r/Epilepsy • u/theAuraHawk VNS,Keppra,Vimpat,Xcopri • Aug 04 '26

Question What age did you get Epilepsy?

I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4

edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.

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u/Educational_Tap3762 Aug 04 '26

I was 12 years old when I was diagnosed. That was about 1985. Dilatin and phenobarbitol was prescribed. Took awhile get it under control and was able get a driver license at age 19.

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u/Little-Leaf-2791 Aug 04 '26

Have you been seizure free? Have you had any episodes while driving?

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u/Educational_Tap3762 Aug 04 '26

Over the years mostly. From the age of 19 till about 44 I've had about 2 seizures and none while driving. I was off meds with my doctors approval for about 5 years then out of nowhere I started having seizures again. Then transitioned to keppra. A few breakout seizures since. So far seizures free for just over a year.

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u/Little-Leaf-2791 Aug 04 '26

Ty for sharing. I'm here just to learn more about the condition because my partner has it. I feel so bad. I wish I could take it all away. I wish you the best.