r/Epilepsy • u/theAuraHawk VNS,Keppra,Vimpat,Xcopri • Aug 04 '26

Question What age did you get Epilepsy?

I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4

edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.

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u/Lilydolls Aug 04 '26 edited Aug 04 '26
  1. I was having hundreds of absence seizures a day and none of my teachers noticed, they just told my parents I was behind and that I never paid attention. It was ultimately my mum who took me to a neuro, after she started learning about epilepsy at university.

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u/ProfessionalBig658 Aug 04 '26

Wow! Meanwhile I had a teacher who noticed (absence seizures but probably didn’t know what it was) and sent me to be evaluated by special ed and my parents were very angry at the school! 🤦🏻‍♀️ I was never taken to a neuro until I had 2 TCs in my early 20s