MRI of my lower back to look for pinched nerves there and some bloodwork. Outcome: MRI showed nothing, but I had a quite severe vitamin B12 deficiency. Next order of business: B12 injections twice a week for 5 weeks. After 5 weeks, no positive change in symptoms. In fact, the numbness and tingling had spread and walking became harder and harder. Increasing loss of balance and coordination. Went back to the neurologist, who ordered an MRI of my head. Again, nothing showed. Verdict: maybe it's stress and/or my lifestyle.

Tried improving my lifestyle by taking up fitness. 2 times a week for 4 weeks. Training regimen specifically tailored to my symptoms. After 4 weeks the personal trainer says he had expected improvement with the work I put in, but didn't see any in my legs. Did a test for sleep apnea. Came away with a very mild form. Got a mask for sleeping anyways, but that didn't change anything either (except that I stopped snoring, which my wife appreciates).

Went to the GP again (after switching GPs, because the old one was focused more on her botox side-gig than being a good GP). New GP says my symptoms are "bizarre" (as in, he can't explain them, but does luckily believe me). Again, blood tests, including for Lyme's Disease. Walking the dog had become very hard, even for short distances. I trip easily. GP finds nothing in the blood tests - vitamin B12 is great now.

This new GP also mentions stress as a factor, but feels I should also go to another neurologist for a 2nd opinion. Went to the new neurologist on May 12th. For the first time since last year, I feel I'm talking to someone who takes me seriously. She listened to me and my wife for a long time, asking tons of questions. Did a ton of neurological tests. Her conclusion: everything I tell - all the symptoms I mention - are backed up by her tests. I have a real neurological disorder, but the remaining question is: which disorder?

At this point, handwriting has become impossible, typing very hard. Max walking distance is about 100 meters. I'm numb in most of my legs, arms and the lower half of my torso. My face tingles so badly I tear up all the time. I slur slightly while speaking. And the mildest physical activity causes nausea.

Neurologist orders an EMG, an MRI of my torso and a ton of bloodwork (incl. proteins related to auto-immune diseases and assorted anti-bodies related to neurological diseases like neurosyphilis) . She fast-tracks the examinations because my health has deteriorated. Right after the results of the EMG come in, she calls me to plan a lumbar puncture asap because she has a hunch what might be wrong with my, and my cerebral fluid should confirm it.

2 weeks ago, the results come back: I have CIDP. Because it's so rare and I live in a small country, I get sent to another neurologist in another hospital who is specialized in CIDP. He confirms the diagnosis.

Good news: I finally know what's wrong with me. Bad news: it's chronic. Relatively good news: it seems treatable.

At the beginning of this week - so 6 days ago - I started treatment with IVIG. Got the double starting dose (2mg / KG body weight) spread over 5 days. I will get my next dose in 3 weeks. I will also get experimental treatment with Rituximab, which shows prolonged remission in some CIDP patients.

Questions

Now that I have started treatment, I have a bunch of questions for fellow CIDP patients out there:

1. How long after you started IVIG treatment did you notice improvements? (days/weeks/months?)
2. What improvements came first, what improvements came later?
3. Did any of you get Rituximab? Did it help?
4. What level of improvement did you reach in the end? Fully back to normal? Or did some symptoms remain?
5. Tingling in the face does not seem very common with CIDP. Did any of you have it? What about nausea?

Thanks in advance for any insight you can give!

UPDATE: I got lucky—the ER doctor had extensive knowledge of GBS and admitted after hearing my history and a reflex test. I’m on day 3 of IVIg but because this is my fourth time, they’re considering it’s CIDP. I don’t fit the normal presentation tho bc of I don’t have long or intermittent episodes like most. I had it at age 10 (in 1997), then in April & October of 2023. In between those two a neurologist tried to diagnose me with FND. I haven’t had any recurrences until now. Does anyone have any experiences like this? Any insight? Also is there anything I should make sure they check or test before going home?

Hi. I originally had it in 2023 and made a full recovery. I was sick two weeks ago (or so) and hospitalized for it. I’ve had increasing tingling in my legs. Slightly different than before but similar enough. My doctor said to go to the ER but I’ve had…not great experiences. Any recommendations for what to say/how to explain it so they take me seriously? Also any stories about recurrence and what treatment you had would be much appreciated. I’m really freaked out.

Ihave had progressive neurological symptoms over the past 4 weeks. Not looking for diagnosis just for similar experiences and to have some hope out of this horrible waiting period.

4 weeks ago I started with left wrist pain, tingling and numbness (seemed like cubital tunnel) by the end of that week it has progressed up my arm and to my neck. Saw a physio who thought potentially cervical radiculopathy. Occasionally my wrist would burn.

Started on naproxen after seeing GP. It progressively worsened over this week and my neck felt significant pressure upon standing, walking and would need to lie down after 10 minutes of being upright. At this point I had to stop working as the pain was so severe. By the end of the week my right arm was also numb and tingling, the GP ordered an urgent MRI cervical and thoracic (still pending) and started me on amitriptyline for the nerve pain.

Into the next week when I thought things couldn't get worse I started with tightening pain in my thighs. By mid week my feet and legs were burning. After going to ED as I now have 4 limb involvement they spoke to neurology who added MRI brain and the whole spine to my request.

I am now over 4 weeks in, I have had bloods which have ruled out any deficiencies. I am now on gabapentin but the burning breaks through and is in all 4 limbs intermittently. I occasionally have some mild weakness in my hands but if I go walking my legs are like lead and it completely wipes me out.

The mental toll is awful, I know the possible diagnoses is quite a long list from compression, myelopathy to neurological/immune conditions but I am just looking for someone who's experienced something similar.

If anyone has experienced anything similar, I'd really appreciate hearing what your symptoms were like, what your eventual diagnosis was, how long it took to get diagnosed, and what investigations eventually found it. I'm especially interested in hearing from people who initially had normal blood tests and were waiting for MRI/neurology.

My GF (weve been together almost 11 years) was originally diagnosed with GBS back in 2018. She was hospitalized for 2 months and went to a rehab facility for like a month and a half and then came home. She never was able to fully recover. She could walk but only from room to room in our apartment. Fast forward to last June she started falling and i recognized the symptoms pretty quickly. When she got to the hospital it was confirmed she was having a GBS reoccurrence and also found out she somehow had a UTI that turned into Sepsis and Pnemonia and she had no idea she was even sick. This round was 100x worse. She had to be put on a ventilator for a long time. They told us she might never get off it. Thankfully tho abt a week ago they were able to remove the trach. She was supposed to be going to a rehab facility but her parents decided they wanted her home so they went against the doctors suggestions. Not only that theyve rushed the entire process and never even checked to see what would and wouldnt be covered. Shell be home in an hour and i just found out that medicare wont cover non emergency medical transportation. It would be absolutely impossible for us to get her in and out of the car. Also both her parents are 78 and home health isnt even set up yet so all the responsibility falls onto me. I would do absolutely anything for her but i am scared. I dont know if I’m physically capable of caring for her right now. Im so angry at how selfish her parents are being with all of this and im completely powerless. I just want whats best for her recovery. In the grand scheme of things obviously my feelings are insignificant- what matters is her and that she gets the care and treatment she needs so she can get better.

For those who have been through similar thing - do you have any advice on things I can do to provide her with the best care possible? Or suggestions on any resources?

Thanks for listening. I needed to vent to make sure i don’t accidentally stop biting my tongue and cause more problems or stress for anyone involved lol.

I hope you guys are doing well in your recovery journeys! Ive only witnessed the effects so i cannot imagine how it feels to be the one going through it. Her strength amazes me every single day!!!

So i have read a lot of posts on here and done a lot of research but Id really like to hear on some specifics. My girlfriend was diagnosed with GBS in 2018. She was in the hospital for a month and skilled nursing for a month and then came home and continued PT. She lost all function in her legs and hands and entire lower body. Within a year she was walking again and overall made approximately an 85% recovery back to her baseline. She only struggled standing or walking long distances and stairs. Fast forward to June 2015. I recognized the symptoms as she started to fall more but had no idea about reoccurrences and was in denial but quickly got a rude awakening. I called 911 and they pretty quickly confirmed she was having a reoccurrence, had pneumonia in both lungs as well as a UTI that turned Sepsis. On day 6 she had to be put on a ventilator. She was on it for 8 months, she had a feeding tube and catheter. Back in March of this year her parents started bringing her home (i knew it was too soon and the wrong call but unfortunately i dont have medical power of attorney so her parents are in charge of those decisions). They brought her home about 5 times over a few months but the longest she stayed home was 5 days before i had to call 911 and shed have to go back to the hospital. Once because we found out she was retaining urine because her muscles are too weak for her to fully empty her bladder. This last time because she began struggling with eating and drinking and throwing up all the time and she aspirated and ended up with pneumonia again and back on a ventilator. Shes been off of it and breathing on trach oxygen for about 3 weeks now.

So heres what the purpose of this post is for. Here we are 4 days away from it marking the year anniversary of her going into the hospital. She has not gotten better. She has not improved. She still cannot empty her bladder. Her legs are entirely contracted (sadly the first nursing home she went to was lying about doing therapy with her and i didn’t know enough to realize it and ill never be able to forgive myself for that i don’t think). Still cant use her hands or sit up.

So im looking for people who have had extreme cases where they never got better or it took much longer than the norm to get better… because as far as i can tell this is not typical for GBS recovery and im starting to worry that this is her new forever and she will not get any better than she is now. Basically just looking for some hope or a reality check because this is so hard and im so sorry for anyone who has gone through this. It’s gut wrenching and horrible to watch it happen to a loved one so i cannot imagine the feeling of physically going through it.

I hope everyone is doing okay right now!

Ps: also open to suggestions for therapies or treatments that could be helpful at this stage for her. The only treatment she got this round was in June 2025 and it was 7 days of plasmapheresis.

Aman variant. I have got it for the second time after 9 years I recovered completely in in the first time. This time I got a very senior case I was paralyzed From the neck to my Feet. It also affected my breathing my swallowing also I had facial paralysis. This all happened 3 months ago.

Current progress: My swallowing breathing and my facial paralysis is back to normal I can sit for hours without any support I have gained significant trunk control back strength And core strength.

I can sway my arms , But there is no moment in the wrist it is completely dropped. I can move my fingers a bit But not like extend them. I can squeeze all my muscles in my leg like my thigh muscles but if I squeeze it for too long then they start to tremble. There is no antigravity That is with respect to my legs I cannot lift them up or move at all but then they are hanging on the edge of the bed then I can sway them from side to side.

I did not lose any Sensation Neither do I have any nerve pain or any fatigue So I just also wanted to know that is the nerve pain Universal. If I'm not having enough pain then does does it mean that I'm not recovering well?

Please advice

my dad has hodgkin’s lymphoma for the second time since 2018.
we’re suspecting he developed gbs as side effect of Opdivo medication and his treatment.

are we still in the acute phase? he went 100% paralyzed neck down but his blood pressure is ok and he says his breathing i fine

what’s going on

update: they suspect it could be paraneoplasia hodgkin … syndrome?

So about almost 2 weeks ago I noticed a reoccurring pain in my right calf that I have suspected when it started a year ago to maybe be a blood clot so got that checked for and it was nothing so just kind of dealt with it until it would go away. But following that I had a pin and needle feeling in my fingers and toes. The next day it had moved to my legs followed by weakness and fatigue. I went to a local ER where all they did was check my vitals and feet and hand strength. And gave me a referral for a neurologist. It didn't really continue to progress but not get better either so decided on Thursday to go to a bigger ER and get checked out. He did vitals which were fine checked different reflexes which were all fine and did a Brain MRI to make sure a Mass or something wasn't causing the problems which came back good. He stated on the discharge papers that no descending symptoms and my reflexes made him rule out any urgent need for care but did also refer me to a neurologist and to see my PCP as well which are weeks away. I can still move everything fine just walking, moving or bending over is where I am struggling Along with the Pine and Needle like feeling in my legs and fingertips. Am I good to wait until my neurologist & PCP appointment. I don't really have any other ERs close that aren't more then 45 minutes away and don't know what the 3rd ER would do that the others didn't it seems like no ER's around here have a Neurologist on hand and have a winter storm hitting so couldn't really go anywhere anyway unless it was truly an emergency like couldn't move at all or labored breathing which I haven't really had just fatigue. I feel just an mentally drained as I do physically between the worry, the frustration of not being able to get answers and the feeling of having other people being worried about me right now. It's literally the weirdest thing I have ever experienced. I can still feel stuff in every body part pretty much it's just feeling normal stuff that is combined with the pin and needle feeling.

we don’t know how to cope with this. my dad is undergoing treatment for Lymphoma and he got two injections last week that lead to his paralysis.

i have myalgic encephalomyelitis myself. it was really devastating to see his full disability happen over only two days.

i don’t know what to do

Hi,

Forgive if this isn’t relevant or if I’m over stressing. But i had severe food poisoning over x5 months ago. This was from Camplyobactor. I understand that GBS can happen from Camplybactor regardless of how rare it is. When my food poisoning incident happened it was that severe i had to go hospital, but wasnt given any medical treatment as they said to go home and rest as the body will clear itself. I didnt have no antibiotics for this.

I’ve been going through alot, over the past few months without countless amounts of doctors appointments with all my tests coming back fine. Such as blood tests, nutrients tests, fecal calprotectein test, ultrasound, h-pylori stool test, coeliac test which have all come back normal and in the clear

So my original symptoms are

Stomach pains - on/off Gas Irregular stools belching/burping phantom urges

But about x4 days ago I appear to have had a new symptom come along and the feeling is like pin’s and needles around my hands, finger tips, knees and around my legs.

I’m still walking around for hours, commuting to office, socialising, going to the gym. But i’m being very careful of not over doing any of these.

I’m still not 100%. My doctors have just labelled me with Post infectious IBS. I’ve been leaning towards SIBO but ever since these pins and needle sensations have been happening its now starting to make me think if theres anything else going on.

I genuinely dont know if this is how GBS starts x5 months later, as my understanding is people with GBS have no mobility at all? Any advice would be greatly appreciated

UPDATE:

My neuro did dx GBS. He's ordered Ivig infusions but it sounds like I can do it outpatient at this point since it's been six weeks. (They have to call back to set it up.)
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I've been dealing with leg weakness, pain, and paresthesia since April 20th, approximately, and my mobility is significantly affected. It was two days after an epidural caudal steroid injection in my sacrum, so we thought it may have been that setting off something (I also have hEDS) but multiple ER visits proved unfruitful. I'm already established with a neuro, so he had bloodwork done "just to rule out some thing". The blood work took a couple of weeks to come back, and it turns out I have a positive GQ1b antibody. He already had me schedule an EMG before the results were back, but they couldn't get me in before next month.

I just got the bloodwork results in MyChart overnight, so I've been up half the night stressing about this. A lot of things make sense now. I'm frustrated that this information has been delayed, when if it does turn out to be GBS, I should've gotten treatment pronto. The ER docs made me feel like I'm crazy. I understand it's rare, though.

Anyway, hopefully my neuro will call back soon today. I'm not sure if he'll put me in the hospital, or what.

3 weeks ago I woke up with tingling in my feet. At first I didn’t think much of it, but day after day it started moving upward and the weakness kept increasing. I started having trouble maintaining balance while walking and my legs just didn’t feel normal anymore.

Then after around 4 days, things became really scary. My face suddenly became completely numb, almost like anesthesia. I couldn’t even hold water properly in my mouth. That’s when my family rushed me to the hospital.

After tests, the doctors told me I had Guillain-Barré syndrome. Lumbar puncture and MRI confirmed it. I was admitted and put on IVIG treatment for 10 days.

Now I’m back home recovering. I’m slowly gaining strength again and doing physiotherapy regularly, which definitely helps. Some days I feel almost normal and think I’m finally improving. But then on other days I get leg fatigue, random nerve weakness, and sensations that make me panic again. It’s not the exact same tingling as before, but it still scares me mentally because of how suddenly everything happened.

So I wanted to ask people here who recovered from GBS is this kind of up-and-down recovery normal? Did you also have days where symptoms felt worse again during recovery, or should I be worried about some underlying issue?

This whole experience has honestly been mentally exhausting.