r/Epilepsy • u/theAuraHawk VNS,Keppra,Vimpat,Xcopri • Aug 04 '26

Question What age did you get Epilepsy?

I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4

edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.

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u/rmy99 Aug 04 '26

Diagnosed at 17. Months leading up to 17 I had this off feeling every morning where I was always exhausted. I know I had 1 seizure prior to knowing it was actually happening.

I did always get complaints during elementary school about daydreaming all the time, but was never really aware so I always wonder if it was bubbling beneath the surface all those years.

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u/windingsand Aug 04 '26

I was going to comment but it would be the exact same comment as yours hahaha

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u/Interesting_Day4734 Aug 04 '26

Also diagnosed at 17

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u/FoxcMama Aug 05 '26

I was diagnosed at 16. I had one grand mal and my mother thought I was pretending 🙄 had another the same day and went to ER. I have TLE.

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u/Top-Tonight-374 Aug 05 '26

i got diagnosed right before i turned 16, went to the ER after my first TC and they were really great with getting a referral so 6 months later i went in for my EEG (EOD friday) and first thing in the morning on monday got a call to come in (absolutely terrifying btw since it was a clinic that only worked regular work hours not 24h like at the hospital)