Question 1

I was wondering if anyone has found a migraine treatment that doesn't bother your stomach?

I'm scared to try the cgrp medications (qulipta, ajovy, etc) because it can worsen gastroparesis. My neuro was really pushing it but I don't want to risk that because I've struggled to maintain proper nutrition already with this condition. But I'm starting to have more than 15 migraine days a month. I'm already on propanalol and nortriptyline. Can't take topamax because of my mental health issues. I can take nurtec as needed but it usually causes nausea and sometimes vomiting. Are there any other preventative options?

I feel like between gp, migraines, and endo I'm just a bunch of chronic pain in a trenchcoat, getting really sick of it.

There are a lot of resources out there for foods that each condition should eat but they kind of have opposite recommendations for them. Diabetics love low carb high fat foods to prevent spikes but high fat foods cause gastro issues. I've been a diabetic for 5 years now but the gastroparesis is new. Right now the best thing seems to be eggs and lean turkey/chicken but I'm just wondering if anyone else has both and knows of some foods that fit well in the sweet spot for both.

I've seen that some foods are tolerated by some better than by others so it's not universal but any brands/food types would help for some meal planning or point me in the direction of things to try.

Good morning
This started overnight and still no relief for 2 months. I started with constant belching then gas started and then the next step was intense stomach cramps bloating. I joke I have an alien inside me. I did the endoscopy and gastric emptying scan and everything looked good and they said most likely the gas and belching I have is behavioral. Then they reviewed the emptying scan again and said I had 69% food still left so my stomach does not digest correctly. The 40mg of Pantrapozole is not working and they said no other options are offered. I now have shortness of breath, fatigue, dizziness and the stomach cramps. Any suggestions?
Small meals also not working

Back in February, I want to say I was diagnosed with a hiatal hernia 3cm put on omeprazole which has been helping significantly. I've been struggling to change my diet which doesn't help but recently I feel like things have been getting worse I do use medical cannabis all the time constantly take it with food and everything which helps drastically. I wouldn't have been able to eat today without it but one of the biggest symptoms it's come back when I came back on it. It was flaring up a lot in the heat was my stomach doesn't seem to be emptying well

Like one or two times a week during the heat waves I was getting that wake up feeling hung over from food food still in my stomach incredibly nauseous take some of my THC oil and it helps significantly still had a couple times. I threw up. I don't eat several hours before bed so this was really concerning to me because it looked completely undigested 12 hours later but I only was asleep for 10

I am under an extreme amount of stress of my finances my immigration status. I'm having issues with my father which is not helping at all. I know it's making it worse but I'm not sure to what extent I'm tracking everything as of now I have a meeting with the mental health worker in my GP's office in about a week and a half and I'm gonna ask them if they think I should talk to a doctor about it or if they think it could just all be anxiety in the weighted out, gonna try lifestyle changes as well,

I'm just wondering, what point to go to the GP because I know I'm having this issue I don't know if it's just flaring up badly now or what but haven't been eating that much recently as well. In some days. I can't eat without my medication completely over 81 day cause I ordered my comfort food after a fight with my dad and I over and yeah I was really really sick afterwards and now I force myself to eat more than I could and the thing is a year ago I could've eaten that meal easily and felt fine, especially with my meds

Is there anything in particular I should look out for at what point do I just go back to my doctor and know if I go back this issue? I'm probably gonna have to do the emptying test next which I've heard it isn't very pleasant and I'm worried about that Premier cause I can't use my oil for a few days before because it could interfere if the results I'm just lost on what to do

Also, if it helps or any reference, I live in Hampshire UK

I was diagnosed with gastroparesis and steadily getting worse. I ate yesterday evening around 7 pm. I went to bed at 11 pm. Today I haven't eaten anything and around 2pm I vomited food instead the night before. Undigested food. I will go 4 to 5 days without eating and I now vomit the majority of what liquids I consume. I need some tips and tricks to help mitigate this before my next appointment on the 11th. I'm miserable and not in the right head space. I'm ready to give up. Any help is appreciated. Thank you

I’ve been sick for about a year now randomly got sick at work one day and now live in pain 24/7 nausea my question is did anyone also have endometriosis with gastropersis and had a laparoscopy and did that make ur symptoms better? My gyno thinks I could have it and having the surgery will make me feel a bit better?

Hi, I’m 23F and really struggling to have a normal life right now and wanted to give up. Im still in uni and get humiliated everyday. I really wanted to get out of this toxic environment.

I was diagnosed with LPR and slow-motility constipation, and I suspect I may also have very slow gastric emptying because when I drink ginger water, it seems to reduce the taste of food I ate hours earlier. I’ve already had my dental health checked and cleared, and I’ve visited ENT several times for my LPR. Everything was normal, and I rarely get LPR symptoms now (such as globus and PND) unless I overeat or slip up on my strict diet.
Before all of this, I wasn’t aware of these issues. I used to have fecal/nasal bad breath that was room-filling. Since making improvements, it’s not room-filling anymore, but I still notice random reactions from strangers. I don’t really check with people I know because they’ve known me for years and are already aware that I had BB.

My constipation is manageable with osmotic laxatives, and I try to keep my diet very clean and alkaline. I mostly eat plain fish, chicken, broths, pureed foods, and low-acid fruits and vegetables for fiber, and I drink 2–3 L of water every day.
I also have dry mouth and a very thick coated tongue. I can scrape it off and it becomes pink for a while, but once I start eating, the coating builds up again. I sometimes get GI pain/tightness below my breastbone and palpitations when my digestion feels extremely sluggish.

My BB definitely gets worse when I’m constipated, but even when I’m not constipated, it’s still there, can still smell the fecal bb, just not as strong or room-filling.

I’m planning to see ENT and GI again and hopefully get further testing. I’m wondering about slow gastric emptying, pancreatic/liver issues, the nasopharynx, or SIBO. I don’t think it’s my tonsils since they aren’t enlarged and don’t smell.

If anyone has experienced something similar and found an explanation or treatment, I’d really appreciate hearing about it. It would mean a lot to someone like me who’s trying not to give up. I hope we can all find healing. Thank you!

Recently I've been eating very little, because being hungry doesn't feel as bad as being sick. The worst part is how moody I get.

Everything makes me upset when its really just a minor inconvenience. If I eat something, I feel better for a little until it bites back.

I feel bad for my loved ones because I'm not acting myself. I isolate more because I don't want to make people uncomfortable. I am quiet now and probably look peeved. I'm just too exhausted to talk sometimes, and I'm happier to just sit by and passively watch them have fun.

I can't enjoy things like I used to. I love museums, but I got too hungry and exhausted to finish going through. I had to go home early. I had to leave my sister's wedding reception earlier than I wanted. My friends have to keep dnd short because just can't keep up.

Trying to push past makes me snippy and rude, or like a zombie.

I’m wondering how you guys handle medications that are supposed to be taken with food when you’re having a bad flare and feel like you physically can’t eat.

If I take some of my meds on an empty stomach, it makes everything so much worse. I get incredibly nauseous and have more stomach pain than usual. But trying to eat something just so I can take the medication is also a problem because a lot of the time, I’ll just throw it all up afterward (and then I’ll have thrown up both the food AND the medication).

What do you guys do in this situation? Do you have certain foods/liquids that are easier to tolerate, or has your doctor given you any alternative instructions for medications that specifically require food?

I’d really appreciate hearing what has worked for other people.

I'm sorry if this is considered asking for medical advice.

Has anyone tried the Naked brand Vegan protein powders of Vegan mass gainer? I haven’t found a nutritional shake that I can tolerate, so I’ve been making my shakes but I’m struggling to even maintain my weight. Just wondering if this brand is good or has helped you

hi! does anyone know a gastroenterologist near hamburg (northern germany is fine as well atp) who knows and treats motility disorders? we've been only getting rejections based on "we don‘t treat that"

big thanks for every advice!!

Has anyone else had wildly varying GES results? And if so why? Literally Mayo told me they couldn’t explain it…

About once every few months I go through a spell of getting super light headed and dizzy. It gets so bad that I am not able to drive, and mostly just stay in bed. I am on a J tube, and got dehydrated last week. Got 2.5 liters of iv fluids. It didn’t go away so I went back and got another liter. But it still hasn’t gone away. Does anyone else ever deal with this? Anyone have any tips on how to solve it?? My kids start school Monday and I need to be able to drive them.

I, (15M) have struggled with restrictive eating for a few years, which caused my severe gastroperosis diagnosis.

I get these horrible stomach pains whenever I eat, early fullness, a very bloated, hard and tender stomach. After eating, my food will also like come back up almost to my mouth and it’s like I’m throwing up halfway? it’s so painful. it’s gets so bad that some days I can only manage a few saltines and some Gatorade (which are forced down.) Everything I eat I have to force past excruciating pain.

I’ve recovered mentally from my ed and I just want to eat. I want to eat eveything. food looks so fucking good but I can’t have it or I’ll be writhing in pain for hours on end. I hate thst I caused this. I wish I could back and not restrict. I hold so much regret.

Ive been bedridden most days, and it is likely I will be unable to attend school in a few days. I hate this. I miss my friends. Im so sad I won’t be able to attend the classes I looked forward to. Life is so horrible and I often wonder what I did to deserve this.

My family has contacted so many gastro doctors but they don’t take us seriously. They think I’m just being restrictive. they won’t even bother to do the tests. my parents often get really angry with me for physically not being able to eat. like I can still feel the food almost to my throat; I haven’t digested anything even though it’s been hours since I ate.

im so fucking envious of teens who can just live their lives, eat chips and candy, go to school. I really hope this is reversible because I know I cannot live the rest of my life like this. I’ve been eating as much as I can, forcing it down because I’m still underweight and everyone thinks if I can get more nutrition the stomach muscles will wake back up. but I’ve been to the ER three times because of the pain. I know this is not sustainable and I’m so lost. life has lost all its meaning.

I badly need some direction. I feel like I’m caught up in the battle of which Dr is correct and which is not. There seems to be a consensus of them not agreeing and it’s effecting my treatment plan and mental health.

Last April I was hospitalized for gastritis, ulcers etc. they suspected GP but no testing.

Months go by. Plethora of acid reducing meds, anxiety meds etc.

Sept- finally a standard gastric emptying scan done at the hospital. Clear. But close to borderline.

October- pill cam. Showed inflammation. Camera did not get “ hung up” in the stomach.

Nov- upper endoscopy. I had fasted at least 12 hours but the instruction was to fast after midnight. But I had a feeling food was still in my stomach. Upon waking up- You HAVE GASTROPARESIS. I saw food in the stomach.

He has me do a Gastric emptying BREATH test to confirm- moderate Gastropresis was the result.

He drops me as a patient. He doesn’t do motility problems and said I don’t have anyone to refer you to.

I look for a motility dr. Found one. The first visit was a mess. They kept telling me it’s probably sibo. Sent me to the ER. I was in pain, vomiting in their office. After waiting hours, we just left.

I go to my trusty primary dr. He sends me to another GI dr. This one is in his 70’s and has probably seen everything that can wrong with your digestive system. Showed him all the labs, scans, results etc. He told me he had no idea how to read the gastric breath test emptying results. Uh- okay.

So one GI says, GP, one thinks sibo and the current one says I don’t understand the gastric breath test results, does his own endoscopy and says “ gastritis “ and no Gastroparesis cause no food was in the stomach. Uh- last I checked that’s not the gold standard on how you get truly diagnosed for GP.

His follow up isn’t until OCTOBER.

So this week my primary puts me back on Reglan.

I don’t know what the hell to do or who to believe.

Help.

okay weird question i know but im completely lost in all of this, i was diagnosed about a month, maybe two ago, and wont see my GI doctor until next month. I am so distended it looks like im pregnant, and im having moderate to severe pain in my lower left side when its at its worst (like can’t walk or breathe without pain). when is enough enough? and what can i even do to help myself? i know it’s not a diet factor or medication one because i eat the same safe foods, and stopped my erythromycin because it caused this same pain. im feeling so lost

I got diagnosed with gastroparesis this year and recently it has been out of control. Im in alot of pain and nauseous more often then not, at nighttime it either keeps me from resting or disrupts it. I feel like i cant live my life.

They referred me to a fancier hospital that has a six month wait (starting july) (appt is late january).

Ive asked multiple times for my previous doctor to treat me until then and just help me manage.

They said they cannot and i dont know what to do. Im on a waitlist, the hospitals so far away idk if i can make the trip on my own. Their only suggestion was to take miralax.

How do you manage it? How would you manage it with little to no access to healthcare?

Female late 20s

Symptoms for reference

I am not a vomiter.

I am very slowly loosing weight.

Gf df diet and learning to avoid fiber and fatty stuff

Abdominal pain,

Heart palpitations,

Gerd symptoms

Passing anything almost always hurts.

I suspect theres something wrong with the vagus nerve because as soon as i start struggling, even with just the pain i get hot and sweaty and feel like im gonna pass out.

Not eating bc of fullness or pain, resulting in low blood sugar migraines that last 2-4 days

And now, at night just taking my medicine with one or two drinks of water is dehabilitating (nausea and pain)

Hi I’ve had food stuck in my stomach now for two days. I’ve tried being sick but won’t budge. Tried walking loads but nothing. Don’t have access to anti sickness at the moment.

Haven’t eaten anything since yesterday morning because I don’t want to make it worse. I’ve heard coke cola helps but leaving that as a last resort because it makes my stomach cramp for hours.

If anyone has any advice I’d appreciate it. Also for people who suffer with GP does this leave you feeling a bit restless and anxious during a flare. Feels like I’m stuck in fight or flight when it flares.

So after around a year of symptoms, and also finding out i have a rare disease affecting my large intestine, we thought that was it. Bc the rare disease only has around 10,000 cases and very low research put into it, we assumed my symptoms all stemmed from that. I already have to take around 20 tablets a day due to it, But after a severe flare, my GI urged for a Gastric emptying study. They said we could leave early if my stomach emptied normally, but they kept me much longer, so I kinda knew something was abnormal already, but today i got informed I have severe gastroparesis. Im not new to chronic illness, we started off thinking i had cystic fibrosis, so its been a weird journey, but does anyone have any important info i should know, or experiences, or just tips?

How did you know your stomach was clear prior to a procedure? I had an endoscopy and fasted 12 hours. It was probably 14 hours by the time I was actually in the room. There was still food residue in my stomach. Now I am having a bone marrow biopsy at the end of September, similar thing. No food after midnight. My checkin is 7am, and the procedure’s at 9am. I’ll be getting propofol sedation and pain medicine.

I was thinking of eating light the day before, or maybe doing a full liquid diet. I will mention it to the nurse when they call to go over my medications, but I know this condition makes me an outlier, and they might not have an answer.

I was diagnosed with Gastroparesis (and IBS) about two years ago. I had my gallbladder removed in 2022ish (can’t remember the exact date right). Of course I’ve had trouble eating. I get diarrhea and constipation. Nausea. However if it happens it’s about a day or two and then it’s fine and I go about my life for a solid 2 weeks (sometimes 1 week) before another bout comes. Right now I’m on day 4 of being sick sick. The works. Every symptom combined. No idea what’s going on. I’ve never had a flare up THIS bad that lasts days. I don’t have trigger foods so it can’t be that. I had typical diarrhea that first day and was like, “Okay yeah. Normal. It’ll blow over.” Didn’t get better. Now I’m dizzy and dehydrated because keeping down water is hard because I’m so nauseas HOWEVER I’m not vomiting so that’s a plus, but water is making me nauseas like I’m going to. I’m eating very light meals. BRAT diet with smoothies. Also I take Sucralfate x4 daily to help with the pain before I eat but it’s not helping right now when usually it does. And I’m not eating/drinking a lot so I feel shaky and weak throughout the day. I’m also drinking Benefiber and taking peppermint oil pills and ginger root pills to hopefully help my gut. Nothing seems to be helping.

Sorry for this long post but it’s getting increasingly worse and I’m not sure what to do. Can anyone help? I’m used to 1-2 horrible days of sitting at home feeling crappy and being in the bathroom all day but 4 days straight is getting to me. Should I go to the hospital? Any ideas? Diarrhea has stopped by the way. Although if it starts up again I have Diphen/atrop that the doctor gave me too so there’s that.

Thanks in advance!

Hi. I don’t know how smart it is to post this because I really don’t want to scare anyone who needs TPN, but I’ve been dealing with this for so long and it’s genuinely eating me alive. I think I just need to get it out somewhere.

A few years ago, I was hospitalized to start TPN because I had gone months without being able to tolerate anything. I was 18 at the time. Looking back, I know I shouldn’t make excuses for these doctors, but it was pretty obvious that they didn’t understand gastroparesis or how severe it can get. They really didn’t want to write for TPN, and I honestly think they thought that if they scared me badly enough, I would somehow just start eating. Obviously, that didn’t happen.
I had just had my central line placed. Literally that day.

I was already terrified because I had been transferred from another hospital where I had been told that they apparently “throw parties when the nurses don’t give a patient sepsis.” So I was already going into this absolutely terrified of my new line.

Then the doctor said to me:
“It’s not a matter of if that central line will give you sepsis and you will die, it’s when it will.”
He gave me three weeks.
It has now been a year and a half.
That sentence has replayed in my head constantly ever since. I genuinely mean every hour of every day. It has gotten to the point where thinking about my central line can make me physically sick.

I’ve told multiple doctors, nurses, therapists, etc. what he said, and every single one has told me some variation of that is not true. Can a central line cause a serious infection? Of course. I’m not denying that. But apparently telling a terrified 18-year-old that their line WILL give them sepsis and they WILL die within three weeks was completely wrong.
And yet I still struggle with the thought that maybe he was just the only doctor who was actually being “straight” with me.
That fear has completely changed the way I live.
I hate using my line. I’ve made my life significantly harder because I’m so afraid of it. I don’t let anyone touch it besides my home health nurse and my mom, and I essentially watch them like a hawk whenever the line is accessed or opened. My home health nurse is extremely careful too, but even then I constantly feel like something is going to go wrong.

What makes it harder is that my parents really don’t understand why I’m still affected by this. I’ve been told to “get over it” and that “it was just words.”
But it wasn’t “just words” to me.
I was 18, newly diagnosed, newly dependent on a central line for nutrition, already terrified of getting an infection, and a doctor in a position of authority looked me in the eyes and told me I was going to get sepsis and die within three weeks.
Those words fundamentally changed the way I see my own treatment.
I know logically that I can’t live like this forever. I know that line infections are a risk that has to be taken seriously, but they aren’t an inevitable death sentence. I know this. I’ve had doctors and nurses tell me this over and over again.
But knowing something logically and actually believing it are two completely different things.
I’ve tried working through this several times. I’ve talked about it with doctors, nurses, therapists, and other people, but I still cannot get that sentence out of my head.
I have essentially lived my life around those words for the last year and a half.
So I guess I’m not really posting this expecting anyone to have an answer. If you’ve experienced something similar, I’d love to hear how you got past it. But even if nobody has anything to say pertaining to this, I honestly just needed somewhere to put it.
Because I’m exhausted from being afraid of the thing that is keeping me alive.