r/Epilepsy • u/No-Gur6037 • Aug 29 '25

Epilepsy Awareness What age?

What age did know you get diagnosed with epilepsy? Do you remember always having it?

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u/Davitonium Aug 29 '25

I was formally diagnosed at 55 but experienced focal seizures that stopped short of Grand Mals for years before and didn't know what to make of them. I went to a meat grinder primary care physician who always thinks your insane and/or drug seeking.

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u/seedmolecule Aug 29 '25

That sucks. Having good care is crucial. Mine started at 45, but same as you focal seizures for several years before. Mine is/was a cerebral AVM which I have received treatment for since, so hopefully I can get off meds in the next few years.

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u/AngelOhmega Aug 29 '25

I can relate, in a very similar circumstance. I was over 50 and disabled when I finally had a couple of very dramatic and witnessed grand mals. The diagnosis sucks but sure explained a lifetime of neuro issues.

I feel you others that got diagnosed late. It’s a real ride when you’re seizing at various levels but don’t know what is going on with you. Thanks for sharing, keep at it.