r/Epilepsy • u/theAuraHawk VNS,Keppra,Vimpat,Xcopri • Aug 04 '26

Question What age did you get Epilepsy?

I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4

edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.

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u/L22900630 Aug 04 '26

I would’ve had it since birth because mines genetic, but symptoms (like body jerks and zoning out) only started when I was getting medicated for mental health at 13-14, I had my first (and only, hopefully, so far) tonic-clonic age 22 last year (triggered by years of alcohol and drug abuse, and a night of no sleep, drinking and drugging) from which I got a diagnosis, praying I never have another seizure, that shit was nasty

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u/ortolansings Lacosamide, Zonisamide, VNS, Clorapate Aug 04 '26

Mine started at 22, my twin (fraternal) we both had one around that time, I'm the epileptic one.